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Everything posted by Shaun brearley
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@xlrsdhi my friend . This community is going strong buddy has been for years . USA has conferences every year but due to covid had to go vitual for a couple of years . But last year in Chicago was an open conference , and this year's US conference is in Orlando. This May we are holding are first ever UK and European conference in Glasgow . Stick around my friend you will get a lot of help and support from people that have suffered with CH for years plus support from people who care for people with CH
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@BoscoPikos--t did the US have a different virus than the rest of the world ,RONA virus
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1st Annual UK/EU Conference
Shaun brearley replied to eileenbunny's topic in Advocacy, Events and Conferences
@Roysterhope to meet up my friend -
1st Annual UK/EU Conference
Shaun brearley replied to eileenbunny's topic in Advocacy, Events and Conferences
@BoscoPikogreat save me driving . Mind you got to be fair only it is only 2 hours 39 mins away from my house -
1st Annual UK/EU Conference
Shaun brearley replied to eileenbunny's topic in Advocacy, Events and Conferences
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@BoscoPikoglad Abby doo is getting better
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@BoscoPikoI normally turn my mobile off and unplug the landline phone .No more ringing
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Update: cluster free flight: tips and tricks
Shaun brearley replied to kat_92's topic in General Board
See @kat_92we can lead a normal life !!!!! No need to be scared of flying anymore you did it -
@BoscoPikoMine are crossed , I will even cross my eyes for you
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@BoscoPikoI feel sorry for your hubby . He know has 2 to look after !!!
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Just found you'll and I thought I was alone.
Shaun brearley replied to Jackie mielniczek's topic in General Board
Lol love ya @spiny -
Just found you'll and I thought I was alone.
Shaun brearley replied to Jackie mielniczek's topic in General Board
@spinySee I was right when I mistakenly called you skinny a while ago !!! -
We have the 2 little s--tbags sleeping with us at night . It's a fight every night for every inch of the bed
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See told you @BoscoPiko She looks great and with your tender love and care , I'm sure she will be up and about in no time
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Just found you'll and I thought I was alone.
Shaun brearley replied to Jackie mielniczek's topic in General Board
Hi @Jackie mielniczekplease get off the topamax b4 your body starts getting used to it . So hard to get off it , and as people have said it will do nothing for your headaches .It will make you lose loads of weight plus you will start getting mood swings, plus you start to forget things , your short term memory gets shot to bits . Plus you start to miss words out of sentences when your speaking to people . Horrible med !!!!! You really need to see a headache specialist, get a proper diagnoses. Then if you have CH the first thing you need to get is O2 simple as that . Good luck keep us posted -
She will be fine @BoscoPikoand just think she will have you and your hubby waiting at home to look after her post op . So all good .Got to keep the banter going @BoscoPikoit keeps the world going round Good luck toorrow with everything
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Lol I just picked up a new pair of glasses on Saturday. Verifocols f---ing nightmare , move your head slightly and you lose all sight , can't get used to them, optician said all you have to do is point your nose at what you want to look at. God something so simple you would think !!!!!! Well for me no not at all .
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Have you lot ever thought , it may be us that's at fault . It may be an AGE thing . Just a thought tech and old age don't go together
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You do make me smile @BoscoPiko