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Posts
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Everything posted by Shaun brearley
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Well Xmas hols have been great with the daughter home .just wanted to say a BIG thank you for all the support you guy gave me through all this . Thanks guys your the best @BoscoPikoSorry I'm not calling you a man
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Could say that @spiny
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Think their will be a lot of tears on Tuesday @Bejeeberbest Xmas present anyone can give my family and I,
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YES YES YES . She's coming home on Tuesday permanently , and walking with just a stick
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@Dawn FrenchHave you tried an energy shot b4 hitting the 02 as it really helps , and what's your o2 set up . Non rebreathable mask 15 lpm flow rate minimum
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Good so only using triptan when really needed , as it will bring on rebound attacks and prolong your cycle . Don't get me wrong they saved my life a few times but also made my cycles last a lot longer
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Hi @Dawn Frenchjust out of interest how often are you using the triptan nasal spray, do you use them for every attack to abort ?
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Rage as much as you want @lp3, but remember life is for living . Don't let the beast win buddy .We are all here for you when your in a bad place
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Funny was stop once and asked why I had 2 injection in my hand laugage at Manchester airport . Told security that it was better for every1 on the plane that I had than with me if I needed them , because it could get messy up there if I got HIT!! , they looked a bit puzzled but got the airport doctor to come and speak to me . I had to go through all the usual CH explanation. She had no idea really what the hell I was going on about, but 15 mins later she came back from her hidy hole office and told security everything was ok . Just makes me smile thinking about it , when they first stopped me at security the guy thought he'd could a drug addict
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I've never let my CH stop me from travelling as it's 1 of my favourite things to do in life . I do try to plan trips around my CH cycles , but I know this isn't always possible for some of us . I've only ever been hit once when flying , after 11 and half hour flight to Mexico . It was a 1 off CH attack , but I always carry samitriptan injections on the flight with me just in case. So ran to the plane loo and jabbed myself 5mins later attack over . Was in Mexico for 2 weeks no more attacks . Some people do a busting session the week before they fly that seems to help . I've not done that myself yet , but will be doing that from know on , just don't let the BEAST control your life !!!!!!
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She has blown my mind with her strength and determination @Bejeeber
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Well everything went to plan . We worked really hard to get the house safe for daughter to come home . Also had to move her bedroom down stairs . As it stand we could have her home permanently the week b4 Christmas.
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Happy Thanksgiving to all you Cluster Head Survivors!
Shaun brearley replied to BoscoPiko's topic in General Board
Happy thanksgiving to you all in US- 1 reply
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@Bejeebercould say that buddy . We are just on cloud 9 at the moment
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BIG DAY tomorrow daughter coming home on day release from rehab .
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Let's hope in CH !!!!!
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What happened at the doctor's did he give you a diagnosis.? If not you really need 1. So get an appointment wit a headache specialist, because if it was a CH attack it won't be just a 1 off attack
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Hi Nick you have already had great advice my friend . I'll double down on it . Go get yourself a headache specialist best people to get proper diagnoses. Doctors and neurologists not really good for CH . Read up on the D3 it's so good and as @CHfathersaid even if you don't have CH it will do you good .
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Haven't decided yet!!!! @BoscoPiko
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I had mine back for 2 reactions , know it's gone again !!!!!!
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Yes
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@BoscoPikooonly joking
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Wow @BoscoPikoI'm not gonna confirm that at all
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