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Everything posted by Shaun brearley
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Omg no @Bejeebernot my youngest . My eldest daughter she is 31 years old . What makes it worse is she has a little 8year old boy . They have both lived with us for the last 5 years since she split up with her fella
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Just a quick update on my daughter . Firstly I will let you know what happened . Terri was walking home the early hours of Saturday morning and got hit by a lorry whilst crossing the road . She has multiple injury the most major being her brain plus shattered pelvis hip and spline is split in half . Surgeon's tried to operate last Wednesday but during the op the pressure in her brain rose so high they had to stop the op . So we know wait again . She is still in an induced coma at present but hoping to wake her up this weekend . Going to attempt to operate on her pelvis and hip next wednesday
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Don't won't any1 to think I've just vanished ,or forgot them I won't be around for a bit could be for a long bit , my daughter has been involved in a accident and is on life support . I'm normally pretty active on this forum and I don't won't any of my buddy's, ie bej , spiny, Bosco or CHfather or Jono to think I've just disappeared. But back when I can . Love to all , keep pain free
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I had 1 attack in front of my new Neuro,and all he did was ask me to remove my mask as im trying to abort it with o2,so I could answer his questions.
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@BoscoPikoso true I remember going to A&E loads of times and all they wanted to give me was morphine at stupid doses just to shut me up . I'd be back in A&E 5 or 6 hours later with another attack , and again pump me full of morphine , but when I end up in A&E 5 times in 3 days they start throwing around this drug addict theme and that I haven't really got anything wrong with me . Oh and by the way morphine does f--- all for CH pain
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Oh yes @jon019ive been accused of being a drug addict on a few visits to the Emergency department in my time . Just so glad I don't have the need for the place anymore .
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Wow please don't increase varapamil without your neuro's say so . It's so dangerous every increase you need to get an ECG done as it's a blood pressure medication and can give you heart block . Get on the D3 vitamin regimen it works wonders . Can't really add anything else as @BoscoPiko and @spinyand @CHfather as always have covered everything expertly. Really hope you find what works for you . 1 thing I will tell you is you have found a great community of people here , sufferers and carers who all understand what your going through and we are all here to help .
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Long Time Cluster Sufferer Who Beat the Devil
Shaun brearley replied to Bill H.'s topic in General Board
@snugz365I'd agree -
@Bejeebermaintenance bust buddy ?
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@BoscoPikothat's it new name from today Bosco (AKA Drew)
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The beast farting inside your head . Just a thought
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I reckon it's your brain trying to escape Bosco.
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I also thought samitriptan was my life line but the trouble is when you are in full cycle and getting hit with up to 8 attacks a Day hitting kipp7 to kipp10 you can't use triptans to abort every attack that's why o2 should be your first line of defence . Plus over use of triptans can prolong your cycle and give you rebound attacks
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You really should go back to your doctor and ask for the oxygen .I promise you it will become your best friend !!!!!!!! I love seeing my tanks of o2 in my house it gives me great comfort to know they are their
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I'm afraid they run the world Pharmaceutical company's