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Dorry i didn't shit myself away. I shut myself away lol

Not really got advice about coping with life outside home really kimbers as every CH sufferer is different and every CH sufferer handles it differently . With time he will learn to handle it i promise . Life goes on , ive just been going through a rogue cycle this last 3 mouths and had to take time of work plus had major anxiety which I've never experienced b4 .i shit myself away in my house for 3 weeks due to the amount of attacks i was having plus i hate having attacks in public as i feel like a freak . Just bear with him as i said he will learn to live with it . Your on the rite track with everything your doing for him so just stick with it

Really was a spelling mistake buddy , but glad it put a smile on your face

LOL that's the best one of the day. On the not-so-funny subject, when I'm talking about CH induced anxiety BTW, I tend to characterize one aspect of it at least as the 'ol PTSD-like terror / extreme dread of upcoming attacks.

1. I don't see this mentioned as I glance through the advice you've received (it is mentioned in the long file I linked you to, but you might not have reached it). It will benefit him greatly not to take a full shot of Imitrex (if it's a 6mg injector). This shows how to split those doses: https://clusterbusters.org/forums/topic/2446-extending-imitrex/ 2. I think it's fair to say that the only way for him to reduce the anxiety is to get the CH under control. And even then, there are lots of people who are very anxious during a cycle -- and even when they're not having headaches (particularly as the predicted time for a cycle to start is coming closer). They don't call CH "the Beast" for no reason: It's terrifying, ferocious, and unpredictable, and I don't think anyone ever forgets how hellish an attack can be, even when they have them more under control. First, a functional note: He should take the calcium part of the D3 regimen about 8 hours from when he takes the verapamil. Can you tell us what the verap prescription is -- dosage and whether it's extended release (ER) or immediate release? One thing that sometimes happens is that people with CH start some kind of treatment that they are told will help them, and then it doesn't help. That not only adds to the anxiety, it can also make them resistant to trying other things because they can't stand getting their hopes up and then being disappointed. I am generalizing here -- people are people -- but with his current anxiety and resistance, these might be issues. The verap is not going to help right away, and neither is the D3 (probably not going to help right away -- you never know). Usually verap is prescribed at a low dosage to make sure it doesn't have side effects, and the dosage is slowly increased. The D3 only takes full effect when there's enough of it in the system, though I think it has been shown that some benefits can happen pretty soon. So, a caution about anyone having unrealistic expectations about a quick fix. When the D3 regimen was first introduced, there was a whole lot of scoffing about it. But over time, it has shown itself to be very, very effective for a very large percentage of those who do it right. That's the basket I think you can safely put the eggs in -- if he sticks with it. If he has issues with it, or if he wants to reach out to someone, the popularizer of the D3 regimen, Batch (whose handle here is xxx), is amazingly generous with his time. Send him a PM and he will respond. He has helped a lot of people to do some tweaks that have shifted things for them.

Glad to hear he's on the D3, sorry to hear of the anxiety and the attacks.. If he ever decides to go the busting route, a welcome side effect of that can be lasting anxiety reduction for some of us. I'm still betting he's most likely to be episodic (which would mean no need to be hiding out forever), plus my hope is he can achieve some prevention of cycles altogether, very much lessening the requirement to be managing attacks and stuff.

Hey Tony, I'm 8 days post-op from balloon sinuplasty, turbinate reduction & deviated septum surgery. I would consistently have one side of my nose clog and impede getting normal full breath, mostly at night and it would occasionally shift to the other side. While I'm still recovering, I'm already experiencing improved breathing with much less effort. Full, satiated breaths from my nose that top off my lungs each time, it's really liberating.. makes me think I should have had this done long ago. I did not have this procedure to treat clusters, however..... I have not had any cluster activity since the procedure, zero. I'm chronic and experience shadows and spikes on a daily basis, but oddly nothing since. I'm cherishing this time as I approach my max # of days I can go without dosing ~21. I'm pretty certain the beast is simply regaining it's composure before resuming our "relationship" My pre-op answers to the survey would be: 1a 2b 3c

Take care Kat.

Some infected mushroom "Demons of pain" to brighten your day

@Freud yeah because even if it lessens the intensity a tiny bit, something is better than nothing. That’s how the regimen works for me. I still have headaches every single day, but they’re more like intense shadows rather than attacks

@Kimbers Very important to do all of the cofactors as they all work together and the K2 is needed to move the calcium from the large amount of D3 to prevent kidney stones.....I know it's a bunch of pills but it works great at controlling clusters.....is he doing the loading dose protocol? The guy that originated the regimen is a longtime member here and can help you adjust the regimen as needed for maximum efficacy! His screen name is xxx and you can message him directly with questions if need be. Next, tell us about hubby's O2 set up......it's often not prescribed as needed for it to be effective....should be administered at 15 lpm minimum via a non rebreather mask. Lastly, no way to know about episodic vs chronic at this stage of the game....we call it "dancin with the Beast"..lmao......chronic is defined now as having no more than 30 pf days in a years time. I know folks that were chronic from the git go and I know some that have gone from episodic to chronic AND vice versa!! The good news is the vast majority of the folks I know are episodic! DD

Personally I would assume he's episodic and for now anyway, forget the fears of possibly being chronic. You of course have so much else to think about, and the 9 week duration of his CH so far doesn't indicate chronic. I have used imitrex a lot in the past, in a pinch, when I couldn't get an abort with O2. There's not a tremendous amount of love for it around here for it, or any other drug really, for good reason (potential side effects, etc.). I much prefer to blow an entire cycle away via busting and have done just that repeatedly, but if a cycle spins out of control on me I'm not willing to just take a CH hit when I have imitrex on hand and it is the only thing that is going to abort it. It is probably unheard of for someone to have used the tremendously impactful, game changing Extending your imitrex tip for injections with their very first dose ever, but hey your husband could, if he ever needs to go there with the trex. I think most would advise that if he's going to be on Verapamil, better to get on it sooner than than later, but I'll leave that to those with more verapamil experience than i.