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Shaun brearley

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Everything posted by Shaun brearley

  1. I will put my list together, you will just have to wait a bit, it's long!!!!!!!!
  2. I haven't got a problem with your experiences at all , but your post states CURE !!!!!!! , your not cured simple as that !!!!!, and yes I'm know in my 27th month pain free , Have you ever thought that your CH has just switched sides
  3. @Douglas Wardwhat gets me with your posts , is you jump in with i have the cure , then you say you still get attacks, so when people question you , you say its just my experience, so it's NOT a cure!!!!!! It's just your experience!!!!!!!!!. Then you attack the group , if you are cured from CH buddy I would just leave this group , NO need for you to be here ,
  4. I understand that , But the word cure shouldn't be used , it give false hope
  5. All im saying is , if it was as easy as booking a flight to south africa and visiting the miracle doctor Shevel , every CH sufferer would be banging on his door , but we're Not !!!!!!!!!
  6. Mate I'm not saying I don't believe you , I'm just saying from my experience their i s no cure , and yes I have CH have done for 44years , and yes I've had a rope around my neck on 3 occasions , my cycles last 6 months at a time 8 to 15 attacks every day and through the night , , I've banged my head on the floor the wall I've even had my partner knock me out with a frying pan , I also stab myself in the leg with a knife just to try to put the pain somewhere else , so yes I would say I have experienced CH ant it's worst !!!!!!!!!
  7. Sorry not having a go , just don't like people being given false hope
  8. Sorry but B--LS--T , no cute and probably never will be , you are just in a long remission simple as that , you will be back on this site sooner or later , saying shit that didn't work after all !!!!!!!!
  9. I had shadows all the time between hit when in cycle , but have been using ginger to stop that happening and it worked for me , no more shadows
  10. @M-Phillylie through the back of your teeth buddy , if it gets you what you need
  11. Happy New year to all us head bangers , hope we all have a great new year and lots of PFD'S
  12. Merry Christmas @BoscoPikohope you have a pain free great day
  13. Everything @CHfatherhas said I double down on , If your struggling to get samatriptain private message me , I may be able to help , but you really need to be careful with them as over use will prolong cycle
  14. Hi glad you found us , but sorry you had to , let us all know what your neuro has prescribed you and ask questions we don't have all the answers but we can help great bunch of nutters on here with answers and support
  15. I've got to by fair, my old neuro prescribe my o2 , be he understood CH, and wanted to learn more , but bless him , he has retired . Take the information @CHfatherhas posted , to your neuro
  16. What Medication has your doctor given you just out of interest? @Baby Moth
  17. Well doctor @BoscoPikoand doctor @Bejeeber , have covered most things on here that you can get started with , but ask questions and you will get answers , plus if you need to rant !!!!!!, come on here and rant , we all do it
  18. Wow @Bejeeberthought you was being nasty to are beloved @jon019 lol , but @CHfatherhas clarified Bum in the US means something totally different than it means in UK
  19. Hi @gegibsonjrsorry to hear about your impending back surgery, I hope all goes well . My only suggestion would be triptan injection if you have them . It's not going to block your busting as I'm guessing your not going to bust whilst in hospital and I'd start using Ginger capsules everyday. They work so well for the shadows
  20. O2 , Plus Busting is your partners best options I would say .
  21. Went there in 2016 . You can buy bucket loads of varapamil from any street chemist, So cheap !!!!!!!
  22. I gather your the 1 on the right @Bejeeberas it's better looking
  23. Just completed survey, so if @Bejeebercan strut his thing so can I!!!!!!!
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