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Showing content with the highest reputation on 12/21/2021 in Posts

  1. A week back on the ket and already my CH is much better!!! Decreased frequency and intensity for some hits. Slept through the night last night...
    4 points
  2. ...no truer words!... .....made my living as a "professional observer". one of my heroes is Yogi Berra: "you can observe a lot by watching". nuance and complexity, a twinkle or a frown, are all lost with only pixels on a screen...
    3 points
  3. Cluster headaches are like belly buttons, they have been around forever Gordon2005_Article_HistoryOfClusterHeadache.pdf
    2 points
  4. My personal belief is cluster folks use tobaccos as a vasoconstrictor which is why the prevalence is so high. Sort of like "clusterheads use more energy drinks than the average person" Anything to narrow those vessels and mitigate the pain
    2 points
  5. That is awesome to read Freud. Sounds like the storm is settling and the sunshine can move in! I am very happy for you.
    2 points
  6. I'm sorry for somehow thinking it was spiny you were referring to -- there was no reason for me to think that. I think this topic has been fully done now, so I'll just add that Pebbles' -- a great, generous person, with vast knowledge -- probably wasn't dissing you, either. Many of us here have relationships, both on the board and in off-the-board messages, that go back a lot of years. I have had at least three substantial run-ins with prominent figures here, after each of which I thought, "I'm just gonna quit." For better or worse, I'm still here, and, definitely for better, they are, too. Dealing with electronic representations of actual humans is a tricky business.
    2 points
  7. Wow come on juss most of us on here support you buddy . I for 1 find your posts intriguing and interesting and have learnt so much from you buddy. If you don't agree with something posted on here my friend as spiny has said just skip on by buddy it's really not worth the hassle .
    2 points
  8. So glad for you buddy knew it would come good in the end even if it did take a bit if time to sort it
    1 point
  9. Slept through the night??!!. Dude, how the hell did that happen?! It's a Christmas ketamine miracle! WOW, not that decreased frequency and intensity for some hits compares in any way to being PF, but sounds like a significant improvement. What encouraging news on the theoretically darkest (shortest) day of the year, although it is in fact sunny here, and I bet it is there too in your newly adopted Sunshine State.
    1 point
  10. ...to me a backward question....rather than "does smoking cause/contibute to/have an effect on CH".....it seems more likely that having CH, or the genetics/predilection/predisposition to CH, leads to a higher incidence of smokers in that population. IOW: smoking doesn't cause CH > CH causes smoking. ...i have no supporting documentation, research or texts on the subject....just totally unscientific observations and reading over the years that clusterheads, as a group, tend to be more impulsive, OCD, with addictive personality traits (smoking, alcohol abuse, etc). possible contributing factors include dopamine, serotonin, hypothalamic or other neurological anomalies, pain, anxiety or ?. ....no offense intended, this is complete and total speculation on my part and may just be a repeat of old theory from an old guy...you may return to your regular programming now....
    1 point
  11. Here's a more detailed breakdown of the data from that same 2008 survey (which surveyed people from ClusterBusters and also clusterheadaches.com, I think). https://pubmed.ncbi.nlm.nih.gov/29536529/ You have to remember that the "exposed" category includes people whose parent(s) smoked even if they don't smoke, people who once smoked, and people who were smokers at the time of the survey. "Nonexposed" is people who haven't smoked and were not exposed to second-hand smoke. Because that "exposed" group is so broad, I don't think this tells you anything at all about the effects of being a current smoker on CH, and so it seems to me to have no action implications. You can't go back and stop your parents from smoking, and you can't never smoke if you have ever smoked. The first highlighted finding is: "Nonexposed cluster headache subjects are significantly more likely to develop cluster headache at ages 40 years and younger, while the exposed sufferers are significantly more likely to develop cluster headache at 40 years of age and older." Is this saying that smoking (or having been exposed to smoke) delays the onset of CH, and/or not smoking/not being exposed to smoke accelerates the onset? That would be pretty weird if it were true, but maybe somehow valuable to researchers. But I don't think they can be talking about causation; they can only be observing correlations, since you can't isolate being "exposed" or "nonexposed" from all the other variables that might account for any of the findings, just as "The exposed population is statistically significantly more likely to have a history of head trauma" seems only to be describing a relationship, not a causal connection.
    1 point
  12. https://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.1090.8231&rep=rep1&type=pdf
    1 point
  13. That news warms my holidays so much! Wow.
    1 point
  14. Juss, you are referring to a FB Group that is well known by many here. They are not 'us' and push/prefer Pharma for money reasons. You click, they make money. That group, is not any part of our group here and we were around for about a decade before they formed. And they will throw you out for mentioning MM. Please, take a step back, reread some of our responses to your posts and think about it. We, as a group, have tried to understand you, help you, and support you. For BPD, Dialectical Behavior Therapy has proven highly effective. It was developed for BPD. My child, with this disorder, has had only one meltdown in 8 months since she finished BPD Therapy. Normally, she would have had at minimum 10-12 meltdowns. Her IQ, is above 150. As I suspect yours is. Which makes the disorder even more difficult. I have seen it for decades now. It is horrid. My heart hurts for you. I wish you health and happiness. I wish you peace. I know that peace might be the most difficult thing to attain. For your posts on the board, please be kind and positive, or just scroll on by the post. spiny
    1 point
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