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Everything posted by 1961mom

  1. I hear that...wow, I would have been scared too! Kind of creepy that someone could reproduce the the pain of CH.... I might do a preventative date with a cup of tea! I hope the physical therapy works wonders for your scoliosis. Cindy
  2. As I understood Ari (speaker at conference & CEO of Entheogens) BOL would be just one of the many entheogen (from wiki, in the strict sense, is a psychoactive substance used in a religious, shamanic, or spiritual context) type treatments...others he mentioned were 1. Cannabinoid (?) treating Skleraderma 2. MDMA treatment for Lymphoma & Parkinson's Disease 3. Biologic Genetic Treatments 4. Addiction Breaking Treatments I think they understand the "limited" customer base per se with CH & BOL. I got the impression they want to keep it that way (at least until it's approved to go to market) then be able to do some gentle off-label marketing of their own. Could be a very smart move in speeding up the process. BOL becomes one of many entheogen treatments for a group of suffering folks who aren't considered a valuable investment for mainstream or big pharma. If you have "enough" groups who are suffering and can be helped by any number of entheogens you have a "niche"..... AND THEN YOU TAKE OVER THE WORLD, pinkie!!!!! ;D
  3. Congratulations! Enjoy the honeymoon....may it last a lifetime!
  4. Ting's in Norway. I'm suggestin' she buys the cheapest flight from Norway to the US....then get her ticket to Vegas! Plug for Oregon only because I live here! YES...move back home Kyle & Leeann
  5. In the area of OB, I'll trade Mick in for Jason any day! At last years conference whilst screaming "Go get more o2!!" to the man he crumbled sayin........"I don't want to bother anybody, are you sure your tank is empty?!!!" That's an OF! lol Thanks for being there for us Jason, see you in Vegas!! Cindy
  6. 1961mom


    So nice to meet you Jimmy! May be time for an area within the message boards to add members talents, skills and gifts! Cindy
  7. Thanks...I needed that! I'm thrilled in only one sense....Justaddwater, in the not too distant future all sufferers will have a well informed support/sufferer on the "inside" of the medical profession! Glad you're here! Cindy
  8. YES to this..... YES to that too, lol
  9. Oh I'm sure there will be deals for you Ting! Just super sure of it!!!! As a rule, once you're in the states, you can almost always find a $99 roundtrip ticket to Vegas. So come to Oregon first and we'll go to Vegas on a deal!!!!
  10. I still say we're missing the Indian, the Contractor, Cowboy and Biker guy YMCA! It's fun to stay at the YMCA!
  11. Hi Maxx, Welcome! In case your hubby does decide to go through his physician to get an oxygen prescription (which I hope he will, even if he does find welders tank for immediate relief) here's a few more examples of valuable published documents to take with him. JAMA Study on efficacy of o2 http://jama.ama-assn.org/content/302/22/2451.full.pdf+html Confirmation of the study as written in Neurology Today http://journals.lww.com/neurotodayonline/Fulltext/2010/01210/Major_Study_Confirms_Efficacy_of_Oxygen_Therapy.13.aspx Survey of sufferers using o2 to abort attacks http://www.ouchuk.org/html/news/Oxygen%20and%20Cluster%20Headache.pdf It's the craziest thing but it seems we (sufferers & supporters) battle's are phenomenally enormous and on many different fronts. All while dealing with suicidal pain!!! It continually blows my mind. Take care, you're a godsend to us! CindyÂ
  12. 1961mom


    Ditto Dan (except the Hey Baby) lol I'm going to repeat your story to every neurologist I meet from this day forward. "I met a woman [insert Giselle] at a conference [insert Clusterbusters] whose neurologist [insert Dr. Brian McGinney?] viewed our techniques [insert busting] as an opportunity to learn [insert open-mindedness] who then chose to get involved and make a difference [insert Rosa Parks]." Nice to meet you Giselle!
  13. Oh no...now I have to put a quarter in the jar! Must not say, "Awesomesauce", must not say "Awesomesauce"!!! Rinse and repeat!!! Just remember you were in a town known for it's pizza! Deep Dish Pizza at that...with gobs and gobs of oooey goooey melted cheese! LOL Next year when you come to Vegas it'll be $2.99 steak & eggs available 24/7!!!
  14. Hey Jimmy~ I'm so glad we were able to have lunch Sunday before you left...sucks that you got hit on the plane trip home. I use the entire mushroom. I'll chop them inside this little gadget I bought that I think is primarily sold to chop nuts or garlic. I love that little gadget! And then follow Miquel's decoction recipe. http://www.clusterbusters.com/faq.html Scroll down to Tea This whole page is wonderful. It covers concept of use, detoxing, dosing, medicine interactions and just a wealth of useful information. Don't try reading when dosing tho!!! LOL My experience has been very minimal paranoia when dosing. It's more like I'm in a heightened anticipation period if that makes sense to you. Normally I avoid hot water at all except when I'm dosing. I go out and sit in our hot tub for hours....a very happy feeling of warmth and safety overcomes me. I'm a raisin when I get out, but a very happy raisin!! I liked the Schisandra too! I'm looking forward to your "It Worked" post!!! Cindy
  15. Very true Ricardo and superbly written. Another wonderful advocate of this message is our own CHfather. I was lucky enough to acquire his book (donated for the auction as a fundraiser for our cause) at the Clusterbuster conference last weekend in Chicago. The book is titled; "SEE NEW NOW, New lenses for leadership and life". In the chapter titled "The Louis Armstrong Effect" he tells the reader of a Seattle based company called Intellectual Ventures who's sole purpose is to bring business folks together who would normally not meet. Fresh eyes! New perspectives that were crucial to innovation. In fact he shares a study of the top 50 game-changing innovations over a century revealed 80% were sparked by someone whose primary expertise was outside the field in which the innovation breakthrough took place (pg. 49) We have the prepared minds of being unlimited in our quest to end this pain within each and every one of us. This is exciting and life changing. I'm confident in the synergistic momentum CH sufferers have initiated. Generations to come will marvel at the history when they read of the true suffering once endured by patients of our generation and generations before us. I salute you all!!!
  16. 1. Are you: [highlight]A. Chronic[/highlight] B. Episodic 2. With the understanding that there are many factors affecting CH, do you feel that the D3 regimen: A. Did nothing or nearly nothing for you. B. Eliminated your headaches. [highlight]C. Helped with the severity of your headaches but didn’t eliminate them.[/highlight] [highlight]D. Helped with the frequency of your headaches but didn’t eliminate them.[/highlight] E. Seemed to help for a while but then stopped showing anything positive. If this is true for you, how long did this improvement last before stopping? 3. If you experienced positive results, how long were you on the D3 regimen before you experienced them? [highlight]I began the D2 (prescription is D2 & converts to D3) of 50,000 iu per week for 12 weeks August of 2010, then continued with OTC D3 and am still taking about 8,000 iu per day. I've had no nausea and feel it's helped longterm, reduce severity for sure![/highlight]
  17. But you can never leave! I couldn't resist that you couldn't resist, so I quipped the end. Enjoyed meeting you & your lovely bride!!!
  18. I'm coming! Just looked at the weather too....here's a link of the 10 day forecast (sunny, cloudy & rain last day of my stay) http://www.weather.com/weather/tenday/USIL0225 See you all soon!
  19. Beautiful Works of art....my melted choco-mushies are feeling all....well melted! LOL PS...I left the poor buggars in the car on the one day last month that summer decided to visit Oregon, sent a couple of boxes off to AO..he reports he needed a chisel to get a bite! Sad, but true!
  20. Kyle....small world. I'm in Eugene. Planning any visits back home?
  21. I love a good romantic thread! I've never had a "foot fetish" but there's still hope if fungus can be found, nibbled and enjoyed.... I'm secretively hoping Mick will tip-toe through a field of ergot! I can't wait to see you Lee Ann & Dan!
  22. This is sweet, sweet music to a fellow CHer. Many more days just like this one ahead!!
  23. Thanks (again) for sharing Shocked. I was completely amazed that the ingestion of psilocybin would reduce activity in the brain. I found something titled "Blue Brain" somewhere that I'm going to go back and research that one too now.
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