Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 07/17/2025 in all areas

  1. Ok thank you. Will check my levels. So far I'm just trying foods high in potassium etc. seems to working .
    2 points
  2. ...the first question i'd ask is: what funding? cancer research, among others, has already been cut. we have never experienced funding for CH anything besides minimal...now?
    2 points
  3. Prednisone can lower potassium, which may cause cramping, but taking high doses of potassium without checking levels first can be risky. It’s a good idea to ask your doctor for a blood test to check your electrolytes.
    1 point
  4. The eye droop and those intense shadows sound really tough to deal with. It’s good to know that pressing or slapping the area can sometimes make things worse something to avoid. Hope you’re able to get some rest and that those attacks ease up soon.
    1 point
  5. It sounds like you are getting the eye droop? I used to get those once in a while but not too much lately. Do you do stuff like press on your eye or slap you head? I really try to avoid those things. Many CH people have squished their eyes to heck. As for shadows, they def can vary and some are so strong that it's not far off from attack level pain! Hang in there warrior, I too had a huge set of attacks last night and I am trashed and full of shadows today.
    1 point
  6. You could try some ice packs for the swelling. The ice might help to numb the pain a bit as well. The PTSD/Anxiety is a beach! I struggle with it all the time even when I'm in the clear. The one thing that I have found that helps is exercise and staying busy. I know some can't exercise without worry of an attack while others will use it as an abort. Ever since I was able to get a break from a particularly looong attack by jumping on the treadmill, it's been something that I do when I have bad shadows. Sorry I've not got much to help on this one. I hope your head clears up soon!!!
    1 point
×
×
  • Create New...