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Thank you for your help earlier. I followed your lead with the slight lift to exhale. That was my first time using oxygen. Not perfectly done I’m sure, but it worked for me.

The place I got them from is one of the ones recommend regularly here. I just wasn't sure I should mention they were willing to ship to UK in case that implicated then in some way. They are definitely untreated, viable seeds. Thanks for mentioning, though, @jon019.

...the "war on drugs" has made for some very odd laws...have seen countless times the illegality of certain items in certain countries...like frigging flower seeds. makes me ponder what the conversation is like in a horticultural club of a Thursday evening in York? are plum trees allowed...you know them pits got cyanide in 'em.... ...Drewbie...check and double check that those seeds have not been "treated"... to make 'em "safe", of course...

Hehehe.....I've been meaning to respond, but....you know.....ADHD Ok, SOOOOOOOO I'm feeling great! Since the last post, I had nightly nasty kip 6 to 8 attacks, even up until independence day. Then from Monday till today, I only had a kip 1, which I suspect was my fault because I ran a test and had a hot dog for dinner last night, and was later greeted by the mini-malice. But, also took a risk by only taking 400mg B1 that day(Im back to 500mg now). However, I slammed a redbull, melatonin, and some ginger capsules and went to sleep. Now, I really feel the B1, and mm busting (4 times now), are truly working and not just falling out of cycle (due to hotdog experiment); because for the first time ever, I have been super diligent in only consuming foods with no added or naturally occurring nitrates or nitrites, or mononitrates. Takes forever to grocery shop now, that's for sure.. And I just started up the D3 regimen again. Even with the stress of learning a new job of drawing blood all day as a lab phlebotomist, it has not awaken the beast. Although, I still tread lightly and remain hyperaware of keeping it tamed for as long as possible. WHEW.........That felt good to get out! How'z yall doing?

NOPE! .... i was 26 when it started for me (most start around that age)....retired senior now.....life, job, career. it was OXYGEN (mostly), energy drinks, D3, verapamil for a while, zomig nasal spray as abort of last resort....maybe even age and chemo got me through. Busting remains in the tool belt if need be... ...find the right tools (we'll help) and note that they may change, make a plan (scripts, meds, providers), and keep a good attitude (i always thought, screw it, aint gonna kill me, aint gonna quit).............. best jonsthan

Ok, sorry for the time gap, but as we all know, that when we have any PF time we take advantage of it. Yes I am a hot mess atm, but that's the life of a cluster head. lol So, before I get to what I've been up to, I will start by saying again, THANK YOU!.. Most of the time, it feels like no one can hear me (us) without misguided judgment. We are all fam here, even if we disappear for a spell or two. And CHFather, you are a guiding light of hope for so many here, I cant even imagine the amount of desperate souls you have given hope to. Kudos, my man. Ok, let's get down to brass tacks. Xboss, I feel for you brother, 100 days is a rough stretch. My first introduction to trex shots turned me into a chronic going from a lifetime of about a two month cycle to two years. Then I forced myself to back off of using them every time, tapered down to nothing and the cycle broke a week later. Now I use them sparingly, especially to avoid rebounds. Now, I had requested and old script of 02 with my new doctor, only to be told that he couldnt do it (stricter rules these days, I guess) and referred me to a neuro, who I was kinda rude to back in 2014 because I refused her suggestions of carbamazapine and some anti seizure meds, I guess I was expecting a better answer than the one I got. However, I will discuss nerve blocks, emgality, 02, and botox with her when i see her next week; aaaand possibly an apology I guess. Although, Im sure shes used to cranky CH patients, by now. lol. Ok, all of this is going on right as I am finally starting the career that I have been working towards for almost a decade, and I LITERALLY started my first day today, as a medical lab assistant here at our local hospital. Its my foot in the door, while I finish my radiography and imaging degree within the next year and a half. THIS lifelong torture demon we live with is my driving force to get into healthcare in the first place....and I finally made it! NOW, I DONT WANT TO RUIN IT BECAUSE OF MY DISEASE! Like many other jobs in the past. My manager really likes me and has the low-down on my condition, and I promised to manage it the best I can until the cycle is gone. I had restarted the D3 regimen minus a few ingredients, and It seems to raise my BP (Oh yeah, Ive become hypertensive in the last year) which then triggers one every time. So I backed off. I detoxed 5 and 5 for mm, and will again in a few days, BUT, I think I may have found something of interest. I stumbled upon some studies conducted on B1 (thiamin) deficiency and CHs, and head tremendous pain relieving results, with high doses tapered up to 750mg a day to break the cycle, and back it down to 600mg a day for maintenance. (with NO DETOX! I took 100 mg last night and 200 this morning (with food). Going for 300mg tomorrow, and have only had one little shadow. I will keep you all posted on my results. Thank you Vajenna, you are right, D3 really does work under the right conditions, because it has always done wonders for me in the past, until recently. But I plan to get back on a lighter regimen when this cycle is gone, along with properly spaced dosing of mm. Jon, I appreciate you! That, was a comforting response, and I thank you. And je3wook, OMG I felt this!!! Hang in there. I have weak points quite often in every cycle actually, but something else has always seemed to keep me going, even before I had kids. I wish you a painfree break soon no worries, we have some incredible and compassionate minds on the case. We will find a cure soon!! Love you ALL!!!