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Welcome to the club.. Let us know what you are currently doing to abort your attacks and preventive measures your taking to keep your clusters away. We have people all over the world here doing all types of different things so look around and ask questions.

Welcome, M'! This overview post might give you an idea of the kinds of things that are dicussed here, including "busting" (covered at the end of the document): https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ If you are not familiar with the Vitamin D regimen, be sure to look here: https://clusterbusters.org/forums/topic/1308-d3-regimen/. In general, it is recommended that you browse around the ClusterBuster Files section for topics of significance to you. Doctors have a valuable place in treatment, and if you have found a good one that's something to be thankful for. But there is a lot that patients know that most neurologists really don't know (it is shocking, for example, how many don't prescribe oxygen, and how many overprescribe triptans), so I think you'll find good answers to any questions you might have from the great people here.

Yes, that's long (which is fine), and I just scanned it and jumped at a few things. 1. You never want to be using that much Imitrex. It is virtually certain to make attacks worse and extend your cycle. Do this!!! https://clusterbusters.org/forums/topic/2446-extending-imitrex/ 2. You must get oxygen!! It is the lifesaver, eliminating or significantly reducing the need for triptans. Insist with your doctor and if that doesn't work, use welding oxygen (all discussed extensively in that file I linked you to above, and the file about welding O2 in the CB Files section). 3. Your verapamil dosage is still quite low. It has to be ramped up slowly to watch out for effects on the heart. But the vitamin D3 regimen is much, much better for you than verapamil. You should just start it now, and you won't need any verapamil next time. Also linked to in my message above. If you take the D3 regimen year-round, it will be good for you and also might even prevent cycles from starting. (Also -- and I hope this is moot the next time it matters, you want immediate release verap, not extended release. I don't know why but it just works better.) (Some people get into the 900s and even over 1000 in terms of verapamil mgs/day. Nobody likes the side effects of that.) 4. it would be nice if Emgality really worked for you. Results are decidedly mixed. 5. You might read up more on busting, if it's something you would consider doing. Yes, it is astonishing how few neuros bother to do even this. You got lucky in the short run, but dosing yourself with Trex is not a workable long-term strategy. Your doc probably avoided oxygen because he has no patients who use high-flow O2, and he probably doesn't even know how to write a prescription for it. You can help him with those things from ther info here. The standard prescription reads something like "Oxygen therapy for cluster headache: 15-20 minutes at 12-15 liters per minute with non-rebreather mask." There's plenty of research on the effects of triptan overuse. A 6mg injector makes overuse almost a given. There are injectors with lower mgs (Zembrance, for example, has 3 mg), but the clinical trials for CH were done with 6, and so prescribing anything else is "off label."

Hi glad you found us , but sorry you had to , let us all know what your neuro has prescribed you and ask questions we don't have all the answers but we can help great bunch of nutters on here with answers and support

Thank you very much for your response. I actually have some coming but I'm still waiting delivery. You're very kind thank you

I don't know the answer to your question, and will look forward to seeing whether someone does. You can buy a non-rebreather mask for under $10 -- here, for example: https://www.amazon.com/s?k=non+rebreather+oxygen+mask+adult&crid=6VTGX6NP9EKP&sprefix=nonrebre%2Caps%2C86&ref=nb_sb_ss_ts-doa-p_1_8 , or here: https://www.walmart.com/ip/1pk-Adult-Non-Rebreather-Oxygen-Mask-w-6-8Ft-Crush-Resistant-Tubing/2799117746?from=/search

...please do share how you got short term disability....is rare

Thank you gegibsonjr, this is very helpful information. Glad to hear the Methyl Folate + is still in production and will soon be available again on Amazon. Take care and Merry Christmas. V/R, Batch