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In 2002, Clusterbusters was formed to take a pro-active role in researching for a cure for cluster headaches and find new and improved treatments. Eventually, 6 advocates traveled to Boston and met with the administration of Harvard Medical School and convinced them of the importance of this research and they agreed to undertake the first psychedelic research project at their institution in 40 years. On Feb 9th, 2004, an agreement was signed to begin research at Harvard University, looking at using psilocybin as a viable treatment option providing results far better than anything currently available. The first published results from this groundbreaking clinical study of this treatment appeared in the prestigious medical journal Neurology in June of 2006. This has been an incredibly long and often frustrating process that included the discovery of BOL-148, starts and stops of every fashion, thousands of people finding relief with various new options and an unending determination to push forward past every obstacle. The growth of Clusterbusters into an active and successful advocacy group for the entire community, built with contributions from hundreds of people that refused to let the words “can’t”, or “no” stop them from helping others. Along the way we have added some incredibly dedicated advocates, we have lost one of our original research team members, Dr. Andrew Sewell, added extraordinary researchers and headache specialists to our team, overcome those that have tried to stop us and will continue to push forward. Yes, it has taken 14 years but I am both proud and pleased to announce the following: ______________________________________________________________________________________________________________________________ VOLUNTEERS NEEDED Adults with chronic cluster headache, age 21 - 65, needed for a research study investigating Psilocybin in the treatment of cluster headache. ClusterBusters, a non-profit advocacy and education group, is participating in the recruitment of subjects for a pilot study investigating the safety and efficacy of psilocybin in cluster headache. This study is taking place at the Veterans Affairs Hospital in West Haven, Connecticut, an affiliate of Yale University School of Medicine. Earn $100 per test day. Three test days total. Call (203) 932-5711, ext. 4335 All calls are confidential HIC # 1607018057, HSS # DD0063 Biological Studies Unit, VA Connecticut Healthcare System, West Haven Campus ​________________________________________________________________________________________________________ A few details of explanation: 1. This study will require at least 4 visits to the study site, with time between visits which will require needing to be in the area for a while. 2. Please call during regular business hours (9:00am-4:00pm EST) if possible. 3. Participants will need to be physician-verified chronic cluster headache sufferers. Congratulations and thank you to everyone that has worked so hard for all these years to make this happen. Bob Wold Clusterbusters

A couple of years ago I posted about a person who thought that melatonin had made her nighttime attacks worse. I think one other person said they had had a similar experience. On the other hand, the young woman I originally posted about now takes melatonin pretty regularly when in cycle. She's not sure it helps, and she doesn't like being groggy in the morning, but she no longer thinks that it makes things worse. Pain in the butt to figure out, this CH. I gather that you are looking for the simplest and most benign way to treat your CH. I'd strongly urge you to go straight to oxygen, which will abort most attacks very quickly when properly set up and used, and has no side effects. You might well want to also see if increasing your verapamil dosage (and switching to non-ER, as amon10 says) is feasible. That usually has to be done slowly, so it might not be practicable, but dosage as high as 960mg/day can be needed during a cycle. Oxygen, D3, and verapamil are in my opinion the combination you want to try.

Patient #9 reported yesterday that he has been completely pf for 48 hours following his injections!! His longest pf period in his 13 year battle prior to the Jesus shot was 45 hours!! DD

Me, too. The Sewell poster on LSA. As you say, Geoff', may that wonderful man rest in peace. He answered every email question I sent him with kindness and compassion. Geoff' -- Did you do maintenance dosing to prevent cycles?

Geoffmh, Thanks VERY much for your contribution. It was the Dr Sewell study (of which you were one of the 53), that ultimately convinced me to try busting. I've never looked back... Changed my life for the best, forever. J

13 days, still learning what it's like to be pf, I found out I have ch mental memory, had a red bull so I would be ready for activity this weekend, not needed, shielded my eyes from the movie flashing lights, not needed, the cold in the morning, I tensed and drew up, not needed, instead I embraced the cold here is something from a member not in the usa, here's his notes about a steroid shot he gets; neurologists notes from last visit, may 2016, 0.5 mls of kenalog and 15.5mls of bupivacaine with the kenalog posteriorly and the bupivacaine in all distributions (greater and lesser occipital nerve, preauricular, supra orbital and supratrochlear nerve, )