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Showing content with the highest reputation on 09/10/2018 in all areas

  1. Interesting article. I didn't seem them mention massage. Massage is awesome for managing stress and helping with chronic pain. Oh, and yes, clusters can be chronic. Maybe not in the sense of 24/7, like some chronic pains are. But I've have chronic clusters since they started in 2007. :/ My approach is simple. Life is what happens between headaches. MG
    2 points
  2. Hi All, New user here, long-term sufferer - read on saturday night about the Taurine and Caffeine mix - just wow! Wish my doctor could've reccomended this, i feel jittery from the fairly high dosage but wow, i can actually think straight for once! Supposedly being delivered home oxygen sometime this week after nearly 2 years of run-around by the NHS. Reading up on the psilocybin next!
    1 point
  3. This....from the magazine "Brain and Life"...formerly "Neurology Now" https://www.brainandlife.org/the-magazine/article/app/14/4/17/tuning-out-pain-chronic-pain-doesnt-go-away-but-treatingWhile clusterheads are not in "chronic" pain...we ARE in our own form of "intermittant chronic pain"....and this article resonated with me in several areas. It took many years but I finally figured out that HOW I perceived AND reacted to the pain of CH...and my general attitude to life...and life with CH.... made nearly as much difference to me as O2 and all the multitude of meds. See especially the last section "Turning off Negative Thoughts". Best Jon
    1 point
  4. I have often felt like your last statement. Sometimes I find it comforting and other times i find it tragic.
    1 point
  5. I was discharged from the Navy for having a sever malcalusion crooked teeth 6 years later I developed CH. After suffering for 30 years I went to a ortho surgeon and had all my teeth pulled and got dentures. Now I have CH with denture's. I did find a way to help and that was with MM. Found this out at last year's Cluster Buster's Conference. Saved my life
    1 point
  6. Totally out of left field but be SURE to mention to your dentist if you are taking Fosamax (alendronate) for osteoporosis/osteopenia....it is RARE but he/she should know because one potential side effect is jaw necrosis...which sounds a whole lot like NICO....may want to discuss discontinuation or different med prior to major dental work....or at least close monitoring.... ...had my wisdom teeth out at 19....CH started at 26...TOOTH pain ONLY for a year....dentist (prince of a man) REFUSED to pull what was, quote, "a perfectly good tooth"...so he researched and HE was the one who diagnosed CH (ahead of 3-4 PCP's)…………..
    1 point
  7. Hey guys just an update, been on Benadryl for 3 days and been pain free for 2 days still have moderate shadows but have avoided the o2. So far so good....
    1 point
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