eileenbunny Posted January 3, 2018 Share Posted January 3, 2018 Please ask questions here. I will try to answer them in a more timely manner than last year. I'll have help this year as well. You can also message me on Facebook (eileenbunny) or email at conference@clusterbusters.org. We are so excited for DENVER!!! - Eileen 2 Quote Link to comment Share on other sites More sharing options...
Ninjajoe Posted January 12, 2018 Share Posted January 12, 2018 Hi . I'm sure several of us have asked about the elevation of Denver being a trigger . I really want to attend but this scares the you know what out of me . Any suggestions? Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted January 15, 2018 Share Posted January 15, 2018 Greetings... Personally I've never had altitude trigger an attack but I know that some have. Where I live is about 1000 ft....where I snow ski is an hour and 45 minute drive and the elevation is roughly that of Denver so I'm not worried. If flying is a trigger for you Denver could still be ok as cabin pressure is roughly equivalent to 8000 ft. Denver is roughly a 5400 average. 2 Quote Link to comment Share on other sites More sharing options...
dhr34 Posted February 15, 2018 Share Posted February 15, 2018 Planes and altitude near an equinox is the worst place to hold this conference. That time of year is one different barometric change after another also. Could be cold. They should always be held on a charter cruise to near the equator. No laws out there and can cure people instead of talk. The Cure Cruise. More fun too! 1 Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted February 16, 2018 Share Posted February 16, 2018 SMH..... 2 Quote Link to comment Share on other sites More sharing options...
MAMAHLF Posted March 18, 2018 Share Posted March 18, 2018 Denver is a great place too hold this years conference. I not only suffer with CH, I also suffer with Asthma.. I camped out for a week in Denver a few years back and had no problem until I attempted to go up to Pikes Peak with some of the other campers... That was a no, no... So they brought me back a pin (smile)... My headaches were no different in Denver, than they are here in Illinois... Ladyluv - aka Mamahlf 2 Quote Link to comment Share on other sites More sharing options...
damion Posted April 9, 2018 Share Posted April 9, 2018 just found out about cluster buster im soo happy to know im not the only one and you guys understand what this pain is . the emergency rooms told me i dont need oxygen they had no idea what cluster headache was im looking forward to denver conference in september 2018 1 Quote Link to comment Share on other sites More sharing options...
Theotherguy Posted April 13, 2018 Share Posted April 13, 2018 Unfortunately I would not be able to attend. Is there an option of making the 125 entrance donation and viewing the speakers on live stream? Quote Link to comment Share on other sites More sharing options...
eileenbunny Posted April 18, 2018 Author Share Posted April 18, 2018 Unfortunately at this time there is not a streaming option and we do not foresee adding one in the future. We may make some of the presentations available after the conference, but due to the need to keep the conference private and protected for all attendees, we don't allow live streaming or video recording in the conference space other than for official purposes. 1 Quote Link to comment Share on other sites More sharing options...
eileenbunny Posted April 18, 2018 Author Share Posted April 18, 2018 As for altitude, there's actually a thread about this from several years ago that might give some hope and guidance. We also have a regional support group in Denver that may be able to offer some tips and advice. Also, while we hope that you won't need it, oxygen will be available at the conference for everyone. Please bring a regulator, mask, wrench, and whatever else you use as we will just be supplying the tanks. Please bring your items even if you are not in cycle just to be on the safe side. https://clusterbusters.org/forums/topic/577-altitude-effects/ 1 Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted April 18, 2018 Share Posted April 18, 2018 1 hour ago, eileenbunny said: As for altitude, there's actually a thread about this from several years ago that might give some hope and guidance. We also have a regional support group in Denver that may be able to offer some tips and advice. Also, while we hope that you won't need it, oxygen will be available at the conference for everyone. Please bring a regulator, mask, wrench, and whatever else you use as we will just be supplying the tanks. Please bring your items even if you are not in cycle just to be on the safe side. https://clusterbusters.org/forums/topic/577-altitude-effects/ I second this.....come prepared!! Quote Link to comment Share on other sites More sharing options...
eileenbunny Posted April 19, 2018 Author Share Posted April 19, 2018 Clusterbusters is pleased to offer travel scholarships for our 13th Annual Patient Conference. If you need assistance in order to attend this exciting, educational, and life-changing event, please consider applying. We won't be able to accommodate everyone, but we will do our best to help as many as possible. If you have the means, please consider donating to our scholarship fund. https://clusterbusters.org/donate/ Thank you. http://survey.constantcontact.com/survey/a07efb7msxfjg3r03rv/start Quote Link to comment Share on other sites More sharing options...
godsjoy777 Posted May 12, 2018 Share Posted May 12, 2018 My husband and I are trying to plan a vacation in Estes Park after this conference. Can you give me more information on the time frame? I see Thursday night is meet and greet and I assume the conference will be all day Friday and all day Saturday. How late does it go Saturday night? Also Is there some part of the conference continuing on Sunday? I definitely plan to make it but want to know how to make our plans afterwards. Maybe I’m just an old idiot but I’m not sure how to sign up for this conference either. Thanks so much for your help, godsjoy Quote Link to comment Share on other sites More sharing options...
godsjoy777 Posted May 12, 2018 Share Posted May 12, 2018 Never mind. Found the info online. Hope to see a lot of my old friends like Nani and Racer that I met in Dallas many years ago. Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted May 12, 2018 Share Posted May 12, 2018 Hi godsjoy Conference agenda usually wraps up around 5pm on Sat followed by the conference dinner. There's not any official conference agenda on Sunday but many folks stay and get together for breakfast and goodbyes......I'm sure Racer is going but not sure about nani. Dallas Denny 1 Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted May 13, 2018 Share Posted May 13, 2018 As long as the situation allows, I will be there! Looking forward to seeing you again! 2 Quote Link to comment Share on other sites More sharing options...
FunTimes Posted June 7, 2018 Share Posted June 7, 2018 Does anyone have any information on a oxygen supply company out this way that will deliver o2 to a hotel room for some of us flatlanders planning to attend the conference? Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted June 7, 2018 Share Posted June 7, 2018 Clusterbusters will have O2 tanks available at the conference hotel...just bring your regulator and mask FunTimes DD Quote Link to comment Share on other sites More sharing options...
FunTimes Posted June 8, 2018 Share Posted June 8, 2018 I will be staying in a hotel down the road from the convention and was wondering how to get O2 delivered to my room so I have it when I am not at the conference. I was going to drive out with my own but if I can get it delivered to the hotel I would fly out. Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted June 8, 2018 Share Posted June 8, 2018 G'mornin FunTimes! Let me message Eileen, our conference chairwoman, for confirmation but I'm relatively certain that you'll be able to check out and E tank st the conference hotel and take it back to your hotel...I'll post back when I hear back from her! Looking forward to meeting you! Dallas Denny Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted June 8, 2018 Share Posted June 8, 2018 Hey Funtimes! Yup, Eileen confirmed....you will be able to check out a tank to take back to your hotel and there will be large cylinders available in the conference area DD Quote Link to comment Share on other sites More sharing options...
FunTimes Posted June 8, 2018 Share Posted June 8, 2018 DD Thank you for looking into this for me, it will be the first time I attend a conference and look forward to listening to your demonstration/workshop. 1 Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted June 9, 2018 Share Posted June 9, 2018 You are in for the experience of a lifetime FunTimes! This will be my 4th conference....at my 1st in Portland (2010) there was around 35 of us....Las Vegas (2012), around 100....Austin (2016), well over 200!! Amazing experience to be around a whole raft of folks just like yourself who absolutely "get it"......freaking priceless!! DD 2 Quote Link to comment Share on other sites More sharing options...
KT<3 Posted July 10, 2018 Share Posted July 10, 2018 Hi everyone, I'm looking forward to it but the link for scholarships hasn't worked the last few weeks. Am I too late? I have a go fund me page to try to help but I'm not sure I can afford it even with that. I look forward to seeing you all! Quote Link to comment Share on other sites More sharing options...
Dallas Denny Posted July 11, 2018 Share Posted July 11, 2018 I'm fairly certain the deadline for scholarship application has passed KT.....hope you get to make it! Dallas Denny Quote Link to comment Share on other sites More sharing options...
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