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Courtesy of our friend dinmerced Chf...he's the one I mentioned that has used them....it definitely beats the hell out of what I paid between the doc visit and the charge for blood work! DD

Reading at the site that Denny posted, I see that it appears that they give you a prescription you can bring to a LabCorp site to get tested. The price seems reasonable enough, and some of the reviews say the results can be obtained very quickly. Thanks, Denny!!!!

Here ya go, go to this link and search for 25 hydroxy d blood test http://www.lifeextension.com All of the D3 regimen co factors can be ordered online at Pipingrock.com DD

There is a list here of recommended doctors for CH: https://clusterbusters.org/cluster-resources/ It's not updated or complete, but if you can find someone on this list, you will be better off. Many/most neurologists don't recognize CH, and when they do, many/most make terrible prescriptions (not prescribing oxygen, for example). Some of his symptoms sound like they might be hemicrania: "Hemicrania continua is characterized as a continuous, strictly unilateral headache of mild to moderate intensity with superimposed exacerbations of more severe pain. During these exacerbations, one or more autonomic symptoms (ptosis, conjunctival injection, lacrimation, and nasal congestion) occur ipsilateral to the pain. Many patients report a foreign body sensation, like an eyelash or a piece of sand, in the eye ipsilateral to the pain. This headache is defined by its absolute response to therapeutic doses of indomethacin." Here's something I'm absolutely not sure about. This is all speculative. I think you might be able to contact a local blood test provider and get a vitamin D test done. You could look up "blood test provider" on google and call one. They might not take insurance, but the cost might not be much more than the online D test, and the results would be considerably quicker (you're looking at at least a couple of weeks to get the online test, return it, and get the results) and more reliable. [EDIT: Looking back at Denny's post, I see that the process he's describing is potentially quicker than the one I was thinking of, where you order the kit online, it gets mailed to you, you put some blood on it, mail it back, and wait for results. But maybe what I'm suggesting would skip the middle man.] My daughter has CH. It is very difficult to deal with that as a parent. THANK YOU for doing what you are doing!!

G'mornin Meg and welcome to the community! Spot on advice from Amon! Agree with him that these don't sound like classic cluster symptoms, but I wouldn't rule them out....number one objective is getting him into a good neurologist, preferably one who is a headache specialist to rule out other nasty conditions that mimic clusters!! Diet changes have been reported to help by some folks....I know one longtime member here who eliminated gluten but I think that was to help his migraines. If, in fact, your boy gets a cluster dx, the vitamin D3 anti inflammatory regimen is an excellent preventative avenue, and, with that diagnosis, the neuro should give you a script for high flow oxygen to be used as an abortive measure! So sorry ya'll had the need to join us!! Sending pf thoughts and prayers! Dallas Denny

Shared a link above I will let someone else jump in on that. All I know is this has helped me.

hello trackle,just to let you know my dose of 480 mil twice daily" 960 daily" does not effect mm treatment, for me that is"! had a mm dose last night and my head is clear as a bell today!,i will repeat in five days! hope all goes well for you ,you are chatting to the right folks ! have faith in this site and you will be alright.!