Leaderboard

Hi all ... so an update ... first and foremost, thank you all for being here. I have not experienced a CH again. I have, for the most part, abstained from drinking. I am not taking proponoyl regularly (it was prescribed for anxiety not the headache). So that is great news. However, I do have a dull, very mild persistent headache behind my left eye - the CH was in my right eye. So I a found a headache specialist, but won't be able to see him for a few weeks. So I am still confused, but doing OK.

That sounds similar to what we call shadows. Very common for Clusterheads. Switching sides is known to occur also, but I don't recall hearing of another instance where it switched following the very first attack. That's a really good thing. Not everyone manages that, so good on you @NickMirk!

I have an appt with a neurologist specialized in headaches this week. I mention the proponoyl because it was significantly effecting my sleep patterns

What happened at the doctor's did he give you a diagnosis.? If not you really need 1. So get an appointment wit a headache specialist, because if it was a CH attack it won't be just a 1 off attack

Hi NIck!! I suspect that many of us can recall exactly when we were first hit. None of the stories are happy. First step is to find your triggers. Booze is #1. Strike that off everything. Period. Get scans done. You have that in motion. If you have CH? They will tell you that your scan was 'perfect' or 'clear'. You are eliminating other bad stuff that is treatable, not getting 'we see'. You have no reason to think about chronic or episodic currently. You may not have CH or you may be starting out at a low level episodic. Currently, get the tests done. avoid booze, then access your situation.