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CHF beat me to a similar response that I meant to send yesterday....The one sided (lateral pain) and eye pressure fit the mold for the most part. The jaw and scalp pain do sound a bit different and remind me of something like Temporal arteritis or maybe Occipital neuralgia. With Temporal arteritis-(inflammation of the arteries in the head and neck) most experience symptoms like a severe headache on one side of the head, tenderness when touching the scalp, fatigue, jaw pain, and vision impairment. The above questions posed by CHF should be pondered and answered in an effort to narrow down the possible affliction (not that our opinions should be taken as a diagnosis). I completely second the recommendation of starting the D3 reg regardless! I really hope you get some definitive answers and find some relief soon!!!

I would say that parts of it sound like CH (pain in eye/jaw; very tight muscles) but many parts don't sound like CH to me (15 attacks/day, 8-hour attacks, pain brought on by "minor" activities such as turning head, opening mouth, brushing hair). To me, some of it sounds more like TN, and some of it sounds more like paroxysmal hemicrania or hemicrania continua. Do you have redness or swelling around your eyes? Do your eyes water when you have an attack? Does your nose run or get stuffy? Do you feel like it's almost impossible to stay still during an attack, like you have to keep pacing around or moving in some way? What medications have you tried? Oxygen? A triptan injection (such as Imitrex) or nasal spray? Steroids? Are you saying none of these consistently help? Have you been given Indomethacin to try? Gabapentin (Neurontin)? Lithium? You might consider the Vitamin D3 regimen, which has been shown to help multiple "headache" conditions: https://clusterbusters.org/forums/topic/1308-d3-regimen/

This sounds exactly like CH. Also - i do disability evals- reapply, almost everyone gets devied the first time- or use a SS attorney, they get paid after you win-