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I would take the os script and fill that first, you can then get your own regulator from amazon to fit the tanks you get, 2 is better then nothing. I would then start working on the o2 supplier, I was given 4 e tanks when I was first set up with my O2 and after being very creative with the delivery driver and calling into the company for refills I am now up over 12 E tanks, 2 m60 tanks and 2 M tanks. The cost stays the same for monthly refills and it takes a little time to build up your stash but it is worth a try. Drivers dont care what you have and most of the time keep a few extra tanks on the truck. the youngsters on the other end of the phone taking orders dont care how many tanks you have and only type into the system what you order and most companys do not have the best inventory tracking software so they do not remember what you have. It may not be the most ethical thing to do but then again limiting you to only 2 tanks of something like oxygen is not the most ethical thing they can do either.

I need to meet FunTimes one of these days. His process of getting extra O2 tanks is exactly what I've done. Often the drivers have no accountability for what they have on the truck, and don't report what they pickup or drop off other than what's on the drop off sheet. When they come to drop the 2 tanks. Say you really need another to get through to the next drop off. I've had guys pushing me to take 2 or 3 extra tanks before. The company just wants to get paid from the insurance co., and have to spend as little in gas exchanging tanks as possible. If you call every two days for refills, I'd bet they'll start leaving extra tanks. J

Hi... ….CHf way ahead of me as usual....and I echo his outrage! Sorry, but you're 0 for 2......with their first ignorance being about the MOST IMPORTANT abort available: OXYGEN. All the other sh** should come AFTER that and ONLY if the oxygen doesn't work. Second, amitriptyline is an OLD line med (Was prescribed over 25 yrs ago...for ME...no benefit...bad side effects). Tis normally used as an anti-depressant and it or related meds have had some benefit for migraine...have never heard of anyone with CH benefitting. A) you GOTTA find a headache specialist or a pain and headache clinic. Are there any college teaching hospitals close by? B )find some way to get oxygen...welding or medical.... it doesn't matter (depending on health ins you may want to find even a general MD who is willing to prescribe). C) start the D3 regimen now....even if you didn't have CH it's good for ya Best Jon

Freaking barbaric. What is wrong with these people!?! If they're actual tanks, you can buy a regulator that will go up to 25lpm. But as you suggest, if they're small tanks, they won't last long. Eventually you might wear down the oxygen supplier, who will tire of constantly having to replace them. Or you can switch to using welding oxygen, as many people do. There was someone else on the board just today or yesterday who was prescribed amitriptyline. It is not a first- or even second-line preventive, at least as far as I know and have read. You know about the D3 regimen? Your best bet for long-tern prevention. http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 Meanwhile, I guess you know that you ought to be looking for a different doctor, preferably at a headache center. I just looked at the old recommended doctor list that posted here. Sadly, none in Iowa.

The E size tanks fit nice in a 2 litter soda bottle carrier the pepsi and coke guys use in the super market, they will hold 8 tanks and keep them from falling over when you store them. When your o2 delivery guy comes to drop off your tanks you can take the empties to him in that carrier and ask him if he can just refill the rack for you and you will keep it at your back door for him to make it easier for the next time he comes to deliver. I have done this a few times with only 6 or 7 bottles in it and he fills mine back up with 8 tanks. I have a few extra soda crates for the next time he comes to just trade them out with him. I have also had them not bring a larger M tanks and he gave me a few extra E tanks to hold me over for my next delivery.

Brian- I smoke and have chronic clusters. I do not necessarily pace the room but I do not lay down. I use oxygen to abort the attacks so I sit in a recliner and kind of rock back and forth and squirm in the chair. most times I am exhausted after everything ends and I kind of relax a little if it is a day attack, at night I go back to sleep. If it feels like it is going to be a good one I down a 5hr energy drink as I am getting my O2 going. I hope you get this all sorted out and I am sure this site will help you with any questions you may have.