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Showing content with the highest reputation on 07/31/2022 in all areas

  1. Here's one add to the above posts. When you get COVID, they give you, drum roll - vitamin D in large doses! For good reason too. So, it makes sense to be loaded up on D during this time with that virus still floating around. This is demonstrated by Bosco's shorter downtime/milder case of COVID than what her husband had. I follow the initial D3 Regimen: https://vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708 It is simple and easy to get the vitamins and take them. A blood test is a good idea before you start, but not absolutely needed. You can order one for your D yourself. If it is below 80ng/ml, you will benefit from the D3. Chers appear to require the D to be in the 80 to 100 range to be pain free in many cases. You can add Melatonin (up to 25mg/night) or Benadryl at night to help with any nocturnal hits too. The upshot is that the regimen will lower the pain level and slow the ramp-up for you. For many, it ends a cycle and prevents another. Not all respond to it strongly enough to be pain free, but it appears that most CHers will benefit from taking the supplements by getting lower level hits and slowed down ramp-up. Those can be quite valuable by themselves.
    2 points
  2. I tell you what. I wish there was more data than this but my experience is unbelievably similar. I firmly believe that my ECH came back because of covid and have been milder than before based on my prevention tactics. Thanks for collecting the posts. There was so much info in there.
    2 points
  3. This report, besides being disturbing, is definitely intriguing and useful, including the neurologist's mention of the observed uptick, as attempts are made to parse what the bleep is up with COVID/CH correlation. Thanks for going on record with it @JY05, and here's hoping you can get to that point of complete relief ASAP!
    2 points
  4. These were the few threads that I was speaking about in my first response to this thread. I honestly do not think that it is just COVID that can cause an onset of CH, but more so any illness that depletes your system. Both my husband and I had COVID a while back and it did not trigger a cycle for me. I am uncertain if that is due to the fact that I had been on the D3 regimen for quite some time prior to contracting it so maybe my levels did not get depleted as badly and I got through it in about five days. My husband was another story. He is not good about taking supplements (unless I serve them to him) and no he is not a cluster head but he was down for nearly 2-weeks with terrible headaches, fever and body aches. All this is just my opinion and we all know what that counts for
    1 point
  5. Thank you! No headaches today! What a great birthday! And I used facebooks fundraising to raise $65 for cluster headaches research so far!
    1 point
  6. Searching the forums I found that a lot of people don't see a correlation between covid and clusters. The neurologist I saw recently said they've had a lot of patients come in after getting covid and complaining of severe migraine and cluster cycles. From my own experience, I also think covid caused my current cycle. I was clear for 5 years from what I believe was because of taking vit L. I got covid in Apr and since May have had the worst cycle to date. In previous cycles they would be clockwork and hit maybe once or twice a day. This time I had 3 weeks of attacks with up to 5-6 attacks a day. Since then I've felt shadow, ice pick, and general achiness in my head with no days of complete relief despite vit L doses every 5-7 days since May. It seems like everyones experience is different, but since covid does effect the brain via loss of taste and smell, I'm afraid it also my be triggering worse headache conditions for some people. Let me know how your cycle goes.
    0 points
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