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Showing content with the highest reputation on 10/11/2018 in all areas

  1. Hey Popoid, We know what you're going through and the good news is it doesn't need to be that way. You're likely vitamin D3 deficient and that deficiency is contributing to the frequency, severity and duration of your CH attacks. Download a copy of the anti-inflammatory regimen with 10,000 IU/day vitamin D3 plus the vitamin D3 cofactors and discuss it with your PCP when you ask for the lab test of your serum 25(OH)D. That's the serum level metabolite of vitamin D3 that's used to measure its status. The pain around your eye after the pain phase of a CH attack is called cutaneous allodynia, a pain response from stimuli which do not normally provoke pain. It is part of the cluster headache syndrome. Take care and please keep us posted. V/R, Batch
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  2. Popoid, If you're going the Imitrex (trex) route you definitely need the auto injectors. Imitrex is mostly worthless in pill form as it takes too long to work. Your doc should be able to prescribe the auto injectors. They work in seconds to minutes. Now on to the other side of the coin. I stopped taking all that dr scripted garbage years ago because it either stopped working, or did more damage to my body that I was willing to accept. Stick around and read others stories on the board. There's quite a few ways to diminish or really stop our CH. Have you tried energy drinks yet? Drinking a redbull, monster etc right at the onset of an attack can significantly reduce the attack pain. Most any energy drink with Caffeine and Taurine (and possibly Guarana) in it works. Also High flow Oxygen can stop an attack. The quicker you can get on it at 15+ liters per minute, the faster it'll stop the attack. It's best to get on it as you feel the attack coming, not waiting till the pain kicks in. Once the pain kicks in, it often doesn't work, or takes a long time to stop the attack. Cheers, J
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  3. Hi Popoid...welcome! The quick answer(s) is YES and likely.... YES! A cluster hit can be like a train wreck...not much that isn't affected. My hair used to hurt...and I'm bald!! You may wanna tell us more about yourself or ask anything....we aint Docs but we are professional patients..... Do you have a CH diagnosis? Do you have a headache specialist Doc...VERY important... many PCP's and even some neuros are unfamiliar with the condition and treatment. Any prevents tried (e.g. verapamil, Vitamin D3 regimen, magic mushrooms, psychedelics, seeds)? Aborts like the BEST: OXYGEN! What form of sumatriptan are you using? Tried energy drinks (caffeine/taurine), exercise, or other? Best Jon
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