Shaun brearley

I gurn loads just before an attack the missus notices and always will say that she knows a good 15 mins b4 I get hit. I can't really afford to lose the weight as I'm stick thin as it is . I've never been above 154 pound . After my most recent cycle I dropped to 112 pounds.

Strange I lose so much weight when in cycle as I don't feel like eating plus I vomit really bad if I get hit with Kipp 9 or 10s , but I am really thirsty after an attack

Me to Jono same dates for 39 years until this years extra cycle that started end of July

I have blue eyes

Hi Charles sorry to hear about your cycle starting up buddy , I'm afraid it's the same story for all of us who are episodic my friend . As Xboss has said get a journal started it will give you a bit more of an understanding of it . Some of us who are episodic can name the date that are cycles will start same can't it's just the nature of the beast I'm afraid. I'm normally every 2 years but this year I jumped back in to cycle after only 4 month remission , so as I said the beast will do as it wants . Have you been prescribed o2 by your neurologist? Have you been prescribed a preventative such as varapamil ? Can you give us a bit more information buddy . Their are so many great people on this forum that can help you out my friend we are all here to help . The first thing I would advise is getting on to the D3 ragime it's a multi vitamin ragime put together by a great guy on here goes by the name of batch aka xxx . People on here have managed to become pain free for years just by following his D3 ragime. If you don't get pain free it will reduce the frequency and pain levels so it really is worth getting on straight away . If you go to search bar at the top of the page and type in D3 it will give you a run down of vitamins needed and loading instructions . I'm sure 1 of the experts on here ie Bej , spiny, CHF of xxx himself will read this and add some more advice plus put the D3 instructions on here for you as I'm a but useless when it comes to that sort of thing

Veteran self help groups and/or healing circles are also widespread. Less is specifically known about outcomes because these groups hold thing closely and in confidence. YES VERY CLOSE AND IN CONFIDENCE .

Well I've had CBT and I've got to say it didn't work for me as I wasn't will to talk about what I did or saw whilst in the military which caused my PTSD ,I have really bad nightmares which I call horrormares , I have done for over 20 years know It caused the break up of my first marriage .I will say that since I've used vitamin L the horrormares have subsided not completely but they have calmed down . My mental health nurse has said she has noticed a difference in me and top me to carry on with what I'm doing . I did explain to her that I was using it to treat my CH , but as she said it's also helping with my PTSD

It's got to be worth a try . It's not a drug which is should a good thing as us CHers have had enough s--t thrown inside are body's that don't seem to do Any good or if they do they gave major side effect to go with them . Just think if this works for 3 or 4 % of are community it would be a success in my eyes .

Bohm great job buddy. Sounds interesting. I'm willing to jump down any rabbit hole if it help people myself included . I'm guessing it would be a good idea to get in touch with Bob or dome1 on the board

Hi Leanne if you type in Predisone in search bar at top of page you will find some post on it . It has helped some people and not other . I wish I could help but I've never used it myself

It was Bosco travelled all over Europe free off charge .I was on holiday every week . And during ski season I would get 10 weeks skiing in free of charge , as the driver of the party u would get a free lift pass for the week

Me and the missus fly a lot when I'm out of cycle .only been hit once when we flow to Mexico, always carry triptan injections on flight with me even when out of cycle just in case . Plus when I came out of military I drove coaches all over Europe and during the winter I would have to take holiday makers to the French, Austrian,Italian and Swiss alps for ski trips .The highest was Val thorens in France which was 7545 feet never got hit whilst up there , but again I only drove those trips if out of cycle

I work with computers everyday at work. I've reduced the blue light on my screen and it hasn't help one bit .So from my experience blue light reduction doesn't help CH , but I could be wrong

Defo be interested

I've seen your incognito Facebook page buddy . Didn't want to put it out there but as you've asked I've had no choice

You would look good in pink bej

I can only reiterate what has been said in above quotes .This forum with you guys and girls sure have made my life all the more easier and bearable to handle THANKS A LOT

S--t where can I get a pair of these glasses?

Happy New year to every CH sufferer. And every CH supporter We are 1 of a kind and we need to stick together

Not good to hear about the 2 attack buddy . But as you said CH is always changing it can kick us all in the arse when not expecting it . Just glad you got another weapon to try and kick the beasts arse

Sorry !! Just fed up with covid but this forum is not about covid so please can we get off this subject

Dame I did kick it off wasn't my intention, sorry!!!

Hope I didn't cause a problem with my post

Hi Fork boy . I've worked all the way through covid been exposed to it many time , whole household have had it . I've had my 2 vaccines but not my booster , but I've not been struck down with covid . But I've also never been hit by the flu virus in my life . I just think it's down to people's immune system. I could be wrong I'm sure some doc's on here will jump in . I'm 1 of these believers that the world is to clean know but that's just my take on it . The human body is a wonderful thing and I think it can fight a lot of things on its own without the help of vaccines but again that's just my opinion as that can start a lot of arguments .So please anyone reading this as I said just my opinion

Lol not really jon019 like I said only questioned once . Didn't have explanation ready so just came out with. I've got a brain disorder and if you don't allow me to take this medication on-board with me we could all have a major problem that we don't want at 38000 feet . They didn't ask anymore questions