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BoscoPiko

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Everything posted by BoscoPiko

  1. No clue other than to tell you your not alone...
  2. Maybe see if you can get away with a face shield? At least that way your not having your air ways blocked and breathing used up o2? I refuse both but I'm a mega jerk face ...
  3. Uff.. I'm Sorry. I'm here in the land of enforcement and I do not ever wear one as the heat from my own breath has put me into a banger or two. I,however do not work for someone else, that being said I am able to get away with it. I've been kicked out of Best buy, Costco, Lamps Plus along with various other retailers (even if I tell them that I have a condition that requires I get max o2). Sorta silly as no one can site the effectiveness behind a cloth face covering? But then again ask a GP about CH?
  4. Nothing new to report here. I am writing because i feel like writing. I did not have spikes today; nothing to report at least not in the CH world. I suppose - but maybe so? I do get tired of the typical; but never ignore a cry. I also wonder quite often how to differentiate? Although I'm sure it matters not much; after all a cry is a cry. I guess what I am saying is why not try? I am a skeptic; no busting for me yet - but homework? Are you really in true pain? The pain we speak of hear? Do you you live this way? For me, I wake and wonder if I will make it through a shower; will I afford my husband the luxury today? Shampoo and conditioning? No Spikes have you? Well holly hell! Lets reset the clocks or do what we just did do????
  5. Any CH is awful but boy would I be lying if I said I wasent just a tab bit jelly of your 4 year gaps.. Sorry you get them at all and hope you find a way to make them say goodbye forever as I suppose that's what we are all wanting!
  6. This makes alot of sense. Thank you for all the details!!
  7. Or benadryl if you're not allergic..
  8. I get the bangers back as well who knows why but a break is a break so I'll take it. I don't think I've ever been slapped back from o2 but not 100% sure as of yet still taking notes and walking around blind.. the o2 helps me abort for about 7 to 20 minutes if I'm lucky and it's a late banger I get to go to.sleep and then I think I'm getting hit or dreaming of spikes I can't differentiate sometimes I wake sometimes I don't. Lucky I don't most of the time.. got intouch with Batch today and started Quentin as I'm allergic to benadryl.. maybe try that.. ?
  9. So I suppose we must we must identify as as an object, sex, person, place, thing a majig, an LMNOXHAYYDII OR A P. So.. duh du duh du duh..: Ice Pick Warriors Lightning Lovers Spike Enemies Eyeball Sweller's Eyelid Drooper’s Hot Pick Troopers Shock Therapy Snoopers Pain and Hell Dwellers Suicide Never Livers Rainbow Brain Seekers Between the the Cluster Sneekers Life Lovers Strong MFers Don't Like that Smellers
  10. Ice pickers for sure!
  11. That's a great idea I wonder what the heck we would identify as, lightning???
  12. And a very good one indeed. Not sure we will ever be a "Golden State" again well that is unless someone manages to find some magic beans, climb the stalk and bring the goose home...CA is the land of the infamous liberals where you can be anything you want ( male if your a female, female if your a male) all that neat fun junk... in hindsight I should have said that I identified as a sea lion or some other water needing creature to the tax man and the Dr. When wanting the write off for the darn pool... Cried discrimination then maybe...
  13. Ok... I feel like I'm on the shrooms after this LOL. Guess I suppose I'm the simpleton in the room here "Hi" I never ever want to go chronic I have never read anything about being chronic being easier to manage or the hits hurting less? However I am a new hell dweller. I suppose in telling you that I have also never heard of tapering off of the verapamil will show as much or I could blame that on my Neuro for never filling me in on that part as well as telling me every time I have an appointment "sorry these things are still bothering you" (as if they are going to magically go away) I also liked his statement that they are sometimes lunar? Funny that the verap is making your member stand at attention as I have to monitor my heart rate because it dips mighty low sometimes who knew.. Maybe I'll plug my husbands nose tonight and see what happens..JK... (Not shrooming just an odd sense of humor).. You did mention a beautiful wife!! Go get her buddy!!! Wishing you no pain!!!!!
  14. I'm really glad you have found some relief! I can't recall if you had said that you were taking D3? If not I think you should give it a try it can't hurt? I recently started it and it hasn't eliminated my bangers but it has cut down the intensity and that's something..
  15. You are very kind I have all the plans of getting back in the saddle... (pretty sure that's what you meant)
  16. I just have always been so against meds and now I feel Like every time I turn a corner I'm having to pop something. I am around a lot of people on Xanax and I guess still coming to terms... That's all (fighting the obvious) Just need time I suppose to admit that I am wanting to off myself entirely 2 often, cry at the everything... I am a cowgirl for f sakes... I just don't know where me has gone.. Ill find her and drag her back, kick her arse for playing in the mud for so long and get back to ME.
  17. I tell you my daughter in laws hair turned blue at the edges.. That's all it took and i only took one puff.. light weight I know
  18. Silly... Indeed you did. No wonder why you gave yourself that handle
  19. I have and they kina just scare the bejeebies out of me.. So I only have a consult set for the 28th of this month I figure it cant hurt to learn?
  20. I am glad that you have found a way to live! I am still struggling with that part but I'm getting better with a little help from this Cluster Custer community I haven't been brave enough to dabble in the MM or RC seeds yet but have recently started the D3 which has helped (hasn't made the boogie man go away entirely) but heck my life has improved and I'm not thinking of death so yea me! I love Montana though I've never really been to visit, passed through as a kid but that's it. Don't do the Mary J although I did try a few months back but I think now days everything is much stronger than when I was a kid coming home with the munchies as when I tried this time to see if it would help my daughter in-laws hair turned blue?? Yikes no bueno went to bed and said never again. Sensitive I suppose? I truly wish you lots of painless days!
  21. LOL.. You crack me up.. One would indeed think that in the land of skittle farting unicorns that you could at least get a script for a pool.....
  22. Hi Spida, Sorry you're here but glad you found this place... There really is something about knowing that you are talking with others that understand what you are going through. I myself am not at a place of experience to offer much in the way of feedback as I have only been living with CH for about 2 years and still feel like I'm walking around blind most of the time. I can say that you hit the jack pot in finding this site though:) Lots of awesome guys and gals on here with mucho experience, more than helpful info and humor to boot! Wishing you pain free days!!!
  23. This is some positive stuff rt here. I like the probably! I like hope, lord knows we all could use some!
  24. I totally get it. I am a Debbie downer quite often even without realizing it (everything just comes out that way). The struggle is real that's for sure.
  25. And yes we paid for the stupid thing in November of 2020! The only bright side to it showing up as we are finally cooling down is that it functions as both a spa and pool so when it's cold you can just heat it up. Down side is I have no idea how much that will cost to keep it hot....
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