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urs Brasil

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Everything posted by urs Brasil

  1. Just the presence of a supporter does help a lot! To me, small things a support could do are so much appreciated, valuable. Grrl77 you could help by knowing the techniques used by your partner/this site as there are plenty and procedures well documented and quite extensive. Just to be sure no important information gets lost. Busting for example has a very specific procedure where timing is essential. Sometimes it is hard for a cluster head to follow the instructions point after point (slapback headache, ch becoming even more severe but less frequent may force somebody to resist...) To me nothing is more sad than sitting on a chair in the shower using hot/cold water fighting the beast, knowing nobody but really nobody is there, just me alone... Just the presence is important. I know and my ex wife knows she can't help on the pain so I never ever did but weight on here shoulder. But a warm hug, cup of tea, whatever after an attack is so much appreciated and can't be paid with money. But please, as supporter do not make the mistake going into suffering yourself! I know this is difficult but important, very important supporters controlling the impact to themselves as hard as possible.
  2. Mr. Shevel never ever will stop shitting. His business model is just to much successful... He just needs a few patients every year in order to make a nice income. Logic tells he is able to get them when trying hard enough. The onliest we could do is kick him out off this site/ignoring him, giving feedback on his writings thus warning all others... If Mr. Shevel claims he being able giving cure to us, so it must be fact he knowing the root cause of our suffering, but he doesn't. 20'000 und per patient for operating WHAT? There is no justification charging such a ridiculous amount. Last year I had 3 major surgeries (all emergency) in at top hospital and did not even spend half of that money... This Mr. Shevel is well known also within other CH sites/portals having the same results/success as he is presenting here. Exactly the same bullshit results... Probably we should apply this very special surgery on Mr. Shevel himself just in order to provide protection for possible future attacks And now, better stop spending valuable time on this one... ****************************************************************************************************************************************************************************** ...and bevor I even think about trying his method, I may try the latest technique a newbie mentioned just TODAY: Masturbating during an attack newbie claims helping him abording CH. Having up to 9 attacks per day this youngster must be very potent Should I spend my money on Viagra instead on Sumatriptan nasal? Naturally I'm not able at any means creating more than 3 sessions per day ******************************************************************************************************************************************************************************* Success rate from this site and techniques used is high. I don't have figures but guessing far more than 50% of us achieve being pain free. The rest does get huge relief. The minor part (I guess, I do not have correct numbers) say about 10% may live with status quo but I'm not sure probably even less. Eventually a sticky message with a warning about Mr. Shevel does the job at least for this site. Talking even more about this guy is at the end of the day exactly what Mr. Shevel is locking for in order to get the one cluster head out of a thousand! ******************************************************************************************************************************************************************************* Shouldn't we lock Mr. Shevel in a prison cell, giving him cluster and a multi pack of Viagra? Worthwhile a try isn't it? (yes, I feel sad having to write like this but being nice on this one would be insane)
  3. Interesting story -LSD dangerous? How and when? Drinking an excess of milk may become dangerous to... -Recomending reading deep into this site in order to learn how we handle, abort and prevent attacks...
  4. the side effects to me: lost of sense of taste at an impressive level. Lost of appetite and sense of permanent vomiting. Cymbalta did really nock out the attacks within a short time of period. I do not remember exactly time spend until the med start working but it mast haven been just a couple of days in order to work for me. It is an anti-depressant but as most of them do not work for me so there is just another reason for not taking the Cymbalta way. As always, this side effects are known amongst 5'000 others , but everybody in his particular state in time has different reactions.
  5. CHfather, I'm off topic on this one but did you think about Cymbalta/Duloxetin? Did not find this term using the search function but I'm sure it is known to this portal. I've got some side effects so I stoped. Not having major problems using 1gr verapamil per day I left Cymbalta behind. Do you know this med? For me it worked well.
  6. THC concentrates? Normal marijuana is a bad trigger to cluster heads. So it may be difficult receiving adequate information here.
  7. kkk, it is so nice, pure joy seeing somebody like you butchch, and yes, life is great. enjoy again!
  8. uh, you just misunderstood the demand valve... my 2cents as an ex scubadiver btw, who has ch, you or your friends?
  9. yes but positive ones! The one probably a lot of D3 users can confirm within the first few days being on D3 regime is a positive change in sleep pattern. I personally consider the change in your ch/headache as a positive signal. Please verify your O2 setup. Do you really get the amount of O2 discussed in here? D3 or MM? My recommendation is doing both at the same time.
  10. ok. could you describe the stomach pain a little more detailed?
  11. Hi Buckhunter812, x-rays in order to rule out sinuses and others are for sure ok but not for detecting cluster. I was told by a neurologist giving me the diagnosis cluster that I may do an CT-Scan or anything else on my head in order to calm me down but it never would show any signs of alternation pointing to cluster. Also as far as I know the content of this forum&comments it seems to me a hard fact. The reason me responding, along the very god comments you've already in this thread, I would like to point harder to the "D3 Regime" and "Melatonin" as both can be started immediately and both do have proofen benefits. And last put not least, like chfather said OXYGEN is a "must have", so no way around this one! A reason is of my personal interest: Why do you mention you was sick in your stomach and do you connect this pain to cluster?
  12. there is a device available on the market sending out electric pluses to the area one is pointing it (neck or head) in order to stimulate/block certain nerves involved in migraine & ch. German based forums where I've seen people speaking positive about this unit... well, I was not attracted by the device as it claims to help 4 migraine and ch in a extremely unpleasant way. I did not analyze the unit by myself but I'm aware it is a terrible rip-off. The producer makes a funny-ugly statement about what and how the unit works. Most irritating: after just a couple of hundert shoots one has to reload/buy a new one. What is it really? Basically a battery a kind off mini counter, counting the shoots user applies, sending every time upon users click a small amount of electricity to your scalp/neck/head. To me one of the most brutal/cruel ripp off ever seen. Working? Yes and no. I could use it in certain stages during my attacks as my cluster does hit me in 2 phases. Phase 1, pain sneaking slowly but steady from right side of the neck just beside the throat trying to hit the temple at the right side of the head. Phase 2, once pain hit the temple I know I've lost the game and the beast will hit the fan badly starting eating my right eye, feeling the glowing steel from behind... However I can, when in pf phase suddenly receiving an attack (they are normaly far less painful, sometimes even easy to handle) stop them in phase 1 by pressing gently nerves/chanels at the right side of the throat and aprox. 2 cm above. Breathing technic at this moment too can make big difference on top. So yes, I can imagine such technics could help a few. But have a look into the way the beast is kicking me in my ass which may differ from yours... But NO. Being in a real cluster-phase, ch is coming so fast, so fast phase 1 even would be noticeable and fiddling with my finger at my throat will not make any difference. And again I won't support companies ripping off people suffering, even stating they would have some magic in their expensive ¨bullsh.." device. And of course there a tons of Trolls in the german ch forums having seen this unit. They shall go to hell too... my 2 cents on nerve blocking/stimulating DEVICES, *** and finally I may have got it: GammaCore Device just found on this portal in one of chf's thread the name of the device and reporting success as abortive even may work as preventive device. Origin Europe, must be available in USA by now. Yes, this seems becoming quite normal to me in these days: I know I'm right but wrong for sure. In the first approach I always guess I'm right in order to realize thereafter that I'm not right but wrong. So I remember it, correct my head and going on. In this case still being very unsure but understanding I would need to go deeper into the subject (uh, reloading CammaCore Devices) But yes, wondering why this unit/device does not have any space on this portal? Not being available in USA maybe?
  13. Hi, no way cocain does any good to your son... I recommend digging deep into this forum and reading carefully the main threads. if your son is not handicapt by other means, probably better he starts by himselfe getting up to date reading in this portal. hmf
  14. Hi, sorry for you hearing such a bad story... where the hell is your OXYGEN? Probably the main abortive and very efective tool for many of us. You may also go into imitrex instead of sumatriptan. As cold water is giving some relife to you, Ergotamin may be the better choise. Check it out. also I guess you do not take enough verapamil, people are used to take up to 1gr. per day which may be considered insane by your doc... I'm pretty shure you'll get a lot of feedback and support from this portal and a great volume of relief, as most of us do so. Give it a Try
  15. O2 being quite cheap and accessible never ever I was thinking I not being able getting another bottle so wasting never was an issue and won't in the future.
  16. I'm very interested to join as I realize it will be late in this year and I possibly would be around... My question is, is there a closing date for registration? thanks
  17. hm, no you never ever will pass out upon ch pain alone. even not at K12 or so... Just because of pain, never ever somebody passed out, there is no scientific evidence as far as I know. There must be a drop in blood pressure too in order to do so. Or even another extreme exotic condition wich would be probably out of a worthwhile discussion as it may affect a minor minority. And if one passes out by accident upon ch pain. Be assured it will be for seconds not even minutes. As stated one must be very lucky even passing out. Not feeling pain and even only low blood los after being hit to near death is well know. I'm not qualified giving a final statement on this Mather as this is not my working area. Just my intrepretation of what I can read so far. My pain level if in cycle varies very much. There may be weeks ch reaching up to Kxx in order to change rapidly do Kyy. In last cycle the beast gave me an extreme warning: "Hey urs! I'm able to come back at a far more severe level, you ever could imagine, if I want to..." Yes, no doubt about it about the value of this site. To me it was a live saver. My cluster even went abdominal. The most wired bullshit ever had. doc could not understand what is going on with me. Some of them severly abusing me, even blaming me just looking to get doped by morphine. I really should go back to minas gerais in brazil and sack these dam assholes badly... (I don't do because I'm not will to pay for the consequences ...) (there is not a lot information available about this abdominal pain. It is known small kits having this without any reasonable findings. American based researchers did come up that there may be a faulty production of Seratonin and something else, just forgot the name, causing abdominal pain where it should create severe headache instead... This abdominal, severe pain did always least for exactly 8 hours. After this 8 hours pain vanished within seconds maximum minutes. Only useful pain med was/is morphium. After having read some information exactly from the stated researcher guess what my solution is in order to fight this type of attacks/pain? NARATIPTAN, triptans. Confirming the results of the mentioned researchers/doctors that liquids meant to cause headache went bad and gone abdominal creating severe pain. Hopefully not having overdone out of topic text wishing everybody a nice weekend. cheers, tonight I'll have some 2 or 3 longnecks of artisanal beer, which I may dring like Likör or wine because they are so rich and nice.And no I even do not touch anymore the well known brands, colored water with some alcohol in it, uhhh.... : )
  18. clusterb, Better I thank you for rising good questions as I only drop my findings upon your questions. THC as sleeping aid Caution! Too much THC will give you the exact reverse effect: difficulties sleeping... Wears too much means getting THC into the system on a daily base. If I would use weed as sleeping aid I would use it max. 3 times in a row, meaning 3 days. After a pause of at least 2 days, better more. CBD ingested I read about positiv results coming out of using CBD but unfortunately not with our beast. I ingested huge amounts. 30 to 45 drops per day of the most potent I could buy on the market. To me it caused severe excess of gastric liquid in the stomach eventually being responsible for a major disaster... Using CBD I recommend watching closely acid level. For myself there is far not enough data available in order to prove any benefit that may come out of using CBD/CBA/THC and so fort. As I'm a long time weed user (>30 years permanent pot smoking (others have a beer after work or two. I had my joints...)) if anything within this beautiful plant would have a potential curing or preventing ch, I never ever should have got ch. 90% of the time I had access to 1th quality hash/pot. Also I'm not a fan of the so called 'Rick Simpsons Hemp Oil' alleged being able curing cancer. I just do not believe in it as there are far away any meaningful results one may relate on. But who knows. Eventually at a certain point of time researchers are able to come up with reliable results. Never the less, our DNA differs. Person A may get positive results out of something wears person B does not get any. I would say it is very save testing the whole family CBD/THC and so fort but one may not expect huge results. The only thing I've got out of CBD is a slight up, not even worth as antidepressant, thats it.
  19. cannabiods and or CBD I do have some experiences using CBD and no, it did not make any difference do my shadows or even attacks (very rare in these days, I'm doing quite well) but only a slight better mud. Pot/Marihuna dispensary quality Nice tigger 4 sure but depending on the volume smoked. One small joint a day, around 3 days per week would be the maximum for me in order to NOT receive any attacks or shadows. Concentrates like pure THC/live resin/shatter shatter Not as bad as normal dispensary weed but still a trigger for me live resin Much better than normal dispesary weed. I can smoke live resin around 2-3 days a week but would get shadows and would need to pause a few days. pure THC Well it will be around 80-90% THC. Is not a trigger to me this is what I'm smoking in these days if I really want to. I made this test and I confirm being able smoking this stuff endlessly. No shadows, no attacks. As live resin is a concentrate made out of fresh harvested plants (no drying process involved) I guess processes (eq. fermentation, aging...) starting right after harvesting generating those 'things/substance' triggering ch/shadows. I may be able confirming even further in the next month or so. If THC turns out to be a failure I would come back and report. Also any other issue related to weed, but as stated I need some more time for more detailed investigation. Probably important: If I get shadows or even an attack based on smoking weed it would be hours after smoking an excess.
  20. Welcome to the club WilliamT It's very common something working great today stop working tomorrow, and sofort. You have to gather your toolset and then switch from one methode to the other
  21. "...the further I get into the cycle the more exhausted..." Well known to us cluster heads isn't it? Sometimes a dark hole with no light at the end. The beast eating us in small bites and there seems to be no end or valuable solutions. Yes, I make the same experience others probably not believing in our devastating situation. But this is completely normal. For an outsider it is schier impossible/very difficult understanding our pain. They do not suffer from this repeating pain. The endless repeating attacks are what put us down hard. ​Always keep in mind, we are dynamic not static. So no, it won't be forever. Things will change by the law of nature for sure. I personally think the most important is not to live in circles. Always stand up and walk no mather how and in which direction. Standing up and walking is at least to me one important principle. (lost in the wilderness? Do not wait for help from outside. Stand up in any circumstances and walk.) Living in circles and staying where I'm am seems to me a very bad strategy.
  22. Can't give feedback on "run it off" but Lsd not working. Lsd is my prime preventiv thing. It happend in the past and also at a certain level today, Lsd not working or only at a low level. So I was forced to go back to triptans and ergotamin for a short time. After this period I can go back to Lsd and leave triptans/ergotamine regime. It is hard and verry expensive getting nasal versions of triptans in brasil so I stick to naramig as the reaction time seems to be faster than imitrex. As I do not like naramig at all (did severe overuse, probably resulting in screwing up receptors) I use it only when I do not have any other grib. I'm looking into other triptans starting to switch lsd, ergotamine, triptan-1, triptan-2, o2 forth and back. Same time going into anti-inflamatory regime using d3, food and drinking (no coke, sprite, fanta but just a lot of fresh tea and pure fruit juce) Always going back to lsd at the end of the day. I was lucky to getting different strains of Lsd which seems to make a differnce. Weaker or stronger blotters do not give different results to me. So far this on lsd use/lsd not working. To me it is not abortive, also at any amount eating them, normaly I do not trip at all but I feel the bodyload.
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