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Showing content with the highest reputation on 05/08/2026 in all areas

  1. ....hi Daniel...glad you found us! sorry you have to be here...you communicate just fine... ...i have always had an aversion to sharp sounds, but it is quite transitory and non-CH related. however, during a hit i seek silence. not exactly "misofonia"... i've always considered it an inability to handle any more aural and sometimes visual input when fighting the beast.... ...re chronic. i was ECH for 23 yrs and feared...every day...going chronic. then it happened, turned out to be no better, or worse, than ECH...just a different version of CH that was still responsive to the same tools i had learned. my chronic was not daily HA but a non predictable hit sequence, no predictable cycle, BETTER abort efficacy with O2 (with a well earned breathing technique that saved my soul), D3, energy drink to improve O2 efficacy and sometimes effective on its own, less intensity of hits, different and/or reduced triggers. a whole 'nother version of a f'ckn nightmare, BUT not the horror i had feared. IF it happens, you already know how to treat...don't let the fear rule your life.... best jon
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  2. There's this, with Gammacore. The problem has been (and probably still is) that it is very expensive: Hemicrania Continua and Paroxysmal Hemicrania Treatment. I would PM Batch (his handle here is xxx) and ask him whether he has any experience with vitamin D3 and hemicranias. There are other alternatives. I'd google [new treatments for hemicrania] or something like that.
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