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I'm off to the Mobile World Congress in Barcelona to try to find funding for the app. Problem only is that ticket cost €799,- for the cheapest ones and platinum tickets will cost €5.000,- So no entry for me. But, i've decided to solve this problem in an easy way. I've made myself a sigh I can wear on the frond an on the back of my body and I'm going to try to get attention that way. Big sign saying "Patient-driven eHealth start-up looks for €250.000" with a QR code below it leading the visitor to my pdf presentation that contains a link to a paypal payment service. All my friend think I lost something somewhere on the way but I don't care, A "NO" I have already, lets see if we can get a "YES"

Sounds enough like CH that you ought to get it treated properly. The BP medicine is probably verapamil. Low dose is kind of required at first, to make sure it doesn't affect you negatively (docs should be following up on that), but a very substantial dose is usually required to have any effect during a cycle. It's not uncommon for people to be put on a course of steroids while waiting for the verapamil to get to high enough doses to help. For many people, steroids stop the pain while they're on them but the pain comes back afterward. You should have OXYGEN -- the #1 abortive!!! And the pill (sumatriptan?) almost certainly won't help. Sumatriptan nasal spray works for a lot of people, and sumatriptan injections work for almost everyone. That's pharma stuff. (There's more, but those are the basics.) The pharmas are not without side effects, except O2. You should read the file in the ClusterBuster Files section about the vitamin D3 regimen. It's helped lots and lots of people. And give some thought at least to busting, which is covered in the numbered files in the ClusterBuster Files section. If you go to the clusterbusters.org home page (https://clusterbusters.org/) and click on the "Cluster Headache" tab at the top of the page, you'll be able to read a file about oxygen, see thorough information about treatment, and maybe locate a knowledgeable doctor. Try quickly drinking a cold energy shot, such as 5-Hour Energy, at the first sign of an attack. Get back to us -- let us know what's happening!

And we all hope you find some definite answers with pain relief.

sounds like migraine,the reason i say that is the same as your reason!,this pain is on a scale i can not put into words how strong these things are!have you checked out any youtube vids of the attacks?i cant watch them they are horrid reminders but anyway mate lets just hope you do have bad migraines ,and hope you can find some answers on this site.also try mm treatment see if helps as i know any kind of headache is bad,especially migraine sufferers !.good luck

sorry id not get back earlier guys,the reason why i did continue to receive the blocks from my specialist is for many reasons,!the first one being any line of defence with this condition is another comfort.!for example ,when i blocked my receptors with mm last year it gave me some hope!,as i have not informed my specialist of my discovery of mm and lsd treatment !reason for this is i do not want to jeopardise my future treatment ! i have had to much of a bad experience with docs all my cluster life ,apart from my specialist who has been treating me for over 15 years !so i also do not question his results ! some might think why not say !but sure some do understand,! i will do my very best to get the results for us all ,i do not do web stuff,i am only on this site,"like my life private!" but will try my best to get these results, or you could probably get my specialist on the web," i would not know," "we are here for each other!"

Interesting that they're still using cocaine. That was the original substance used, but for quite a while it's been primarily lidocaine. Would very strongly urge your son to start now on the vitamin D3 regimen that has helped hundreds of people with CH. You can read about it in the ClusterBuster Files section of this board.

Hi, no way cocain does any good to your son... I recommend digging deep into this forum and reading carefully the main threads. if your son is not handicapt by other means, probably better he starts by himselfe getting up to date reading in this portal. hmf

Hi My 18 year old son has had 2 episodic cluster periods ( march 2016 x 3 weeks and sept 2016 x 2 weeks ) He was treated with prednisone and verapamil at onset. Oxygen was helpful the first time and not the second. He is allergic to triptans. He had sphenopalatine ganglion (SPG) block with 4% cocaine drip intranasal 10 days into the last cluster period. The SPG block did cut in half the length ( 25-30 min down to 15-18 min) in each of the final four headaches of his cluster period . The intensity was unchanged but each headache was absolutely shorter (He had 9:30 AM and 9:30 PM headaches so we could clearly track the length). As I anticipate he will have a new cluster period start in the next 2-3 week we will begin SPG blocks on day one or two and assess. I will report back when we see if this plan is helpful.

I think if nerve blocks worked reliably there would be more published. Blocks are well compensated procedures. There little data to support and even if there was the injection is very operator dependent. Also its hard to imagine someone with enough cluster patients to claim "great results". Not to be negative but......