Shaun brearley

The capsules i use have no flavour so happy days

Glad your getting some pain free days to enjoy your life again

Really was a spelling mistake buddy , but glad it put a smile on your face

Dorry i didn't shit myself away. I shut myself away lol

Not really got advice about coping with life outside home really kimbers as every CH sufferer is different and every CH sufferer handles it differently . With time he will learn to handle it i promise . Life goes on , ive just been going through a rogue cycle this last 3 mouths and had to take time of work plus had major anxiety which I've never experienced b4 .i shit myself away in my house for 3 weeks due to the amount of attacks i was having plus i hate having attacks in public as i feel like a freak . Just bear with him as i said he will learn to live with it . Your on the rite track with everything your doing for him so just stick with it

I've used varapamil but the dosage needed gave me heart block so neuro put me on Topiramate seems to reduce intensity of attacks . But you do need them in your body 3 mouths before cycle starts

Hi kimbers . So good that your supporting your husband . Listen to these guys on here they were sent from god as far as im concerned . Your husband really needs to stick with the o2 as its so good he just needs to get the right rhythm for the attack he is having but he will learn that the more he uses it . Look at chugging and energy drink down first b4 hitting the o2 it give the o2 a head start . Plus look at busting

Yea i hate the taste of ginger so capsules is the way to go for me

Sorry im with you Bejeeber. Won't touch alcohol until I've been pain free for 3 weeks was on holiday nov 2016 in porta Vallarta Mexico . I had been pain free for 6 days whilst on holidays so thought great must be out of cycle im gonna risk a beer . Worst mistake i ever made . The attack was worst pain id ever experienced. Id only drank half a glass the speed it hit me was so fast . Me and alcohol know don't mix till 3 weeks pain free

Hi Bosco ivebeen having same problem with this rogue cycle of mine . Ive seen a fair few people on here use ginger . So ordered myself some organic ginger root capsules 1100mg been taking 2 each morning for last 5 days and shadows seems to have gone

Yes its on phase 2 . It is taking place in Basel Switzerland and it is for CH. Found out about it to late to get on it , as far as i know a US pharmaceutical company is involved in the trial

Freud if your parents find this magical doctor (bless them they are only helping) let us all know buddy

Yea funny . Same here Bosco thought I'd come out if a rouge cycle but the demon has shown it ugly head again in the middle of busting .maybe it is for past evils committed when younger Bejeeber. I know i was a shit . We should question every CH sufferer , see if we were all little shits when younger

Lol .yea got be fair i do feel possessed during attack legs jerking snot flying and people do look at you as if your mad when trying toi explain this shit . God i wish we could go get exorcism .if only that easy

Like my buddy bejeeber said i don't think so . If it was o2 wouldn't work triptans wouldn't work !!!! So i think you can forget about that 1 buddy

Good luck keep us updated

These guys on here will tell you. Ive just come out of a rouge cycle and thanks to their advise about how to use 02 properly i managed the pain alot better. Plus managed to get off the triptan injections you need to stick with the 02 watch the o2 video on here . But ask around about other things that can help with your CH attacks . Like i said the guys on here are sent from GOD

I've got to be fair I've not given the D3 a go yet as im in the middle of a shit cycle so im giving busting a go . Good luck with the D3 hope you get success

Hi I'm new myself on this site , but i agree with That hurt my head the amount of varapamil your on is not good i was only on 280 mil a day and it gave me heart block . Not a good med to be on

Thanks Kat gonna give the Ginger a go with everything else im gonna try

Yea id stopped the topiramate when id come out of my cycle . But back on it know . Dont like being on it as it slows me down

So glad i found this site. Never spoke to any1 else that has to live with this . Was just wondering if there was any meeting taking place in the UK for CH sufferers to get together any time in the future

Thanks so much . Will try anything

Thanks alot . Whats this vitamin D3 every1 talks about ?

Need help . Sorry im new on here im from uk im 52 years old we are a bit behind on treatment in uk for CH . I have suffered since i was 21 with CH but only got med when i was 42 so had to suffer without till then now on Topiramate . Home oxygen plus samitriptan injections . Ive gone in to a cycle thats really intense im getting 5 to 6 attacks aday at present . Any ideas please ,