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Shaun brearley

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Everything posted by Shaun brearley

  1. Jobo have hit the nail on the head as far as triptans are concerned. They have there place in are God forsaken world , but God so easy to over use because they are right there and can give such great relief in minutes , but over use means prolonged cycle rebound attacks simple as that .Been there done it !!!!!!! Not a good place to be . I jabbed at every sign of an attack a few years ago,I just didn't want to face the pain , I had o2 but didn't really know how to use it . I found this forum a few years ago know ,I've learnt so much . I'm off the triptans just like @BoscoPikoand have learnt how to manage my CH. Again just like bosco I do carry a triptan around with me when I'm out and about if I'm in cycle .Don't want to be thrashing about on the floor bang my head on the ground ,Will end up in a straight jacket (again)
  2. @BoscoPikoSo sorry to here about 1 of your babies being struck down , but don't worry to much bosco I'm sure she will be fine with you and your hubby looking after her . Get some ginger down you for the shadows (You already know that) shame you haven't got some vit L .could take you out of reality for a bit and the cluster bunny would hate it
  3. So true I have a great relationship with my o2 delivery drive (Dave) I can ring him anytime day and night and if he is working he will drop everything he is doing and drop me off new o2 tanks if I'm getting low
  4. @17477558409Sorry but all German and Dutch beers don't use preservative in the brewing process.so don't have Formaldehyde in them Most American premium beers except for Miller do use Formaldehyde as a preservative in their brewing process. Just didn't won't people thinking that all European beers are a no go
  5. Well Xmas hols have been great with the daughter home .just wanted to say a BIG thank you for all the support you guy gave me through all this . Thanks guys your the best @BoscoPikoSorry I'm not calling you a man
  6. Think their will be a lot of tears on Tuesday @Bejeeberbest Xmas present anyone can give my family and I,
  7. YES YES YES . She's coming home on Tuesday permanently , and walking with just a stick
  8. @Dawn FrenchHave you tried an energy shot b4 hitting the 02 as it really helps , and what's your o2 set up . Non rebreathable mask 15 lpm flow rate minimum
  9. Good so only using triptan when really needed , as it will bring on rebound attacks and prolong your cycle . Don't get me wrong they saved my life a few times but also made my cycles last a lot longer
  10. Hi @Dawn Frenchjust out of interest how often are you using the triptan nasal spray, do you use them for every attack to abort ?
  11. Rage as much as you want @lp3, but remember life is for living . Don't let the beast win buddy .We are all here for you when your in a bad place
  12. Funny was stop once and asked why I had 2 injection in my hand laugage at Manchester airport . Told security that it was better for every1 on the plane that I had than with me if I needed them , because it could get messy up there if I got HIT!! , they looked a bit puzzled but got the airport doctor to come and speak to me . I had to go through all the usual CH explanation. She had no idea really what the hell I was going on about, but 15 mins later she came back from her hidy hole office and told security everything was ok . Just makes me smile thinking about it , when they first stopped me at security the guy thought he'd could a drug addict
  13. I've never let my CH stop me from travelling as it's 1 of my favourite things to do in life . I do try to plan trips around my CH cycles , but I know this isn't always possible for some of us . I've only ever been hit once when flying , after 11 and half hour flight to Mexico . It was a 1 off CH attack , but I always carry samitriptan injections on the flight with me just in case. So ran to the plane loo and jabbed myself 5mins later attack over . Was in Mexico for 2 weeks no more attacks . Some people do a busting session the week before they fly that seems to help . I've not done that myself yet , but will be doing that from know on , just don't let the BEAST control your life !!!!!!
  14. She has blown my mind with her strength and determination @Bejeeber
  15. Well everything went to plan . We worked really hard to get the house safe for daughter to come home . Also had to move her bedroom down stairs . As it stand we could have her home permanently the week b4 Christmas.
  16. @Bejeebercould say that buddy . We are just on cloud 9 at the moment
  17. BIG DAY tomorrow daughter coming home on day release from rehab .
  18. What happened at the doctor's did he give you a diagnosis.? If not you really need 1. So get an appointment wit a headache specialist, because if it was a CH attack it won't be just a 1 off attack
  19. Hi Nick you have already had great advice my friend . I'll double down on it . Go get yourself a headache specialist best people to get proper diagnoses. Doctors and neurologists not really good for CH . Read up on the D3 it's so good and as @CHfathersaid even if you don't have CH it will do you good .
  20. I had mine back for 2 reactions , know it's gone again !!!!!!
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