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Posts
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Days Won
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Everything posted by Shaun brearley
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Long Time Cluster Sufferer Who Beat the Devil
Shaun brearley replied to Bill H.'s topic in General Board
@snugz365I'd agree -
@Bejeebermaintenance bust buddy ?
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@BoscoPikothat's it new name from today Bosco (AKA Drew)
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The beast farting inside your head . Just a thought
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I reckon it's your brain trying to escape Bosco.
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I also thought samitriptan was my life line but the trouble is when you are in full cycle and getting hit with up to 8 attacks a Day hitting kipp7 to kipp10 you can't use triptans to abort every attack that's why o2 should be your first line of defence . Plus over use of triptans can prolong your cycle and give you rebound attacks
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You really should go back to your doctor and ask for the oxygen .I promise you it will become your best friend !!!!!!!! I love seeing my tanks of o2 in my house it gives me great comfort to know they are their
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I'm afraid they run the world Pharmaceutical company's
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Tuna all the way
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We really need to be more serious on here . We are all acting like children . !!!!!!lol
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But I'm a dog lover . Can I be a cool dog pleeease
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Hi music .if you look through most of the posts on this forum you will see most have serious content and are a great help to a lot of people who are suffering with a horrible disease. If you go though them you can learn so much about this s--t infliction we have been dealt i don't know of any1 on here that mentions the leader board or badge side of this forum as it means nothing !!!!!!! . Yes their is some humour on here and yes we take the p--s out of each other now and again but that are community just trying to put smiles on people's faces and I don't really see anything wrong in that
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I'm lucky I get the same effect from strong black coffee as I do from drinking energy drink (red buĺl) b4 I hit o2 . So I use an energy drink for night time attacks and black coffee for daytime attacks .your rite I can abort an attack within 5 to 10 mins after coffee or energy drink ,but it takes 25 to 35 min without
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Is head and neck massage helpful or harmful for CH
Shaun brearley replied to Hugh Hall's topic in General Board
Not any 1 touching my head if I can help it . Not by choice anyway !!!!! -
First Neurologist Appointment (Rant/Story Time)
Shaun brearley replied to OddNoodle's topic in General Board
So at the end of the appointment are you diagnosed as CH or Migraine ,as you said that you had been diagnosed by 2 general practitioners plus a primary care doctor with CH ,but Neuro said migraine. Will make a big difference on the treatment you will receive. You really need to get an appointment at a headache clinic with a headache specialist. You know that you have CH but doctors and neurologist not really best people to diagnose CH . Headache specialist is the place to go -
120 mg is a low dose for CH . Normally between 480 and 960 mg a day . If your doctor knows anything about CH he really should be prescribing you o2 as first line to abort attacks . Have you been given o2 . Plus if your doctor decides to increase your varapamil you really need to get an ECG , as it is a blood pressure medication and can play around with your heart
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British Medical Journal Article by Schindler & Burish
Shaun brearley replied to MaxHead's topic in General Board
Brilliant!!!!