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There is a lot of misinformation about cardiotoxicity and triptan. Most of it is exaggerated. Adverse cardiac effects are largely single case reports and advise caution when using. Individuals who have had documented cardiac damage largely had pre existing predisposition. Of course there are always exceptions but the very vast majority of folks can use triptan with relatively safety. The rationing of triptan comes from several different directions. First it is primarily a drug for migraine headache. Providers feel if you are needing to inject more than 4-6 a month you should be on a preventative med instead. There are a fair number of effective preventative meds for migraines. Cluster headaches aren’t migraines and because of the cyclic nature and intensity sq injection is the only route aborting the headache is effective. When you need it and choose to use it much should be available (hoard off cycle). Triptan also can cause horrific rebound headaches so judicious use is warranted. Triptan ma expend cycles making remission further down the path. You can get triptan in multi unit bottles and inject smaller doses 2-3 mg with an insulin or tb syringe. This gives you a lot of flexibility. Triptan likely interfere with busting so a drug holiday is required prior to bust. Oxygen should be your go to abort if possible, reserve triptan injections for fails. Experiment with D3 see if it works for you Triptans are a tool, not the devil but sometimes its hard to tell the difference sometimes imes and like all things self education leads to a rational treatment approach for you.

...hi Mezzo...welcome.... ....most find that 2-3 mg of suma is plenty to abort a hit so if you hack the stat dose you can double or triple the effectives doses and avoid the HAMMER that is 6 mg...not sure if available anymore but there used to be vials where you could draw up and inject with insulin needles the amt you need...ask your pharmacist if these can be obtained... ....at one time i obtained 18 doses/mo by way of a letter doc wrote to insurance company...called a "letter of medical necessity" ...the phrase "intractable cluster headaches" was advised by an insurance broker as 'magic words".....helpful to point out to doc that ins company is practicing w/o license and changing his/her script!!! ....same neuro once prescribed suma and zomig nasal spray (5 mg) at same time...she knew the games ins companies play and was not happy about i(ins co approved w/o question)....be warned tho...VERY IMPORTANT not to mix different triptans within 24 hr period... ...i found the zomig ns to be far less harsh than suma, few if any side effects, no rebounds, and longer lasting...only one way for you to find out if true for you... ...with OXYGEN caffeine and possibly D3 there were far fewer times i needed a triptan....so was only a last resort option...spiny is absolutely right....should be avoided if possible... best jonathan

It is hard on your body. It might cause bigger issues down the line. Many reasons to limit the drug. Triptans can do really bad things to your heart. So, too many, is too many. There are better ways to treat your head actually. Please type 'D3 ' into the search bar at the top of the page. A really great way to get relief without sacrificing your body. It is just vitamins and very safe. Good for you stuff. Triptans are not good for you. That is why they are limited. Read the 'New Users' Banner at the top of the page for other info. Welcome and we are here to help!! <3 Read, read, read and ask questions. We re here to help you navigate this disease.

Consider welding O2: https://clusterbusters.org/forums/topic/5627-notes-about-welding-o2/

Thought I'd provide an update - you all have really helped me with this cycle! I was really dreading it since I was no longer able to use the Imitrex, but with your help I've learned how to use oxygen effectively and can now get it at reasonable price and not worry about rationing it or running out. I got the large tank rigged up with Batch's Redneck Reservoir Bag and haven't needed to buy the 25L regulator for it. I also started the D3 Regimen about 12 days ago and it's helped to dramatically reduce frequency. Only getting about 1/day about 6:30am which is easily knocked out with the O2. It's so good to be able to sleep through the night. Hoping soon to be pain free. Thank you all for the help you give others.

I just posted myself that I'm so done. I'm 6 plus years and chronic only max 2 week break... ever. I come here...I realize I'm not alone!!! Although most people with us don't know just how bad it is....I remember what I am and how strong I am and hang on to that. I hope you feel better soon!!!

As a way to cope with this crazy disease, I thought it would help to imagine my Cluster Headaches as characters in a cartoon strip. I wonder how my imaginary "Cluster Boss" demon must feel when he's working on my cycle. Maybe he's as frustrated as I am! Just my perverse way to find some humor in this horrible disease.

Well done Double A. Great artwork! An art major working on is Masters at the Tyler School of Art and Architecture, Temple University, listened to my description of a cluster headache beast that chewed through my brain and eye socket, then sculpted the following as one of his art projects. It won an award so I took a photo of it. Take care and keep up the great art work. V/R, Batch .

Hey everyone! I just bought these at Trader Joe’s the other day and they really helped my shadows yesterday along with some ginger tea. I had coffee against my better judgement and had a very strong shadow for about 6-8 hours! This helped a lot kat