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Showing content with the highest reputation on 02/20/2024 in all areas

  1. When my CH started it was only 20 minute attacks and just a couple few hits per week. It has progressed to more of a classic full blown CH since. With grandma being diagnosed it def smells like CH or combo migraine ch. I hope you can get it figured out! Great forum you are on. GL!
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  2. Alx, I don't know your situation or how much a scholarship might be able to cover, but I do suggest that if you are really interested in attending you apply for a travel scholarship as it's within a day's travel of where you are located. If travel isn't something you can manage, I understand as someone who can't do it myself. But I wanted to make sure you at least were aware that the application was available. Apply HERE. Take care!
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  3. Wish I could give you a good answer to the "why" part, and I suppose it's possible that your caffeine use was somehow keeping them at bay, but I don't think anyone knows the practical "whys" of how CH begins. I also don't know what to say about the pattern of your attacks, which is indeed unusual. As you say, your symptoms sound CHy, for sure, although 10-20 minutes is on the short side for attacks (but again, not completely unheard of). Are the 10-20-minute attacks situations where you've been having some pain and then it ramps up and then drops down again, or are they more self-contained experiences that start and stop in the 10-20-minute period? Have you tried anything for treating them (you mention sumatriptan that you have for the migraines, but you don't say whether it's in pill form or injectable)? Since you're new to all this, you might take a look at this "overview" file: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/
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  4. Thanks for the info, unfortunately I live in Holland and I do not have the means to come to Glasgow . i will look at the pictures and read the stories . Keep up the good work and thanks again!
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  5. Bosco, I get a huge 'cluster knot' where my noggin joins my neck on my CH side that is very painful. It cannot be massaged out either. If it pops up, hell is outside the door and coming in soon. Then I have to sleep on the side of the pillow - as in stand it up like a wall and put the edge carefully on that 'It don't hurt here!!' spot to sleep in the bed. Once the cycle is in full swing, I give up the bed for the Barca Lounger! Not to worry though, you are still 'special'!!!
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