didgens Posted August 20, 2014 Share Posted August 20, 2014 John. . .I'm anxious to hear more about how this works out for you. While my headaches are probably less severe than yours, my symptoms seem to be identical. I get a knot near my shoulderblade, leads to neck stiffness, then POW, headache. Not always, but frequently. I'm also two weeks into the licorice regimen, not on any other supplements or drugs at all. Mixed results, at this point. I wonder if there's anything to the muscle tension? Is it a precursor, a side effect, or even a direct trigger? Hmmmmm. . . The muscle tension in sholder happens exactly to my son as well. ALso when he was younger I noticed a deformity in the growth of his scapula on that side. I took him to a doc and he said its ok ,, different growth rate ,, my son also has a deformity of the surrounding boney structure in his ear canal on the CH side. ????? Quote Link to comment Share on other sites More sharing options...
gardengal Posted August 23, 2014 Share Posted August 23, 2014 I have been taking 5-2000 D3,2 1200 fish oil,1 500 Magnesium,1 600 calcium and 1 multi vit a day for 3 weeks. I haven't had hardly any shadows, only been hit at midnight to 1 am every night with just a few 9 pm hits with only one really bad night. I am episodic so haven't even felt the need to get oxygen this go round. My insurance won't pay for it so I wait until i can't take them and I have to get it. I've read I need to cut down the vit D after 3 weeks, but I have no side effects except a little diarrhea. Should I really cut my dose down? Quote Link to comment Share on other sites More sharing options...
CHfather Posted August 23, 2014 Share Posted August 23, 2014 gg, it's my understanding that lots of people stay on the 10,000IU of D3 all the time. Have you had a blood test for your D level? Do you ever try an energy drink or energy shot to about your attacks? Seems like at your level, that might work for you. Quote Link to comment Share on other sites More sharing options...
Brew Posted August 24, 2014 Share Posted August 24, 2014 Once I kicked my attacks to the curb in May of 2012 with mega-doses of D3, I have maintained my 25(OH)D levels since by taking 10,000 iu / day. My serum 25(OH)D level stays between 70-80 ng/mL. No attacks or shadows since. Quote Link to comment Share on other sites More sharing options...
Edache52 Posted May 4, 2016 Share Posted May 4, 2016 So anybody who thinks a ch victim Is a wuss or a damm asprin will help Just be around them during a severe Attack watch them change there tune Quick,there not called suicide headaches cause its a celebration Some people are just ignorant. Quote Link to comment Share on other sites More sharing options...
mit12 Posted May 4, 2016 Share Posted May 4, 2016 F-123 I hear your pain! Getting off Diltiazem was one of the worst 5 days of my life, but after I completed the busting process last November 20th I have been cluster free! Good luck and I prey that you are successful. Quote Link to comment Share on other sites More sharing options...
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