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ClusterBusters

urs Brasil

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Everything posted by urs Brasil

  1. urs Brasil

    Looking for help

    bearcat2011, welcome to the club Like CHFather already said, first you/we have to check your basic fight with the beast in order to give some release to your pain. Following CHFathers tips & suggestions should kick you out of the most severe situations. Important also do you have any help from a Neuro or other medical staff? If so what did they do for you? One important point I always recommend is: Read and read again as much as you can from this side as you will get valuable information not jet know to you. As you already are on the D3 regime you may already have done a lot of reading... Never the less we see people coming in and missing some of the first and eventually important stuff like Verapamil&O2 usage and dosing like CHFather already mentioned. Further more you may already have seen a lot of Information on Supporters like your helping wife. So you should explain your basics more in detail AND read as much you can from this valuable site. Most likely you will find some more relief and even pain free time doing so.
  2. bye bye snake oil bullshit. I'm so happy seeing this unit failing badly and people realizing it fully.
  3. urs Brasil

    The Jesus Shot

    Well this so called Jesus Shot seems to be a sharp knife for some really desparate cases even not necessarly for cluster heads. I guess just from reading here not aplicable for 08/15 cluster heads.
  4. urs Brasil

    Dr Elliot Shevel

    Dude, if you are so dam successful,what are you foling around here?
  5. urs Brasil

    Bad Doctor?

    I've seen so many doctors... 20% good ones and just forget the rest. It is frustrating but fact for general doctors.
  6. urs Brasil

    Serotonin syndrome

    jaja, I have some experience with amitriptyline and naramig resulting in SS. SS wasn't funny at all I couldn't use my arms, muscles just dead. Or waking up in the morning in the middle of the living floor (I didn't made it to the bed the night before but there is no memory of what happen...) having gone to a doctor about this, this Ass told me YOU ARE NOT SICK you know? Do you know most people coming into my office really do not need any kind of meds... Stoping the one or the other med did immediately (one day or so) stop the SS syndrome but yes, this condition gave me fear. Seriously watch out and carefully check every new med taking.
  7. urs Brasil

    Help! Travelling with Clusters

    I can confirm the tendency of latin countries having a lot more meds available OTC then the so called 'first world countries'. I guess because of lack of doctors in remote areas, it would/is more important to get certain medicaments which normally are unter strict control of a doctor in order to prevent disasters in the first moment until people can get a grip on a doctor which sometimes can be a big hassle or even serious problem. As an example in brazil I can buy Naratriptan (Naramig) and Sumatriptan where the first is cheap(around 2usd per pill) the Sumatriptan(85mg&500mgNaproxen anti-inflammatory) 2 pills at around 12usd. Sumax-Nasal/Sumatriptan for 2 shots at max 15usd. Also as CHfather mentioned people find that their attacks are less bad when traveling sound OK to me even not having had the same results I really can unterstand this as an effect changing environment drastically. What I'm asking myself is if this effect least for a time or just for a short period. One thing I like to mention is the hyperventilating technique using a simple paper bag. You may have a closer eye on this one as it could be used in... yes during flight.
  8. urs Brasil

    SAM-e for treating CH?

    Rsrsrs, the reaction of your friends are just normal. And yes finally nice you having people around who do care about you even the can't really get to the bottom of reality as they are not the one suffering hence unable to feel the true bone of CH
  9. Sevral neurostimulator are on the market. In first place for migraene. Gammacore claims to lower CH frequency by 50% or so and should even be able to abort an attack. Gammacore original from europe 2011/12 turned out to be just USLESS for us. All positive threads do end after just 2-3 entries. People saying the unit may be successfull for the very first days just do turn rapid a usless junk! In all forums I've checked so far one can't find not one CH using this unit on a continuing base. Often called bullshit be whom tested... None of those units do any good to us. imagen gammacore beeing on your the market approx. 15 years and this site did not report anything about this unit. Or is it somebody beliving european CH are hidding a successfull treatment. Another unit called visto, same shit to us. A huge dam fu.. scam. Be aware before flushing a couple of 100 usd/month down the hill. What makes me especially sad is the fact people trying get profit ou off our pain. Yes I do call them assholes. If needed I'll confirm the assh... written! Thete are enough challenges in live. I do not need such people never ever Urs
  10. KenH It seems you are european too and asking yourselfe why their health system can't deal apropriately with cluster. In my experience there is a huge mental difference between europeans and americans. Where europeans are not much willing thinking and acting out of the main stream which defenately is essential in order to figth the beast. Americans seem to be quite different in mentality by really testing, challeging and questioning facts on the table. So lets say much more independent where the others just follow the herd without questiong much why. Just belifing in godfather in white (an old european, bad, habit...) 4 his type of inovation/behavior you must have an eye towards the states... Urs
  11. I was born on a dam fucking crazy planet!
  12. I'm sorry for my outburst and I did not want to offend anybody padre. I was telling it in a general manner out to the people out there. The whole setup of cammacore is just done to work nicely. Developed for migraine ... Guess what it really is? It can't be sophisticated at all or it would need restricted permission to be sold, bought or used. The gammacore does not have any government based certificate this unit being useful to do whatever it claims to be able to do. The onliest thing one can be sure of is the fact this unit won't harm you when used as described in the manual. ;)
  13. Well... Short cirquit 3 AAA batteries, hold it a sec to your neck and you are done! Wy the hell nobody realizeses this huge scam, damm... WACKE UP GUYS, DON'T BE SO DAM STUPID!!!
  14. urs Brasil

    THC-CBD and Cluster

    I guess also because of the concentrates we see this coming up
  15. urs Brasil

    THC-CBD and Cluster

    Sorry I was not exact enough. This is one of the articles: Rise of the bizarre 'cannabis vomiting syndrome': Heavy users suffer from severe nausea and pain that can only be relieved by bathing in hot water several times a day Read more: http://www.dailymail.co.uk/health/article-3216967/Rise-bizarre-cannabis-vomiting-syndrome-Heavy-users-suffer-severe-nausea-pain-relieved-bathing-hot-water-times-day.html#ixzz4nKjiP41a
  16. Padre if you have success abording an attack by massaging the vagnus nerve at the neck I guess the gammacore may be of use if not, I would wait for others confirming so you dońt loose the money!
  17. urs Brasil

    THC-CBD and Cluster

    Exactly like this... some studies have been done on this. Also quite new to me. Just thinking it is important to be aware of it.
  18. urs Brasil

    THC-CBD and Cluster

    I agree but be aware of long time issues smoking permanently eq. Every day. search for: marihuana stomach
  19. urs Brasil

    Cruise Advice

    Oh my god, que deus me ajuda! thanks this was so beautiful and of course halibut not sole... I even prefere as the meets consistence is diffrent
  20. urs Brasil

    Cruise Advice

    Oh, very unfair these fotos. The salmon seems justright for a tasty sushi as apetizer and the some sole as main course a la müllerin, eventually with some salty potatoes. Beam me up please...
  21. urs Brasil

    Nasal sumatriptan question

    Yes
  22. urs Brasil

    Nasal sumatriptan question

    Just wondering how long you guys are able to do this!
  23. urs Brasil

    Nasal sumatriptan question

    Hi eraserhead To me the nasal version of sumatriptan causes seriouse slapbacks too. But I can't compare to the injections but most likely it is the same. No clue on euphoria. But wondering how bad your CH may be you not taking meds?
  24. I just know, the device at usd 500 will be good for 300 aplications or so. After this limit one must buy a new unit at guess how much? yes again 500! I just hope I got it right... (if not, sorry )
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