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Shaun brearley

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Everything posted by Shaun brearley

  1. These guys on here will tell you. Ive just come out of a rouge cycle and thanks to their advise about how to use 02 properly i managed the pain alot better. Plus managed to get off the triptan injections you need to stick with the 02 watch the o2 video on here . But ask around about other things that can help with your CH attacks . Like i said the guys on here are sent from GOD
  2. I've got to be fair I've not given the D3 a go yet as im in the middle of a shit cycle so im giving busting a go . Good luck with the D3 hope you get success
  3. Hi I'm new myself on this site , but i agree with That hurt my head the amount of varapamil your on is not good i was only on 280 mil a day and it gave me heart block . Not a good med to be on
  4. Thanks Kat gonna give the Ginger a go with everything else im gonna try
  5. Yea id stopped the topiramate when id come out of my cycle . But back on it know . Dont like being on it as it slows me down
  6. So glad i found this site. Never spoke to any1 else that has to live with this . Was just wondering if there was any meeting taking place in the UK for CH sufferers to get together any time in the future
  7. Thanks so much . Will try anything
  8. Thanks alot . Whats this vitamin D3 every1 talks about ?
  9. Need help . Sorry im new on here im from uk im 52 years old we are a bit behind on treatment in uk for CH . I have suffered since i was 21 with CH but only got med when i was 42 so had to suffer without till then now on Topiramate . Home oxygen plus samitriptan injections . Ive gone in to a cycle thats really intense im getting 5 to 6 attacks aday at present . Any ideas please ,
  10. Hi i came out of a 6 month cycle in march of this year had my 2 doses of astra zenica vaccine over a 8 week period and within 2 weeks of my seconded jab ive gone in to a new cycle which is not normal for me as im normally cycle free for 2 years . This cycle is more intense.
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