BoscoPiko

I admit that I sure did toss all routine out the window with everything that's been going on (rooky move on my part)! Yes I am feeling better especially after the dosing and REAL BED

Forgot to tell you that I most definitely will be using your "sucktastic" brilliant word combo posted on a different thread the other day

Don't worry @Shaun brearley, He knows the drill. All he has to do is manage to not worry as there is nothing else he can do if I'm getting hit. I am hopeful that I caught the creeper in time! Fingers, toes and all crossable extremities crosses!

Thanks Jeeb! I am one sleepy critter and can't lie, I so am looking forward to my "Real Bed"!

Mind read much? We just came to an agreement to rotate. Got some seeds soaking and eating a bit of dinner. Got Abby squared with meds and what not and its time to down the yuck and make a play for sound sleep!

I can’t really tell what’s been going on for the past 3 days with regard to my head pain. Most that have chatted with me here and there, know that I’ve had bad issues with constant shadows. The past few days have been different though. The pain is unlike my normal dull, continuous and in the background pain. It is more like surges of pain on my CH side, not nearly as bad as a full-blown attack, but seriously uncomfortable. The surges come at about the speed/rate of an attack but are muted in comparison. The pain doesn’t feel to me to be shadow like but at the same time not worthy of being considered an attack. Is it possible that the pain is a muted attack of sorts? Or do shadows morph like the stupid cluster bunny? Always on que to drop fun bombs? My sleep schedule that I adhere to like Gospel has had to take a hike for a bit after my Abby Doo’s surgery so I am up at random hours to give pain meds etc. when needed. Maybe that accounts for the change? I am past due for RC dosing and maybe let my maintenance dosing with them slip. Anyhow I am just curious if anyone else has experienced this and what measures they have taken to quash it.?

You and me both @spiny.. I wanted to clean my house up today so I proceeded as normal. No sooner had I changed the sheets than Abby decided to finally poop after five days. FML.. All is ok. deep breath... I'm spent....

Thanks Shaun! We sure hope she gets better sooner than later..

I started with an air mattress but Bosco decided to sharpen his nails on it Abby has gotten supper crowdy since being hurt so if we are on it, she wants on it and would try and jump which is a no no after this recent surgery. They say the recovery period is around 8-weeks.. They did detect cushing's disease in her blood work which is most likely the cause of the tendon giving way. We had to do a imprint cast of her leg and send it in for an orthotic boot that she will need to wear for up to a year.. Here is what it looks like:

Hey @spiny, yes the harness is a huge help! You know it! That girl wont budge and sleeps sideways Oh how I wish it was a real bed... We are currently sleeping in the dining room on a bunch of mattress toppers Our house was built in the 80's when it was cool to have a drop down into the living room which is a no-go at the moment for Abby. I feel like I just spent the night camping in a poorly scouted spot atop a bunch of rocks!

Thanks you guys!

Well we made it through! Abby Girl went in yesterday for surgery and we got to pick her up around 10ish today. Some good news is that they did not need to place a screw into the bone to hold the mesh in-place meaning she will not have to go under again in 6 weeks to have it removed. Tough times for sure but Miss Abby Doo is home! I know this may sound like small potatoes to some but Abby is 11 years young and these types of surgeries are complicated at that age. Like @Bejeebersaid "modern surgical advances" have proven to make me a happy momma. Yea I wont sleep well for a few months as we now live in the dining room but we will make due. The point of this surgery was not to extend her life but to make the BEST of the end. I chose at a young age to not have little ones but never could escape being a fur baby momma.

Thanks Jeeb. You all are the best.

Well I have to say that all of you lift my spirts! I love the light hearted banter and mild jabs at one another. You all make my day each and every time I'm on here. I was speaking to my husband the other night and said to him that if all of social media worked like this site we would be golden. My pup goes in tomorrow morning for surgery and I am sick with worry. It's so nice to know that I have all of you! Of course my shadows chose to kick in big time today when I had to play hostess but .God willing I made it through. You all are the best thing that has happened to me in a long time. I appreciate you all very very much!

Well at least I know it's not just my phone

LOL @Shaun brearley it's real I swear! Just like all my auto correct typos

Well I suppose it's a small problem to have in the scheme of things

Seriously! It acts ok if not quoting but otherwise a serious irritation!

Just wondering if I am the only one experiencing problems when trying to respond to a thread with my phone? When I try and respond, it lets me type a few words and then highlights the thread I am responding to and if I try and move forward it deletes the continent I am responding to? If I try and get past this issue it creates a huge blank space below my response as if I have hit the space bar a bunch of times? Is this just an isolated issue with my phone? Or is anyone else experiencing this?

Naw. Everyone on here is a SOMBODY. Tell all us what you do to mitigate your CH and what has been offered you to do as such. You may find yourself kindly surprised at all this community has to offer.

Nothing wrong with doing as such and in fact it can be therapeutically beneficial. Seriously, it's high time for a cluster head to develop something usable by us thunder bunnies! Keep on keeping on!

I so understand how this could be a favorite as I have a hard time believing that there is a Cluster Head out there that hasn't had this awful thought plague there mind. Sometimes it's hard (especially in the beginning) to imagine living forever this way. As for tracking meds and attacks, I initially used my outlook email calendar. I still shake my head when looking back and seeing my loggings of migraine. I no longer track the attacks as they have continued to morph, making tracking somewhat silly. There is something to be said about a diligent documenter and has proven helpful for some in the past. I now focus on things like supplement packaging, dosing levels and odd happenstances like warning signs as well as the last time I ingested something outside of pharma. Excel is a great tool as you can easily auto sum or create neat formulas like (cell such and such equals this or that). Now days I try and pre-package everything from morning intake, evening intake and for fuc8ks sake intake. It just makes my life a bit easier being able to grab a baggie although I do get the odd looks at Michael's craft store when buying out the small sized drug looking baggies...

No money Kat. Awful but as simple as that..

Hi @Alicia Clusterhead, I saw this post a bit ago and wanted to respond but I was on a tight schedule. First and foremost I couldn't agree more with @Bejeeber with regard to a second opinion from a headache specialist (headache specialist clinic). I was told.. when all this kill joy happened, that I was going to be allowed to see a headache specialist that turned out to be nothing more than a practicing nurse under a neuro. (Not down playing the wonderful nurses in our healthcare system) however the information I received was entirely migraine oriented (find a dark room, get a cold cloth, try to sleep (um can't happen during a hit) blah blah). My initial diagnosis was also migraine and I used to even log them as such on my calendar. I suppose I got lucky after tossing Doctor after Doctor out and being allowed to see a neuro that had a small clue. One thing I will never forget is the fact that he had seen my chart and told me as much but then asked me to tell him in my words what was going on and what I felt like when receiving a hit. I was almost stunned into silence but then everything came out like a flood. His response was " I can see (video appointment) that you are terrified to experience this again and I have no doubt this is CH. I felt relived that finally someone knew this was not migraine but at the same time devastated that I was afflicted with something so awful. I was lucky to get diagnosed after a year and change. Many wait years and years. Don't stop being an advocate for your self. I am a bit stunned that this gal, after your description still wanted to chalk all to migraine. My only question is the 12 to 24hrs. that you mentioned and somewhat makes me think it maybe this could be another awful form of head attack? Either way I sure hope you continue to PUSH. We know us best and I'm so sorry for your pain.

You know... You @CHfather have helped so many (my self included) on here, I think you get a full pass with PJ wearing, a bit of weight gaining and aging to boot as well! I couldn't re-pay you for all the words I have had the chance to noodle on. Good Man indeed you are. Thanks for being you!