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Krizhanovskiy_Sergey joined the community
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ww88accom joined the community
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oolongtee joined the community
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My cycle has been ramping up faster than usual as well. On week four and going through week eight BS. Yeah, the first couple weeks are a walk in the park for me as well.
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I'm already in contact with her I'm wondering what the pool of participants is. I don't think we have a very big membership here at the forum so I'm curious if there are any active participants in here
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Thank you very much for the advice
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Thank you very much for all the advice
- Yesterday
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topnohu90comm joined the community
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Warren P started following Neurostar/Electromagnetic device and Cerebrospinal Fluid Flow
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Is anyone aware of studies connecting Cerebrospinal Flow studies with Cluster Headaches? Thanks, Warren P
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Does anyone have experience or knowledge of the Neurostar electromagnetic device for Cluster Headaches?
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Warren P joined the community
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Contact anna@clusterbusters.org for Cluster Buddy questions.
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My cycle is just starting. only Kip 4 atm, but frequency seems to be ramping up faster than last time. Hang in there!
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Loubum joined the community
- Last week
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MichelleC started following CureForCluster 10th Annual Virtual 5k
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Sign up for Clusterbusters 10th Annual #CureForCluster Virtual 5k by April 15th for early bird pricing and, for U.S. residents purchasing a race bag, to ensure your order arrives by race day. Shipped Race Bags will only be available for purchase by U.S. residents as an add-on. We cannot ship outside the U.S. Our virtual 5k can be run or walked at any location, so you can join us from anywhere in the world. Registration is open through June 6th. This year, we have partnered with Alliance for Headache Disorders Advocacy (AHDA) to support Headache on the Hill: A Visual Installation representing all headache disorders while our event continues to raise awareness and funds for cluster headache. For info and to register: https://runsignup.com/cureforcluster5k
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Quincy joined the community
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I could use a buddy these days. In the middle of a banger cycle. Only sleeping a cup hours per day since falling asleep triggers more hits. Had a 3 hour attack last night! Stay strong warriors!
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69vncomvin1 joined the community
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69vncomvin joined the community
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Bejeeber started following "Greater Occipital Nerve Injection versus Oral Steroids" and Cluster buddy program
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During my last cluster I applied for the cluster buddy program. I hadn't seen a reply until I checked this week while starting up a new cycle. I was wondering what everyone else's experience has been with this program. I'm back to working. I'm working more and making more than ever. A coworker left a leaking bottle of PVC primer in the cab of a work truck that apparently set off the cluster i'm hoping I just busted last night. But I'm hoping to build my own at home and hoc oxygen system and get myself back into insurance. Since my last visit I've started trying to eat healthier, started taking GNC MEGAMEN advanced test booster and micronized creatine, put on ~12+ kg in healthy weight, and over all I think I'm in much better health than I was during my last cluster. I'll probably be active seasonally, closer to my cycles and what not. This last year or two the attacks have been getting harsher, lasting longer, with shorter remission periods between clusters so there's a chance I'll be online more and more as time goes on. I've been informed that there may be a meet up in Dallas at some point this year. That's some 6 hours away one way so I'm not sure I'll be able to make it but I'd love to socialize more with people who haveore experience dealing with this miserable issue. Hope you're all healthy and well <3 NeitherHere
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I can't imagine that anyone here will be able to help you find Imigran in Namibia, but maybe I'm wrong. If you do get them, be sure that you/your dad split them so he gets more use from them: Getting partial doses from sumatriptan injectors (Imitrex, Imigran, etc.) - ClusterBuster Files - ClusterBusters The nasal spray, called Zomig, is similarly effective. There is also a sumatriptan nasal spray. This website says you can get that nasal spray "no questions asked." Is that true? Is the stuff reliable? Will they ship to you? I don't know the answers to any of those. Sumatriptan - Nasal Spray Oxygen is very effective at stopping attacks. Can you get that? Could you set up a system using welding oxygen? Notes about welding O2 - ClusterBuster Files - ClusterBusters DMT has been found to be a very effective abortive. Do you have any chance of getting (or making) that? DMT experiences and advice - Theory & Implementation - ClusterBusters
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Still desperate for anything similar
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Please help me find imigran injections or similar for cluster headaches
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- Earlier
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"Greater Occipital Nerve Injection versus Oral Steroids"
CHfather replied to CHfather's topic in Research & Scientific News
Tommy', glad you got that answer from Jeebs, which is the same as what I would have said -- probably not, but I'm no expert -- and he actually did some work on your behalf, which I didn't. Hope it all goes well!! -
I'm afraid this is so common, cycle changing when you think you have it sussed, the beast loves messing with your head
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1xbet changed their profile photo
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Unfortunately the seeds did not bust my cycle. Working on getting some MM and a DMT pen but got caught with my pants down on the war kit and the money situation is in shambles since I had to miss some work. Yeah, mine started almost three weeks ago with a headache after drinking some beers and has ramped up to a full cycle. Sitting on about week three of 12 if I can't get a good bust in there. GL!
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"Greater Occipital Nerve Injection versus Oral Steroids"
Tommy83 replied to CHfather's topic in Research & Scientific News
Thanks, I’ll read through the posts on that link! -
in the same boat. had some weird single hits a month ago. brushed them off although i kind of suspected i'm going to have an episode again. busted a couple of days ago but as it seems it didn't do the trick. got hit with 4 nasty hits at night this thursday. i think daylight saving time is what gave the last push. upping my vitd3 as we speak and hoping it will work. stay strong!
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Hey everyone. Been awhile since i’ve been on here. I hope everyone is well and in good health. The last time i was on here, I made some pretty anxious and depression-ridden topics about how i thought my life was over.. boy was i wrong. I’m posting this to further support the tools and methods that have been written about on these forums.. and to possibly give hope to those that feel lost, as I once did. The last 4 years have been some of the most eye-opening years of my life. I’ve made drastic health conscious decisions that aided in my relatively pain-free years. I’ve tried “busting” and diet changes. Both with great success. I listened to my body and found that a combination of Vitamin D3, magnesium glycinate and omega 3 supplements help keep my headaches at low pain levels or at bay. An (almost) gluten free, no msg or additive, low histamine, anti-inflammatory diet helps maintain that low inflammation in my body. Sleeping with my head slightly elevated and neck supported also helps me keep the blood pressure from building. I also found that getting sick with a cold/flu will immediately bring a cycle on. I assume because of the sudden onset of inflammation in the body. Especially in the face/sinuses. Taking valuable information given by Pete Batcheller, (don’t know his @ at the moment, sorry!) the cycles have been very minimal in times where they should have been grave and unforgiving. I’ve learned to accept the fact that I may have clusters for the rest of my life. I’m 24 years old, and for the first time in the 16 years i’ve had clusters, I’m finally OK with it. Where there’s a will, there’s a way. But it’s important to keep in mind that pain free responses will not happen over night. Not every piece of information helped me. Some worked, some didn’t. Having a strong support system of people helped immensely. I can partially attribute my positive attitude to one of the “busting” methods that we know about. These headaches made me appreciate the little things in life, which in turn, makes life much more beautiful. Music sounds heavenly, sights are awe inspiring, love for those around me increase. I can live my life knowing I have the tools and resources to stop a cycle, should it come back. I also learned that hardships and trying times await each and every one of us, but will never make life not worth living to the absolute best of our abilities. The human spirit is truly indomitable. I extend my love and thoughts to everyone here! I’ll be sure to keep everyone updated as I grow older
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kubettdiy changed their profile photo
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"Greater Occipital Nerve Injection versus Oral Steroids"
Bejeeber replied to CHfather's topic in Research & Scientific News
My current belief on whether nerve block injections would have much likelihood of being a blocker on busting, is no, probably not a blocker. Full disclosure: I'm not exactly well researched on this topic. It did come up previously in this thread that you may find pertinent enough to peruse: -
I'm in the exact same boat. Maybe a week ahead of you. The attacks when I fall asleep are ramping up. Had four last night.
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"Greater Occipital Nerve Injection versus Oral Steroids"
Tommy83 replied to CHfather's topic in Research & Scientific News
Hey, just wondering if the nerve block injections act as a blocker on busting? I’m due to have one on Tuesday but don’t want it interfering with my next bust due on Monday. Thanks -
I’m currently in “headache season” now and this is similar to my experience. I went almost two years pain free. My first headache was last week and I’ve had 3 moderate pain headaches and 1 severe last night - always at 11pm or after, waking me up in the middle of the night and they last between 30 min and 1 hr. I’m sorry yours are back after 5 years. It’s awful.
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ww888vin changed their profile photo
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I have both UC & I am CCH since 2012 - ask me any questions you have. And yes I have found stuff that helps. Nothing makes them go entirely away, but I have found ways to lower the intensity and number of attacks, and manage life with this condition. And my other health issues. Feel free to ask me anything.
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