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eileenbunny

2018 Clusterbusters Patient Conference Denver

12 posts in this topic

Denver small.jpg

 

Please ask questions here.  I will try to answer them in a more timely manner than last year.  I'll have help this year as well.  You can also message me on Facebook (eileenbunny) or email at conference@clusterbusters.org.  We are so excited for DENVER!!!

- Eileen

 

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Hi  . I'm sure several of us have asked about the elevation of Denver being a trigger . I really want to attend but this scares the you know what out of me . Any suggestions?  

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Greetings...

Personally I've never had altitude trigger an attack but I know that some have. Where I live is about 1000 ft....where I snow ski is an hour and 45 minute drive and the elevation is roughly that of Denver so I'm not worried. If flying is a trigger for you Denver could still be ok as cabin pressure is roughly equivalent to 8000 ft. Denver is roughly a 5400 average.

MAMAHLF likes this

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Planes and altitude near an equinox is the worst place to hold this conference. That time of year is one different barometric change after another also. Could be cold. They should always be held on a charter cruise to near the equator. No laws out there and can cure people instead of talk. The Cure Cruise. More fun too!

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Denver is a great place too hold this years conference. I not only suffer with CH, I also suffer with Asthma.. I camped out for a week in Denver a few years back and had to problem until I attempted to go up to Pikes Peak with some of the other campers... That was a no, no... So they brought me back a pin (smile)... My headaches were no different in Denver, than they are here in Illinois...  Ladyluv - aka Mamahlf

Racer1_NC and dmlonghorn like this

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just found out about cluster buster im soo happy to know im not the only one and you guys understand what this pain is . the emergency rooms told me i dont need oxygen they had no idea what cluster headache was im looking forward to denver conference in september 2018

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Unfortunately I would not be able to attend. Is there an option of making the 125 entrance donation and viewing the speakers on live stream?

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Unfortunately at this time there is not a streaming option and we do not foresee adding one in the future.  We may make some of the presentations available after the conference, but due to the need to keep the conference private and protected for all attendees, we don't allow live streaming or video recording in the conference space other than for official purposes.

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As for altitude, there's actually a thread about this from several years ago that might give some hope and guidance.  We also have a regional support group in Denver that may be able to offer some tips and advice.  Also, while we hope that you won't need it, oxygen will be available at the conference for everyone.  Please bring a regulator, mask, wrench, and whatever else you use as we will just be supplying the tanks.  Please bring your items even if you are not in cycle just to be on the safe side.  https://clusterbusters.org/forums/topic/577-altitude-effects/

 

 

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1 hour ago, eileenbunny said:

As for altitude, there's actually a thread about this from several years ago that might give some hope and guidance.  We also have a regional support group in Denver that may be able to offer some tips and advice.  Also, while we hope that you won't need it, oxygen will be available at the conference for everyone.  Please bring a regulator, mask, wrench, and whatever else you use as we will just be supplying the tanks.  Please bring your items even if you are not in cycle just to be on the safe side.  https://clusterbusters.org/forums/topic/577-altitude-effects/

 

 

I second this.....come prepared!!

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Clusterbusters is pleased to offer travel scholarships for our 13th Annual Patient Conference. If you need assistance in order to attend this exciting, educational, and life-changing event, please consider applying. We won't be able to accommodate everyone, but we will do our best to help as many as possible. If you have the means, please consider donating to our scholarship fund. https://clusterbusters.org/donate/ Thank you.

http://survey.constantcontact.com/survey/a07efb7msxfjg3r03rv/start

 

 

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