Shaun brearley

Would be really interesting to see your art work . When will it be available to view on the website ?

Not any 1 touching my head if I can help it . Not by choice anyway !!!!!

So at the end of the appointment are you diagnosed as CH or Migraine ,as you said that you had been diagnosed by 2 general practitioners plus a primary care doctor with CH ,but Neuro said migraine. Will make a big difference on the treatment you will receive. You really need to get an appointment at a headache clinic with a headache specialist. You know that you have CH but doctors and neurologist not really best people to diagnose CH . Headache specialist is the place to go

120 mg is a low dose for CH . Normally between 480 and 960 mg a day . If your doctor knows anything about CH he really should be prescribing you o2 as first line to abort attacks . Have you been given o2 . Plus if your doctor decides to increase your varapamil you really need to get an ECG , as it is a blood pressure medication and can play around with your heart

Brilliant!!!!

As far as I know the cost in UK for gammacore is first 3 mouths free then it works out around £2250 a year , but being in the UK it's all covered by the NHS ,but not all areas in UK will cover the cost .so it depends where you live in the UK if you get offered this treatment

We need this info to help out .so sorry your going though hell at present .

Really hope it's a short lived visit from the beast (bunny)for you both .fingers crossed

Classic!!!!! I've never had the delight to experience lock neck or broken neck ,but I do get really bad stiff neck just b4 cycle starts with the shadows

Hi mate so glad your getting some relief from the amount of hits you we're getting

I'm in UK took me over 20 years to get o2 . You really need to see a headache specialist. Doctors no good !!!!!!!

I'd go see a headache specialist. Not a lot of doctors understand CH let alone understand how to treat it

My cycle ends with a full week of heavy shadows that nothing will shift .I get no hits just full on heavy shadow day and night . But I know that it's the end so happy days

Yes I take 2 1100mg ginger capsules a day when in cycle just to keep the shadows away

Yes it can be , That's why you should be having an ECG every time you increase the dose , but your doctor should know that !!!!! . It's a blood pressure drug

Well Bosco how is your better half doing know ?

Seems a low dose to have any affect on your CH to me but I'm no doctor ,and as spiny has said once a day doesn't seem right . Your dose should really be spread out over the day

You should be having ECG every time you increase the varp ,just to make sure no heart problems buddy . I could only go up to 320mg a day then I started to get heart block , so came off it and was put on topiramate instead

And I bet he doesn't get worms !!!!

So sorry to hear the man of the house is still not well , but on the other hand it's good that your feeling a bit better so you can look after him . I did say Man Flu is so much worse. Hope he feels better so

I know in the UK it's really hard to get disability payment for CH doesn't make any difference if chronic or episodic .

Just can't bear the sight of food when in cycle . Plus I vomit like no tomorrow when under attack. I lose so much weight when I'm in cycle then take months trying to put it back on again

I try my best sue

Sue!!!! Predictive text lol

The man's mind is a clever thing Lol