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Thanks Kris - Certainly some "sound" advice ... I am now a proud owner of several pairs of ear plugs and they help! They take just enough of that high-end tone off of certain sounds. I plan to share my story and help the CH community as much as possible...

something new for me is a deep sleep, also changing my dose to one dose of B1 400mg am and see someone on facebook emailed Dr. Constantini and asked these questions: Q1- Was your healed patient taking any other vitamine supplement1 (Omega3, D1, Magnesium and adult multi-vitamin, etc.)? A1: The patient didn't take any supplement Q2- Are you aware of cases where the B1 treatment isn’t working? A2: We only have three cases in treatment and they are responding. We also have 10 cases of chronic migraine and episodic migraine and all responded wonderfully to our therapy, with the complete remission of the symptoms. Q3- Do you have another future experiment planned with B1 and CH? A3: We will continue treating the cases which we visit in the next future Q4: For episodics like me, do you think I should start in between sycles or just wait for a cycle to start? A4: For episodics like yours, I'd suggest you to take the therapy when you have the first attack, with 500 mg in an only administration in the morning. Q5 Since vitamine B6 is linked to the Dopaminergic Systems functions, was vitamine B6 examined by your research? Was vitamine B12 examined as well? A5 We didn't examine B6 nor B12. Q6: Would you recommand taking 3 doses during the day of B1 or one a day? A6: We recommend to take the total dose all together in the morning at breakfast. Bruce He sent me these as well as all cases where Dr. Constantini treated diseases with huge intakes of B1 to treat MS, Fybromialgia and Parkinson; all so called auto-immune diseases..

My situation gets a little complex when it comes to the BP meds. I also have Rheumatoid Arthritis & Raynaud's Syndrome (diagnosed a month ago, what are the odds?!) The short answer is yes, I'm now on Verapamil. I am seeing a headache specialist later today, as my first Neuro visit ended with me worse-off than when I went in. As this is so new to me, once the dust settles, I plan to share my story in detail in an effort help others and get help when I need it - I think I found the right place Dm

Hi Bilal, I’m sorry that you’ve had to find your way here, but welcome anyway. Certainly, what you’ve described does sound like CH and quite similar to how I remember mine starting. I was 18 when mine started. I was woken from sleep one morning with a horrible piercing pain behind my right eye that I just couldn’t ignore. It probably only lasted 15-30 mins and then I went back to sleep. Another one struck during the day a few days later. They became more frequent but then died away within 2-3 weeks. My first few bouts were always like this. Your doctor sounds pretty switched on. He has looked to rule out hemicrania continua by trying indomethacin and has then gone for the standard front-line CH treatments. But I agree with CH Father – 80mg of verapamil daily is probably too low to be having any sort of effect. I’ve used 700mg daily in the past. I can think of a handful of really appalling CH attacks I’ve had over the years, but I reckon that the bulk of my attacks would have been 5-6 on the pain scale and they are manageable, especially if I’m sitting up or able to walk around. It took me a long time to realise that lying down made them much more painful. So your description sounded very familiar to me. Personally, I haven’t had a full CH attack in 14 years, but nowadays I suffer with bouts of “shadows” which can last for more than a year, and I never truly believe the CH attacks are gone forever. For me, sumatriptan injections worked very well and the nasal sprays were also good, if a bit slower. It’s possible that verapamil actually aborted 2 of my bouts, or at least controlled them. I hope it’ll work for you but you should definitely be talking to your doctor about increasing it. You must do this under supervision and with regular ECGs. Good luck, Joe

This is absolutely fascinating and I appreciate the posting. It also seems to match, at least partly, "batch's" D3 routine...which includes a loading dose of B-complex followed by other co-factors. I do have one question...guessing it might be related to translation from Italian to English....as it is quite confusing and does not match the rest of the paper's discussion: comments? "There is no therapy for CH. However, there are some effective treatments for both the acute painful attacks as well as for the prophylactic treatments." ...of course there are therapies....are they saying no SUCCESSFUL therapies for THIS patient? and unless we are talking poly pharm...I don't know what is meant by "some effective treatments for prophylactic treatments"...why would you have to treat the treatments? Best Jon