jon019

..thank you Den!! ...it's not the quite bottomless pit i'd hoped for, but for now. this pair deserved each other, the CH family did not....

...any news on son danny boy...anyone?

...i won't post the link (starts "internationally renowned"...ed aka quack) but this SOB has been arrested for murder. besides years of ruining lives he has now been charged with murder for killing one of us. like a stop sign on a dangerous road, they don't put one up til somebody dies. betting not the first........sheesh

...mee...2 days or 2 weeks post cycle...depending on the need and the courage...

....no particular place on head is definitive..... but anywhere the trigeminal nerve goes is a possible. my pain was a straight red hot poker from temple thru eye, into tooth..... ymmv

...yup, part of the curse..."just give me a friggin' reason!" plays in my life library..

...that struck me as good thought...why not? haven't heard of for Emgality before but seems might provide enough extra blood serum level to work. will never forget the first methylprednisolone IV that stopped a cycle mid cycle for me. seemed miraculous! alas, never worked again...

....unlikely that cooking oil in and of itself would be a trigger....however, old/used/stale/high temp abused cooking oils have high levels of free fatty acids which, among other things, are bitter, darken the oil, cause greasy mouthfeel and are just all around nasty. it wouldn't surprise that among these there could be triggers due to vasoactivity. minimize re use of fry oil, old oil, or restaurant foods deep fried in never changed oil (you will know by taste and mouthfeel). high volume food service uses oil fast enough to minimize excessive free fatty acids, as well as being able to afford frequent oil changes. low volume stores use til gone and frequently do not clean out food particles from fryer, which just worsens the problem.

hiya Mox...good to hear from you...very happy for your success! ...yup, that is exactly what happened to me on about 3-4 cycles over 30+ yrs. the first time i was sure i was dead with a stroke. 0-10-0 in 1-2 minutes. took me to my knees. once i knew i wasn't dieing i wished for that kind of cycle every time....quick and gone and get this shit out of the way fast. the difference for me was no other CH symptoms, except maybe the mental/physical fatigue intense pain causes. ...i dunno what SUNCT is so can't comment there. didn't seem to me a different HA type, same tho more intense pain, in exactly same spots...just a different presentation of CH... best j

...OXYGEN, OXYGEN, OXYGEN................................

.....i think its the breathing part with or w/o oxygen. while not a panic attack in the true sense my initial reaction to a hit, yrs ago, was panic and thrashing and swearing and working myself into a frenzy. it took a while but i finally figured this over the top reaction was getting me nowhere. all this to say i adopted a verrrry slow deep breathing technique when aborting with O2 that had a remarkably calming, almost meditative effect and actually used an lpm similar to yours. aborts became quicker and calmer! your breathe and hold is another favorite....try this slow/deep....maybe even w/o the O2.

...might not make any difference....when i self paid it was $14/e-tank....when insurance covered it was a $14 co-pay. they got us coming and going...

....be sure to read dosage instructions for the nasal...some create an endless loop need if over used....

...hey, if it works it works! more typical for nsaids to help with shadows. you may have nailed it with the allergies connection. anything that causes inflammation, histamine release, vitamin D3 depletion, hormone releases can be triggers for us. my first few yrs antihistamines were helpful....many find help with Benadryl prior to sleep or even daily during certain cycle parts (will make you sleepy). note that while the nasal congestion could be an allergy symptom.....it is also absolutely typical of cluster autonomic symptoms. i used Tiger Balm inhaling to clear sinuses....didn't affect the hit but cleared the awful congestion that makes a hit even more miserable...

...probably tyramine found in fermented products and/or the 0.5% alcohol that is allowed. one of the few 10 hits i've had was after na wine...hurt so bad i forgot to breathe....