Shaun brearley

Yea id stopped the topiramate when id come out of my cycle . But back on it know . Dont like being on it as it slows me down

So glad i found this site. Never spoke to any1 else that has to live with this . Was just wondering if there was any meeting taking place in the UK for CH sufferers to get together any time in the future

Thanks so much . Will try anything

Thanks alot . Whats this vitamin D3 every1 talks about ?

Need help . Sorry im new on here im from uk im 52 years old we are a bit behind on treatment in uk for CH . I have suffered since i was 21 with CH but only got med when i was 42 so had to suffer without till then now on Topiramate . Home oxygen plus samitriptan injections . Ive gone in to a cycle thats really intense im getting 5 to 6 attacks aday at present . Any ideas please ,

Hi i came out of a 6 month cycle in march of this year had my 2 doses of astra zenica vaccine over a 8 week period and within 2 weeks of my seconded jab ive gone in to a new cycle which is not normal for me as im normally cycle free for 2 years . This cycle is more intense.