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Cassidy

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Everything posted by Cassidy

  1. T, No problem getting off track, we didn't derail. If a spike mat can provide some relaxtion maybe we can forget about oral meds. What do you mean that Celexa works a treat? I didn't understand. Are you busting yet and if so, do you stop the Celexa around dosing time? Yes, I think the spike mat would be worth a try. Sort of little for a threesome; however. Ting, There is no such thing as over doing for your daughter. Enjoy the magic. How am I doing? I'm just fine and dandy. Sleep deprivation is a trip of it's own. Sort of dreading the midnight hour. But like someone around here says, "it is , what it is." Been through this before. Usually sputs buy me a few hours sleep, but they aren't even helping. Soaking seeds now. Just wish I had that spike mat already. Leslie
  2. Yes, I am very interested in the Spike Mat, also. Sort of sounds like a diversion from head pain to whole body torture. Some people are into those things. It really does sound like it would feel good, afterwards. I am not going to even try the Lexapro. Been there, done that with those meds. I get tunnel vision and feel very stoned. I think driving while under the influence is worse than other drinks and/or drugs----for me. I'm on a day 3 without sleep. CH hit exactly 45 minutes after I lay down. Will be dosing today, after the furnace man comes. The wind chill is 9 degrees and my furnace died. New one on the way. Meanwhile I have to manually start it up. At least that is working. Otherwise I don't know where I'd be, in the peak of a CH cycle. So ya, I'm a little anxious. And the money part is a bit depressing. Suppose there is a pill for both conditions. Think the cat is smarter than me. Rolling in his cat nip and getting high. Tingeling, it was great being up at 3am here and there you were. Didn't feel alone. Sorry to hear you are in high cycle. When we get to this place, we tend to think dark thoughts. Can't do much but think about what was and what might be. You are smart to put it all in the box. I do the same. It's like scheduling a break down, open when strong. Leslie
  3. Thanks Bob, for posting that link. I really got sick on the Vit D mega dose. I blame the high anxiety on it also. As far as Valium goes the doctors don't want to prescribe it because it is addictive. I'll never understand. I use to take 5mg a night and the RX cost $7.00. The new antidepressants run around $100 to $150 a month. So maybe it's about money. "Kill Bill"---only got thru one of those movies. LOL Thinking we need a trip to Mexico. Thanks again for being there. Leslie It will all be better tomorrow.
  4. So here we go again. I'm a mess. In CH cycle, but have good control and expect it to fade away. Busting works well for me, except every now & then I have a tough time. I recently had a check up and blood work done. Was told my Vitamin D level was too low and was prescribed the mega dosage that is an RX that is being given to anyone over 50. Took that RX for 2 months and got sicker and sicker from a Vitamin that "has no side effects." Went back to the Dr. with my symptoms and he reran the blood work. Now the Vit. D level is acceptable. It's a frigging miracle! I was told my weird side effects were caused by anxiety. And that probably could be true. No doubt. So now I am supposed to start Lexapro. That is an SSRI. SSRIs interfere with busting. Plus I have been on many antidepressants over the years and never been able to tolerate them. The Dr. knows this and he knows what I use for clusters and he knows SSRIs could interfere. So the point of this story is, what do you take for anxiety and depression? Also today one of the headlines on AOL is about this wonderful Vit D 50,000 RX. I'd post the link but I can't figure out how to do that. Bottom line is Vit D deficiency has been over exaggerated and mega dose could do more harm than good. I post this because I wanted to share my Vit. D experience. And I would be open to any suggestions related to anxiety. And does anyone take Lexapro? This is about a yearly post for me. If I could find the last one, it would be about Wellbutrin. Dr. thinks I might be suicidal. I think I could be homicidal or what ever it is that makes you want to kill. Thanks for listening. I am ok. Could use a drink, but know better. LOL Leslie >
  5. Yes, I like Gardy. He's a good man. I enjoyed watching Washington also. Thought I heard some noise from Atlanta, nevermind, it was nobody. ;D
  6. Yes, start with RC seeds. Around 20 the first time. Important to know the difference between RC or HBWR. If you choose HBWR, start with 2 or 3. This has been posted many times before, but I don't think one more time will hurt. Leslie
  7. As a Twins fan, I would like to congratulate you & Josh. He is a very good choice. Meanwhile spring training, seems so far away. Leslie
  8. BobB, Let him be, I've been waiting for years for him to grow up. 8-)Leslie
  9. I have not really had that problem. But if you are fighting sinus problems and CH, maybe you need more moisture in the house. A vaporizer would help with dry air. Just a thought. Winter air is dry around here and that can cause a bloody nose. Leslie
  10. Hi Tingeling, Read your post today and felt like I was looking in the mirror. I am dealing with a strange cycle also. There is no pattern, which is unusual for CH. And the holidays. A edgy feeling is right. I'm planning my break down on Saturday. Planned break downs aren't so bad, because you can prepare for them. It is a tough time of year, memories and obligations and the mandatory time to be merry. If you are truly like a cat, you will do what is right for you. Cats don't answer to anyone, they just try to be sociable, but if they are uncomfortable, they leave the room. Leslie 8-)
  11. If I remember right, there was at least one person that treated his CH by taking .5 capsule for each and every headache. That would be similar to using a sput for each headache. My first attempts, the post dose hits were so bad. I used sputs until the post dose hits went away. Even now, like the last two nights I have used sputs for unexpected hits. I have seeds soaking now and will dose soon. If I haven't already said this, I was approaching one year of being "free." Also for those of you that feel you might outgrow these things some day, I just had a birthday, PLEASE NO SINGING!, and I could be the oldest one in the family and I don't think age is going to be the "cure". For what that is worth. Everything else goes to hell, but the CH is alive and well. I'm okay with it, because of busting. I manage it. ;)Leslie
  12. Tingeling, Not being familiar with your laws, I am feeling helpless in offering any advice. I guess, pick up the pieces and start over. Do you have someone to represent your case? Lawyer, Doctor or social service worker? I'm sorry to hear your news. Not what I expect, when I read your posts. Sometimes we get so wrapped up in the cluster thing, it is hard to imagine any other problem. Behind each member there is a story. Very sorry you are having to go through this. Stay tough. Leslie
  13. Tingeling & This isn't fair, Have you tried a warm saline rinse for the nose? Or there is a saline/aloe gel for the nose. Maybe a antihistamine could help also. Benadryl? Also heat packs or steam can help. Kaboom, I am very familiar with the one red ear thing. I can't get any explanation or help. It just happens. It's like blushing, but only with one ear. Only on the cluster side. It's embarrassing but apparently harmless. It is also a good warning to me, that trouble is on the way. Both conditions come with CH for me. Leslie
  14. I agree with MJ also, in regards to Melatonin. I would not add anything as long as there is sucess or progress with what one is doing. My understanding on Melatonin is that it helps some with sleep or getting over that bump into deep sleep without getting a CH. I think the rule to follow is, if you are using Melatonin, you should detox from it two days before dosing and two days after dosing. It is suspected to interfere with dosing. As far as what to do next with a bad cycle, I believe if you are not getting proper results then it is time to take a break. Sometimes everything just levels out all by it's self. I dose 3 times with 7 days in between. If that doesn't work, I stop and ride it out. By that I mean, no meds. 02 if you have it. Ice. Energy drinks. Decent diet. Steady schedule. Water. This may sound impossible, but I was pleasantly surprised by the results. Also it might be a good idea to read Flash's post about keeping a healthy diet and schedule. He knows more than most of us will ever forget. Leslie
  15. Hey there Johnny, Loved the video. Always have liked Dire Straits, but never bumped into this song. My collar is about as blue as blue can be. Or it was until I hung it up. Percentage wise I would guess over indulging in cigarettes and coffee is an industrial disease. Goes with the territory. When I lost my livelihood working for Eastern Airlines and Braniff I went job hunting. I only tried for jobs where I could smoke. I ended up having to take a white collar job for awhile. That was about when my clusters went full force. Maybe we are on to something. White collars cause clusters. LOL Unfortunately I'm afraid that theory won't hold water. An addict is an addict no matter what color the collar. Don't know what is worse, thinking about quitting or quitting. But if the same meds. we use for clusters could stop the craving I'd sure like to be a guinea pig. Leslie
  16. Bob, Or anyone, how does one get chosen to be in a study? My main interest is tobacco addiction. These days I feel comfortable with my cluster treatment. I think I have learned to live with trauma. Neither one of those curses are likely to do the harm that my smoking is doing. Just wondering. Baseball games are over for the day, so letting my mind wander. Guess, I'm looking for a magic cure. For those that think the smoking won't catch up with you and your grandfather smoked for 70 years and lived to be 100, remember grandpa smoked tobacco, not the same as what we are smoking today. Well, time for coffee and a smoke.      Leslie
  17. That's impossible Bobb, No one could be around Xeno TOO long. I vote for Chicago, it's in the center of the country and close for me. Leslie
  18. I was under the impression, that next year the conference would be in Chicago again. Have either of you two smart guys, heard that? Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Â Leslie :
  19. I would like to make it clear that a tiny piece of fungi under the tongue, is just that. A tiny piece. It is not a dose. It is a sput. A small dose would interfere with busting. Leslie
  20. Hi Dave O, Is Cassidy one of your twin's name? The song is one of my favorites from The Grateful Dead. Of course that list is long. Pretty hard to pick a favorite, but that one has a special meaning to me. Sounds like you are right on track with your busting plans. Good preparation! Have you tried Red Bull for aborting those hits. If I get one slammed down asap, it works well for me. Can I ask what is Babutrial? "Let the words be yours,I'm done with mine." Leslie
  21. I have used sputs to abort a hit. I mainly have used them on bad post dose hits. Actually what I use is a small dried cap from my medicine. It was the only way I could get any sleep or break from the post dose hits when I started busting. I usually put the sput under my tongue for 20 minutes or so. It worked for me. If the one sput didn't work, I would quit there, for fear of interfering with busting. I know I am repeating myself, but I always carry about 4 with me at all times. I haven't had to use any for quite awhile now. I suppose you could over do and cause a problem, but that has not happened to me. Hope this helps. Leslie
  22. Hello Crosstraining, I have used Topamax. I used it for aprox. 2 months, about 6 years ago. By the time I was on my second refill, I had trouble remembering my name. And I didn't care that I was flushing another $150 prescription down the toilet. Maybe with time I could have adjusted to it, but I didn't choose to waste anymore time or money on that drug. It is a drug that you need to taper off of. If someone is considering the busting method, I would not start Topamax. BTW, that was the last prescribed drug that I took for clusters. It was the final straw for me. Just my experience. Best of luck with what ever you choose to do. Sorry you are in pain. Leslie
  23. Sometimes you have to have a make-believe friend.
  24. Gaius, Yes, you are right, about HIPPA. I feel comfortable talking to my doctor about the few cups of tea that I use to abort my headaches. He does not take notes or write down any details. I am not concerned about my records. I, of course, am not growing anything and I don't know where my friend gets the meds. for me. You know? If the authorities are concerned about what herbs I have used for my ailments, then they have too much time on their hands. I don't think they care about me, unless I slam down a six pack and get behind the wheel of my car. Being a sufferer of cluster headaches, it's not likely I will be doing that. I hope I am right about this. Leslie
  25. Yes Bob, I want to say thank you, also. Leslie
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