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Into Light

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Everything posted by Into Light

  1. Into Light

    Best cheap demand valve?

    I’ve never gone wring spending top dollar for any equipment. It always has been more dependable and the functiional life eventually makes whatever the less expensive alternative. I have not yet researched the demand valve, in spite of having a prescription for it that specifies CH, since I might have gotten on board with functionality from 25LPM. just my opinion, developed over years of working as a pioneer in the field of computer illustration, fine art and photography. IntoLight ignore below, thanks
  2. Into Light


    No matter to me if the KETO diet is helpful; I’m a militant vegan (would make an exception for the Omega-3 oil).
  3. Into Light

    Describing CH to non-believers

    “Nothing Compares with You”
  4. I had to banish sumatriptan totally from my life. 1 shot would stop the headache, but only as side effects ramped up. I would experience increasing nausea. Weakness would become so overwhelming I could not even rest my hands on my chest while lying down. I would pass out. And awaken with no HA, but unable to do anything other than lie on the couch for about 5-7 days; could not think clearly; could not read, certainly could not work for my art business. I couldn't even sketch. My doctor switched me to oral rizatriptan, but I don’t take it. I am on 480mg Verapamil/day. Any change from that or missed dosage yields the return of CHs with a vengeance. I’m ECH with chronic shadows.
  5. What is.a sticky thread? IL
  6. Into Light

    Work and CH

    Hi jon019, exactly of what that is a picture? thanks, IntoLight
  7. Into Light

    Boswellia Serrata

    Good place for ‘edible’ essential oils is Young Living.
  8. Into Light

    Boswellia Serrata

  9. First, I want to thank you for being such a great member of this community. I've learned much from you in my brief time here. Per subject line I would like to know the exact bloodwork "we" need. I will be seeing my neurologist at the beginning of May. He and his team are wonderful, mostly because they really do their best to work with me. I would need all of the regimen as a PDF if you can. I get treated for lymphomae [diffuse enlarged b-cell lymphoma- cured, follicular b-cell lymphoma-still in remission after 6 years( and currently ambeating Chronic Lymphocytic Leukemia- being treated with chemo. (Thank you World Trade Center) My doctors are all at Memorial Sloan Kettering Cancer Center. I am on a new chemo regimen–ibrutinib– So I need to involve my neurologist, oncologist, naturopath and the pharmacy department. I was taken off high-dose Green Tea Extract and Curcuminin when I was prescribed the ibrutinib. Because I am on 480mg Verapamil the metabolization of the ibrutinib is slowed down and my particular dose of ibrutinib was reduced by 1/3 in order to maintain the proper blood levels of ibrutinib.

    I hope this does not add much to your workload. I really appreciate it.


    1. xxx



      You should have my email response to your request by now.  I think I answered all your questions, but just in case, shoot me an email if I've missed something or you've another question.

      I'm well aware doing battle with cancer is a full time dedicated team effort between you and your doctors.  I'm shy one kidney and several square inches of scalp due to cancer... most likely caused by a year on a monoclonal antibody called daclizumab.  That said, I've managed through all this without chemo or radiation therapy... just lots of vitamin D3, the vitamin D3 Cofactors and lots of Vitamin C.

      I haven't found any open source data on adverse interactions between vitamin D3 and ibrutinib.  There are some links suggesting Omega-3 fish oil can be a problem but no technical or clinical data to back that up.  What I do know is the anti-inflammatory regimen with 10,000 IU/day vitamin D3 works wonders building a healthy immune system.

      I'm here to help... and learn.

      Take care and please keep me posted.

      V/R, Batch

    2. Into Light
  10. Into Light

    What is 5-meO-Dalt?

    Thank you. I have a yogini who was friends with him, i think. It could have been another chemist. At one point he was trying to determine the Museum Dose, that being the most of which psychedelic one could do and still go to a museum. I enjoyed her retelling.
  11. Into Light

    What is 5-meO-Dalt?

    RC. ? What is that an abbreviation for?
  12. Into Light

    What is 5-meO-Dalt?

    Vent away. It’s not like you’re yelling at any of us.
  13. Into Light

    Describing CH to non-believers

    Doctors, like people, are mere individuals. And, like people, range from brilliant to dumber than a rock.
  14. Into Light

    Describing CH to non-believers

    I just say indescribable pain and leave it at that because it’s indescribable.
  15. I don’t remember if i thanked you. Thank you. I’m actually at the point, because of nearly constant shadows to say F it and I’ll find out how well all me meds play together just like a true alchemist. Just do it and see what happens.


    1. Pebblesthecorgi


      I know how it feels to desperately find solutions.  One should be very careful throwing shit against the wall to see what sticks.  Its best to apply a thoughtful measured approach if at all possible.  Best to you


    2. Into Light

      Into Light

      Thank you. I've discussed everything with all my doctors.

      I am in uncharted waters; I worked as a reasonably successful 3D computer illustrator selling Big Pharma to specialized ad agencies. I illustrated mechanism of action. I've read plenty of research papers in order sell new drugs visually as still images to Big Pharma via well-funded specialized ad agencies.. A peer-reviewed journal paper with clinical studies would be great. Considering the likely projected RoI, I'll bet that one would require major magic to get funded.

      I pray for the day. In the long run, I'd rather take my usual all-in approach.

    3. Into Light

      Into Light

      I'm also in possession of a 25lpm regulator but it's not enough O2. So off I go to find a medical demand regulator. And on 480mg Verapamil/ day rx. I have oral rizatriptan but it's pretty much a joke. My response to Sumatriptan is vile for days and I've had 2 hours of KIP 10 2 nights in a row, after said triptan.


      Mostly, the shadows are they are debilitating year-round.

      So I'm being a bit more aggressive.

  16. Into Light

    Does this sound familiar

    I’m going alternative. Now the World Trade Center Health Fund is trying to “unapprove my oxygen.
  17. Into Light

    Does this sound familiar

    Thank you. I was thinking that is the case.
  18. Into Light

    Does this sound familiar

    I don’t know how else to describe the experience, except as an oxymoronic “mild CH,” when I am not in the spring and fall intense ch attacks. I have ongoing (although not incessant—I get 1-3 clear days every 1-3 weeks) 0.5-2 level pain the rest of the year; they are often, but not always, accompanied by the ancillary symptoms of running nose and tearing/drooping eye, but not always. All right side. They, as mild as they seem, leave me deeply mentally incapacitated, and often depressed, even if they stop for a while.. so that’s what I call mild chronic CH with episodic attacks much more painful.. Right now, my pain level is barely a 1, but my right nostril is running. I was wondering if anybody else has experienced this.?
  19. Into Light

    Sumatripton help

    Boatman, I don’t know how else to describe the experience when I am not in the spring and fall intense ch attacks. I have ongoing 1-2 level pain the rest of the year; they are often accompanied by the ancillary symptoms of running nose and tearing/drooping eye. All right side. They, as mild as they seem leave me mentally incapacitated even if they stop for a while.. so that’s what I call mild chronic CH with episodic attacks much more painful.. Right now, my pain level is barely a 1, but my right nostril is running. i hope that clarifies. I was wondering if anybody ellse has experienced this.
  20. Into Light

    Sumatripton help

    Thank you. I have read some of the journal articles. For me, the 15 Lpm gave me about 1/3 of an in-breath before maxing out. I will try the reduction in flow over time.
  21. Into Light

    Sumatripton help

    Thank you.I am just excited to have found, through a link someone to buy my own regulator.. I will definitely try that.
  22. Into Light


    I live with Episodic attacks in Spring and Fall, and then nearly constant ‘“mild CH” and shadows for the rest of the year. what fun we have! (JK) jonathan
  23. Into Light

    Sumatripton help

    I just ordered the 0-25 Lpm for M tanks from the provided link. hopefully, this will do the trick. At $54, it’s worth a try. jonathan
  24. Into Light

    Sumatripton help

    I’m fine on the tanks; Apria is responsive. I just haven’t been able to track down a high-flow regulator. But may have that covered; I have to hunt through the emails, and haven't felt up to it.
  25. Into Light

    Sumatripton help

    I’m in FL. Apria are great on delivery. If I don’t mind waiting on hold. I have two M-tanks and the first is moving into the red zone. I’m episodic spring and fall, and am on 480mg of verapamil which mitigates the pain levels to max out at around 7 or so. I don’t know if it’s true for others, but then I move into a chronic “mild CH” mode. No matter what time of the year I suffer from an inability to think clearly and follow through on projects. the 15/lpm reg from Apria doesn’t deliver what I need, unless I hold my breath until the 3-liter bag on the Optimask fills, but I still suck that empty in about 1/3 of an inhalation. I didn’t see anything for me on Amazon, but,I had correspondence with a lovely woman at (?) Linde who undertook the effort to find me one source for the very high-flow regulator.