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Showing content with the highest reputation on 11/03/2019 in all areas

  1. ....personally, I'd crawl thru hell in a gasoline suit to get O2...saved my sanity, perhaps my life...and got me as close to a "regular" life as a clusterhead can get.....NOTHING to lose but pain.............
    2 points
  2. This is very unlikely. Most general-practice docs don't prescribe oxygen, for unjustifiable reasons that we don't have to go into here. Maybe he'll get lucky. Ask the doctor to look up CH abortive treatments in whatever app s/he uses -- oxygen is listed #1. As spiny said, medical O2 without insurance is very expensive, and some medical oxygen suppliers won't give it to you without insurance, even with a prescription. I know it's hard to appreciate how critical O2 is to his wellbeing and state of mind, but it can't be overstated. Many, many people with CH describe it without much exaggeration as a lifesaver. A welding O2-based system can be set up for under $200. I won't push on this any more, but needed to say this.
    1 point
  3. Hey Scott, I lived on Imitrex injections and verapamil for years. Routinely 2 to 4 inj. a day, as high as 6/day. During one particularly bad cycle I used over 100 in 5 weeks (that got the attention of my neuro). This was my only means to get thru work, and keep my sanity. I also knew I could not keep that regiment up. Since finding CB, my Trex use is minimal, maybe 1 to 6 times per cycle(desperate times require desperate measures), my cycles were about 16 weeks, now they are about 12 using O2, D3, and busting.
    1 point
  4. Hi Dlions and welcome. Just tiny bit to add. Often we have what we call 'shadows'. They can last all day. A low grade head pain compared to a real hit. I think this may be what you are describing. It makes your head sore and ache too. Things like bending over to pick something up tends to make them worse for me. They are quite common. So, if you look at it that way, you are getting hit 2-3 times per day. That would be very consistent with CH. The rest of the time you are suffering shadows - which hurt. A lot of us take some caffeine for that part as well as a true hit. You can do energy drinks or coffee. Tea is not strong enough. Taurine in the Energy Drinks is thought to aid the caffeine in ditching the pain. But some, who can't take Energy Drinks, use coffee to great benefit. I too strongly recommend the D3 Regimen. All good for you vitamins that fight inflammation. It has been a major game changer for me and many others too. If I go off of it for more than two days, I will begin to get hit. So, yes, I am convinced it works. For me and many others too. And no doctor needed to do it. You do need to get up to date blood work. But, you can begin while waiting for that appointment. ATB
    1 point
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