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Frilling

Emgality Shot for Episodic Clusters

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Has anyone tried the newly FDA Approved Emgality shot  for Episodic Cluster Headaches?  If so, how has it been working?   According to the FDA 300 mgs is needed for an onset of an attack. 

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I went to my neurologist today and she informed me it was approved yesterday by the FDA for CH and will be available for prescription (300 mL) Monday. She had samples of the migraine 130 mL doses that I took two of. Supposedly it takes a few weeks to a month to start working. I’ll keep you posted. 

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@Frilling emgalitiy is a preventative not an aborter for an acute attack. In the emgalitiy study they found that 70% of the users saw a 50% reduction in HA. Hope you’ll be the lucky one it completely gets rid of the CH. keep us updated. 

Edited by Freud

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Just because it doesn’t cross the brain blood barrier doesn’t mean it can’t be effective. If it exerts its effectiveness.  systemically on circulating CGRP thus lowering the total concentration in the body

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Thank you all for your feedback.   From the responses i got i am not feeling very optimistic anymore.   I was very excited when i saw the news release about it.  I thought to myself....FINALLY!!   I have a husand & daughter that deals with this nightmare.  Now,  i feel like the bubble has burst yet again.

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….Henry Ford used to say " whether you think you can...or you think you can't...you're right"....always a good idea to solicit opinion...but there is only ONE way to truly know....every med and every strategy I ever tried I went in believing "THIS is the one"....that way I knew if it didn't work it wasn't because I didn't give it a FAIR shot....

Edited by jon019

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Hi everyone. I have been chronic for 20 years but my neurology Dr. thinks outside the box and had me try the Emgality. Its a once a month 120 mg/ml single dose injection prefilled pen 2 per box.She  had me take 2 first month then 3 the next three months. Being chronic  didnt help me except put me to sleep for days which I will take that sleep as a win. I am really hopefull the other headaches types will get the relief they deserve. Also in each box is a savings card for up to 12 months free if you have commercial insurance. Terry

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