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In the total crap hole that was 2020, I didn't have ANY cluster episodes. On Thanksgiving, I felt some onset/shadow and aborted with a 5 hr energy. Then at 12:15am on January 1st, I was woken up (yes, because I was already in bed ) by a full ch attack and am now up to at least 12 for this year. I definitely slacked on my vitamin regimen sooo I've got that going again. Plus a dr appointment scheduled where I demand O2. I did the sphenocath SPG block procedure in the summer of 2019 and I think that is a lot of why I had a good run so I made a phone call about doing that again and am waiting to hear back. Looking up ordering rc seeds. Basically not resting on my laurels this time! Last night when it woke me up (the midnight trend has continued), I reallllllly didn't want to go through my whole thing so I took a 5hr energy, hoping that since I had already taken some melatonin it would balance out. It did not So today hasn't been a very fun day (Also had another attack wake me up from the 2 hrs of sleep I did get after that) Does anybody else have an acupressure mat? That provides me some relief as a new step in my ice pack-hot shower dance. Also alternate nostril breathing if my nose isn't too stuffy. Oh the upside of being up all night is that my cats cuddled me and I finished "The Way of Kings" by Brandon Sanderson. Anyway, hope you all are doing as well as possible and thanks for having me back!

Hey Drewbie, All, The basic regimen posted on vitaminDwiki is still valid for CH and MH. I was in the process of updating it with results from the online survey when the COVID-19 pandemic hit the US in early February. At that point I had two changes to supplements in the posted version. The first is we've found the Bio-Tech D3-50 50,000 IU water soluble form of vitamin D3 to be faster acting with a higher bioequivalence in elevating 25(OH)D3 serum concentrations than the same dose of the oil-based liquid softgel vitamin D3 formulations. I began suggesting this switch in 2019 here on this forum. The same goes for the switch from the vitamin B 50/100 complex to the Methyl Folate + B complex as it also has a higher bioequivalence. I began suggesting this switch from the vitamin B 50/100 complex to Methyl Folate + B Complex in December of 2019. Vitamin C (Ascorbic Acid) and Turmeric (Curcumin) are also covered in the 2017 posted version of this regimen on vitaminDwiki.com. I began posting about Quercetin some time in mid 2019 and if you attended the Clusterbusters Conference in Dallas in 2019, I briefed Quercetin as an addition to the basis regimen. I also posted about Quercetin as a supplement in an immune boosting strategy to help prevent viral infections in early June of 2020. The rational for the switch from Benadryl (Diphenhydramine HCL) to Quercetin was based on the capacity of Quercetin as an antihistamine. As Diphenhydramine is an anticholinergic that easily leads to drowsiness and Quercetin has an excellent safety profile, the switch to Quercetin for CHers suspecting an allergic reaction makes good sense. The emergence of the Wuhan virus and COVID-19 pandemic in early 2020 have posed additional considerations on the update to the posted version of this treatment protocol. For example, I've always known a healthy immune system played an important role in helping to prevent CH and MH. What I didn't fully grasp was the detrimental effects of a dysregulated immune system can be on CH. The results of several studies of COVID-19 and treatments practiced by emergency medicine physicians in the Front Line COVID-19 Critical Care Alliance (FLCCC) focused on a dysregulated immune system as the primary threat to survival from COVID-19. Their treatments include large doses of vitamin D3 (480,000 IU) on admission, Quercetin, zinc as well as IV vitamin C, and Thiamine (vitamin B1). See attached. I'm still working on the updated version of this treatment protocol. That said the updating process is not a simple task. Once I have a clean draft, it will go out to a select group of experts in nutritional science, nutritional medicine and headache specialists for chop and comments. That will take at least a month or longer depending on the comments and suggested changes. Until then, I'll keep you posted. Take care, V/R, Batch FLCCC_Alliance-MATHplus_Protocol_v6-2020-11-12-ENGLISH.pdf

Good day. Newbie from Australia 52 years old, suffering with CH going on 7 years. I have been referring to this site for over 3 years now and finally decided to join. I read time and time again that whatever works for you is great, find your happy place because CH are what they are, and we are all different PSILOCYBIN VS MDMA NOT SURE HOW MUCH INFORMATION I CAN DISCLOSE ABOUT MY OWN PERSONAL EXPERIENCE ON THIS FORUM REGARDING PSILOCYBIN AND MDMA? Tried everything my neurologist prescribed over 5 year period. Nothing worked. Until micro dosing mushrooms, and later MDMA. It wasn't easy to source either of the treatments. I migrated towards mushrooms firstly because of using Imigran sumatriptan nasal nasal spray to abort the CH, and then listening to a Harvard lecture on mushroom trials for CH. - Shroom vs MDMA The psilocybin micro dosing 0.05gr. worked mildly but took too long , 7-10 days , and I was still left with persistent ongoing heavy shadows after the period of micro dosing. No CH but terrible shadows that kick in at midday and last all day until codeine or ibuprofen or paracetamol or weed. Oxygen didn't work on the shadows. Started to get worried about the amount of paracetamol I was taking and effect on the kidneys and liver, also ibuprofen and effects on the stomach lining, and codeine because no good on heavy equipment or driving. Weed ok but not for work and a bit dopy after weeks on it. Then I upped the mushroom dose to full trip dose, essentially to send my hypothalamus into the next orbit ( understanding circadian rhythms and all that stuff). CH gone but only for a few weeks. DONT LIKE THE HEAVY HALLUCINATIONS EITHER So for me normal micro dosing of mushrooms which is relatively safe took away the CH, but left me with very nasty shadows that persisted for months. Then after further research and varying literature, I DECIDED TO TRY MDMA . in controlled environment. Full dose. approx 0.2 of a gram maybe a little more depending on prior use / experience (If concerned have someone with you). STAY HYDRATED - No hallucinations. Good because then I am in total control. Only something called shudder-vision and some heavy sweats for approx 3 hours YOU CAN FEEL THE HYPOTHALAMUS SHIFTING/ALTERING DURING THE TREATMENT/ TRIP WITHIN 48 HOURS THE HEAD IS CLEAR from one dose. Literally by the hour i could feel my head clearing CLUSTER AND SHADOW FREE FOR OVER 6 MONTHS. WOW !! Just gone through the Australian Summer Solstice 21/12/2020. Circadian rhythm being altered by the seasons, and I feel my shadow returning. Right side of head, I feel my eye being pulled from its socket more and more each day. The jaw pain /mandibular nerve and neck pain is returning with the eye /ocular nerve being dramatically effected as part of the onset of my next CH cycle/period. When I feel the shadow returning I know the CH is not far away. I know which treatment I will be going for. Again, each to their own FIND YOUR HAPPY PLACE STAY SAFE AND WELL AB

I'm curious how one defines "great success". A years worth of Emgality and D3 program but currently in a difficult cycle. I think about what success means to a cluster head. Personally I define it to be completely headache free. So when I get 18 month remission and then have 3-6 months of hell does that mean the busting\D3\CGRP\whatever bought you the remission or was the remission coincidental with the cycle itself? Sometimes when sucking O2 for the third time a night I wonder if all our solution seeking is just mental masturbation and the cycles will come by whatever path they choose and the busting just helps us cope. In the heat of a cycle it makes me wonder if anything really works or we are just kidding ourselves.