kat_92 Posted March 2, 2020 Share Posted March 2, 2020 hey All I was prescribed metroprolol today by my doctor (preventative for migraines and clusters), what are the rules regarding the interactions with the vitamin regimen? Thank you Quote Link to comment Share on other sites More sharing options...
Pebblesthecorgi Posted March 2, 2020 Share Posted March 2, 2020 You should not have any interactions from a beta blocker (metroprolol) and the Vit D protocol. While beta blockers have some value in preventing migraines they have very limited success in cluster headaches. I suspicion your provider is lumping clusters and migraines together but they are very distinct entities and need to be addressed as such. 1 Quote Link to comment Share on other sites More sharing options...
kat_92 Posted March 2, 2020 Author Share Posted March 2, 2020 @Pebblesthecorgi thanks for the info. I am going to give it a shot to see if it helps. My neurologist is still unclear whether or not I have clusters or chronic migraine. I’ve had only mild to intense shaddow pain since July 6th every day. No tearing or nasal congestion. She said that is not distinct characteristics for clusters so she thinks it’s chronic migraines. Not sure what to believe anymore. I’m quite frustrated Quote Link to comment Share on other sites More sharing options...
jon019 Posted March 3, 2020 Share Posted March 3, 2020 5 hours ago, kat_92 said: ….My neurologist is still unclear whether or not I have clusters or chronic migraine. I’ve had only mild to intense shaddow pain every day. No tearing or nasal congestion. She said that is not distinct characteristics for clusters so she thinks it’s chronic migraines... FWIW….CCH here (have never had a migraine)….rare hits but near daily shadows with no other symptoms (for years now post ECH)...non distinct does not mean unique....just a more difficult diagnosis... Quote Link to comment Share on other sites More sharing options...
kat_92 Posted March 3, 2020 Author Share Posted March 3, 2020 @jon019 I tried to explain to the neuro that I do not respond to migraine medications and that chronic clusters tend to be like what I am describing. That or hemicrania continua. She said I don’t meet the criteria for either. Quote Link to comment Share on other sites More sharing options...
CHfather Posted March 3, 2020 Share Posted March 3, 2020 9 hours ago, kat_92 said: I’ve had only mild to intense shaddow pain since July 6th every day. No tearing or nasal congestion. She said that is not distinct characteristics for clusters so she thinks it’s chronic migraines. FWIW, I know of a person with CH who has resolved all major attacks through busting, but, like you, has mild to intense shadow pain every day. No question that what he has is CH, not migraine. Quote Link to comment Share on other sites More sharing options...
spiny Posted March 5, 2020 Share Posted March 5, 2020 Here ls a method I used with my Neuro. He always has me seated toward the window light and then does the pupil test. Well, they contract at about the same rate. Two years ago, I turned off his lights and told him to look at my pupils. The CH side does not dilate properly in low light. And it takes quite a while to return to almost normal post cycle. He was giving me a bit of a hard time and wanting to treat for migraines. That changed his mind. The other pupil was huge and the CH one was 1/2 the size of the normal one. 'Oh, you do have Horners!' Ah, yes I do. My eye does not droop because I exercised the muscles to hold it open so much one year that I now have brow wrinkles on that side only and the eyelid is more wide open than the other one! It had gotten so bad that I could not read without killing my neck looking down. So, it became a daily project. He also was running with the normal runny eye, runny nose bit. Well, now I seldom get that, but the CH side of my head sweats profusely during a hit. Try it at home first. If you are still having CH, it should show up that way. It beats me how they just look at contraction and not expansion, but they do. And there is the old Nitroglycerin trick. They use it sublingual for Angina. But, for a CHer, it will bring on a hit. Not a migraine, a cluster. Painful way to go, but provides proof. She needs to rethink or catch up on her CH knowledge!!!! 2 1 Quote Link to comment Share on other sites More sharing options...
kat_92 Posted March 5, 2020 Author Share Posted March 5, 2020 @spiny thanks for the info! She said there is no way CH can be mild. She also said migraines cause one sided pain focusing around the eye. I don’t see the neuro for a follow up for another 3 months. To be honest, she is my 6th neurologist since I was 22. I am almost 28... it is getting infuriating and frustrating having to constantly re establish myself and give another history of my past medications. I don’t want to do it again. I guess I’m on my own. I have MM and my oxygen tank so there’s that. 1 Quote Link to comment Share on other sites More sharing options...
spiny Posted March 5, 2020 Share Posted March 5, 2020 Well, that negates my existence! I had 'mild' CH for years in my 20's. On time every time, but never the level of hits I suffered decades later. Take what she offers if you want to take it. Or stick it in a drawer. See the neuro and get the proper attention that you should be receiving now! Hugs! Quote Link to comment Share on other sites More sharing options...
jon019 Posted March 5, 2020 Share Posted March 5, 2020 ...I like spiny's pro-active educational approach.....I didn't have the energy to do that with 4 of the 6 I've seen (neuros seem to be higher on the arrogance spectrum in my experience)….one of other 2 recognized that I knew more about CH than her and just gave me what I wanted (O2 and triptans)….and the one headache specialist I found (at a closed now HA clinic) made me cry (in a good way) when she physically flinched at my telling of history and said "I treat CH very aggressively"...she was and is a HA researcher at Stanford (some of which CHfather has posted here)... ...long way to say ya GOTTA find a HA specialist.... ...interesting re the pupil constriction...no one has ever commented on my permanent hit side constriction...other than to shrug with indifference (eye docs). Seems to me would be one piece of the diagnostic puzzle pieces.... 1 Quote Link to comment Share on other sites More sharing options...
Siegfried Posted March 16, 2020 Share Posted March 16, 2020 On 3/5/2020 at 5:20 PM, spiny said: Here ls a method I used with my Neuro. He always has me seated toward the window light and then does the pupil test. Well, they contract at about the same rate. Two years ago, I turned off his lights and told him to look at my pupils. The CH side does not dilate properly in low light. Hi Kat, It can be you have CH, migraine or both... See my earlier posts for my experience with co-existing headaches. It is extremely difficult to distinguish when you have both as migraine tend to mimic the co-existing headache. Many people pretend to have "shadows" but I am sure in most cases it is actually migraine. They do not have it explicitly but they carry the gene and it comes out during cluster periods. Then the migraine tend to imitate the CH but in a lighter version. Very interesting remark about the pupil of the eye. I remember around 5 years ago, I went around to all the eye doctors in my neighborhood as my right pupil did not contract anymore. I was scared to have Horner syndrome. Doctors did the cocaine test and concluded it was not Horner and could not find any cause. So it looks there is quite some truth in this remark. Anyway with headache diagnosis you need a lots of patience. Difficult cases take years to diagnose properly. Co-existing migraine or latent migraine is it what makes it even harder. Best regards ! siegfried Quote Link to comment Share on other sites More sharing options...
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