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Showing content with the highest reputation on 03/17/2016 in all areas

  1. I remember going in for an MRI and I told my mom I hope they find a tumor, my mom started crying. no one that does not have these can understand what we go through.
    1 point
  2. hard for em to answer since I already had surgery that didnt work
    1 point
  3. I don't think you're an idiot at all. There's a reason they're nicknamed suicide headaches. I'm lucky that mine are random and rare, but they happen enough to be a contributing factor to not having guns in my house. My son was born via emergency c-section, the kind of surgery where they put you under anesthesia, and I woke up in the middle of it. The pain of that experience, I don't have words for. But the pain of a cluster headache? I'd have that same c-section again over and over again if it meant I'd never have another cluster headache. You're not an idiot or being melodramatic.
    1 point
  4. Others here might have an opinion about your list, but I'm pretty sure your best bet is to ask "Batch," the originator of the regimen. He's great at responding to inquiries like this, but he doesn't show up very often in person at this board. I was told that he recently responded to a PM from here, so you can try that from here: https://clusterbusters.org/forums/user/17422-batch/ If he doesn't respond to you, let me know.
    1 point
  5. My sentiments are in line with CHF's - there was a time when I would have answered yes to the poll questions, but I have been fortunate enough to have had the CH under control for a good while now, and I'll hope that's something that could still happen with you also.
    1 point
  6. In your circumstances, I think you are not an idiot for thinking those things, and I am very sorry that you are suffering so much. Most people here have found one way or another -- through busting, oxygen, D3, melatonin, energy beverages, and even some pharmaceutical medicines -- to not be in the same awful situation as you. Are you interested in exploring any of those things, or do you feel that you have exhausted all the possibilities?
    1 point
  7. Hi, I recently bought an Apple Watch (which is really cool if you're a Geek like me). I also downloaded a pretty decent Sleep App for it that monitors your sleep patterns. As sleep (or the lack of) is a trigger, I like to keep an eye on things. This sleep app (Sleep Pulse 2) is quite impressive, and thanks to the heart rate monitor on the watch, is able to track one's heart rate during the night. Below are my 2 most recent heart rate graphs. I clearly remember being woken up early this morning with a mild cluster, and was quite surprised to see, at about the same time, my heart rate had shot up to 113 beats per minute!! So, I began looking at previous nights, and there are also some spikes (102 bpm). I'm going to keep monitoring it, and try to capture my heart rate when I get an attack during the day to see if there is actually a direct correlation. But thought it interesting, and if someone else has one of these smart watches, if they've noticed anything similar. MG
    1 point
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