Leaderboard

I have chronic clusters and have taken 300mg of emgality since FDA approval for clusters. Prior to that I took the migraine dose: 120 mg... but they do "load" you with 240, the first month (240) was great, then subsequent months after (120mg) it didn't work... when I bumped up to 300mg it made my chronic clusters VERY manageable... unfortunately today I have a Neuro appt to tell my neuro that the emgality isn't working, that I am having terrible reactions to sumatriptan SQ and can need up to 4 3mg pens a day, and that I'm hopeless. Oxygen doesn't work, prednisone taper isn't doing anything, verapamil never touched me :/ Emgality DID help initially, so that alone might be worth it for anyone suffering from non-stop, debilitating clusters and is trying to maintain a career and life. Good luck!

I did have a pain free holiday^^hope you guys here too

I give thanks to my 4th PF week, been two years since I could say that.Maybe its the MM or just the way the beast operates. either way, I'm on cloud nine. I wish all with CH a PF holiday.

I did !!! I hope that you did too! I will be stealing the 'Gobble till you wobble'! Hahaha

Sorry to report that we have lost yet another clusterhead sister who opted for suicide as a solution to escape the pain!! Marie is from France and leaves behind two young children and her husband! We have lost soooo many to this hideous affliction in the past few months!! DD