Shaun brearley

90s

Of course these 2 lads from the 90s and early 2000s

90s

80s incredible band

70s

Late 70s

I will give you a little run through if Manchester music scene grime 70s to 2000s The Fall late 70s

Now your talking Anne 1 cool chick and Dave Stewart 1 cool dude

1 of there best . In the same I love my music . But have a really wide range that I like from the 50s to present day and I can understand about losing job due to pain meds as I had to leave military due to CH . It sucks , but we live to tell the tale

Juss I'll give you New order and the stone roses quality

Enjoy the visit to the abyss buddy . Let hope you start to see some relief from it after this visit . Fingers crossed . Will be thinking about you buddy

Sounds like you enjoyed the ride buddy until the beast decided to pay you a visit. Glad your getting some relief tho . Keep us updated

Just want to say a BIG THANK YOU to Bejeeber,Spiny,Freud,CHfather,Jon019,Dallas Denny,Xboss and Fun times I'm pain free got my sanity back feel like I've got my life back, got so many more tool to fight the beast when he decides to reappear. As I said I'd never spoke to any1 who has suffered with this s--t before I found you guys and this forum , THANKS again

As has been said a few time about the triptans, but I will say again as this is so important and I got caught up in it . Yes it can abort the attacks but it gives such bad rebound headaches and also prolongs the cycle your in . So please be mindful of this

You got to do what's best for you at the end of the day . But also if doc"s are advising no surgery at present then I would go for that as long as you have quality of life . I know all of us with CH have a bit of doubt when it come to doctors due to are experience with them but this is different buddy I would say they know what they are talking about

The trouble with varapamil is the idea dose is 960 mg a day which is a very high dose for anyone can cause major heart issues you need to have ECG every couple of weeks as you increase the dose . I was put on varapamil when first diagnosed with CH I only managed to get up to 460 mg a day then had to stop as it was causing me heart block. But it does work for many CH sufferers I'm know on Toptrimate as a preventative have been for years I'm episodic and have missed a few cycles I'm not saying it's down to the Toprimate but it's the only preventative I used at that time

Hi Twisted . Yes you really do need to start the clock again 5 full days off triptans. Then you can start your bust . I'm no expert but have busted with L twice know I use 200ug tabs first dose is 1 full tab then 5 days later another full tab then again 5 days later . I've just finished my 3rd dose and have been 9 days total pain free . I don't think their is a certain IF level you need to use but the higher the UG the bigger the trip if that's what you want . You may Adele enjoy it if your gonna do it . But be careful as you can have a bad trip have a sitter with you that can bring you out of any bad trip you have is the best thing you can do . If you have commitments that doesn't allow you to spread the for see to 5 days you can do it on the 4th day or 6th day . Hope that helps

I'm no doctor but I'd say it's CH you seem to be having shadows between attacks as a lot of us do which are not as painful but are just as debilitating. . Triptans don't work for every1 with CH . Ginger can really help with the shadows . If you have to wait for your 02 can you buy it instead to give it a go . . Can you get a second opinion on your diagnoses. . I understand you think your life is messed up but once you have a proper diagnosis. You can get the tools to fight this . Yes we all have bad days buddy I promise but we learn to live with it and we know it's not going to kill us . Plus the pain free days are so good we learn to appreciate life so much more . Hang in there my friend

I put an ice pack on my tempul on the side I get my attack it seems to help . I've tried the ice cube in my mouth but can't keep it there long enough for some reason

If the pain is that bad buddy I'd still sit in the car with A/C on like I said put your mouth against the vent and inhale it really work.

I can't inhale through my nose as when I'm under attack I get really congested so I have to breath through my mouth . I can still abort most attack within 10 to 15 min buddy . You just need to find the right teqnique for you . Every attack is different . Sometimes I have to hiperventerlate sometime I just have to inhale slow and deep and hold for a few second b4 I exhale .

Nasal prong really are no good buddy when I first went to ER unit at local hospital they would always use them would never help . If you can't get a non rebreathable mask at present I'd inhale straight from the tube

Take 2 1100mg ginger capsules a day keeps the shadows away !!!! . I ran out of o2 1 day so just went out to the car and turned on A/C and inhaled straight from air vent managed to abort 3 attacks that day until o2 was delivered