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BoscoPiko

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Posts posted by BoscoPiko

    Am I Shooting Myself in the Foot-(Supplement Intake Question)

    in General Board

    Posted

    I'm doing pretty good since incorporating food first. Still on a bit of a higher dose of D but have started to decrease that as well. I did  another dose of RC the other day and seem to be responding well. Each day that I ate first the shadow lessened up so I really do think that the food was a major part in getting back to normal (if anyone believes I can be normal lol).. 

    • Like 1

    Statins

    in General Board

    Posted

    Hey JPD,

    Wish I had an educated answer for you but I don't however, I've never read anything about a cholesterol lowering medication rousing the cluster bunny. A 3 and 1/2 year absence is a good stretch! Anything special you could share about what you were or were not  doing during that time to keep it at bay? I hope your cycle is short!

    • Like 1

    Am I Shooting Myself in the Foot-(Supplement Intake Question)

    in General Board

    Posted

    Well I suppose that I can somewhat confirm that I was indeed aiming a sawed off shot gun at my foot by not eating with the am supplement intake. For the past three days after my post, I started to reluctantly get something down in the morning prior to taking my supplements and the shadows have lessened each day. They are not gone but more bearable. I've had to stay on an upped dose of D3 for now but that's not so unheard of with regard to encroaching cycle time. I have a few days left before I can do another RC dose but I will as soon as I can because I feel like I am definitely playing defense. Anyhow I hope everyone is staying in the clear!  

    • Like 3

    Am I Shooting Myself in the Foot-(Supplement Intake Question)

    in General Board

    Posted

    43 minutes ago, Bejeeber said:

    sawed off shotgun. 

    Well leave it to me to fudge things up real good. I stopped the yogurt in the am because i was having a hard time getting it down-_- I sorta knew i was doing things wrong so i suppose i have no one to blame.  Sucks to be culpable in your own demise ...dang it! I've just been so scared to change things up while life was good that I've overlooked reality.  Thanks for the response Jeeb. 

    • Like 1

    Am I Shooting Myself in the Foot-(Supplement Intake Question)

    in General Board

    Posted

    Hello to all you awesome guys and gals,

    Recently I have been experiencing some stellar shadows, I am unsure as to why but am chalking it up to summer approaching. While my cycles in the past have mostly been during summer months, so much about them has evolved and morphed over the past few years that I use the word “chalking” because I haven’t a definitive reasoning. I am still on the “Full Monty” D3 reg and it has been brilliant for some time. I also do maintenance with RC. The shadows this time around are intense, and I can only assume the cluster bunny is hot on my tail. I’ve recently increased my D to 30,000 IU a day and received a few shadow less days but that was short lived, and they are back. My question is about the time of day I am taking my supplements. I split my intake into AM and PM. Are my AM supplements being less effective because I have an empty stomach? Are they just sitting in my gut and not being dispersed properly by the digestive process that takes place with food? Sorry if this is drawn out and scattered, my brain is being quite unfriendly at the moment. Any thoughts are most appreciated. 

    Just wondering

    in General Board

    Posted

    Sometimes everything feels so hard. Each day seems to drag the finish line a bit further and further away. The same dinner is served for weeks on end and yet we are expected to eat up with some make believe fervor,  we choke it down. We push through... we always have and always do. We go through the motions rehearsed so we'll, mechanical, methodical and knowing. Yet reprereave is a goast? Dominoes waiting for that one flick. Maybe at times even praying for the push to let us lye, rest, rejuvenate, be as strong as everyone on the outside thinks and wants us to be. The truth is that we all get worn, knackered and just undone. None of this means the end. Not yet anyhow. It's yet another challenge, a hard one at that. In the words of someone I appreciate... "cluster heads are no woosies'! Hang in there @jon019! I've come this far because of people like YOU! 

    • Like 3
    • Thanks 1

    Stopping verapamil

    in General Board

    Posted

    Hey Kat,

    I've also been on it daily for a few years and have debated stopping. I am reluctant because I've read on here that a few people that stopped found that it didn't help any longer after restarting. 

    Red Bull withdrawals

    in General Board

    Posted

    1 hour ago, spiny said:

    I'll not give up my morning cup of coffee till I can no longer serve myself I suspect.

    Rite there with ya Spiny! Some time back when my husband got COVID he had no craving for coffee so he stopped drinking it. Weeks after getting over it, we couldn't figure out why he was having bad headaches daily until it dawned on us he was having caffeine withdrawals... I tell ya what, that man turns into a manchild when feeling ANY ailment so coffee it was!   

    • Haha 2

    Red Bull withdrawals

    in General Board

    Posted

    Good luck to you! Don't think you need it as much as you think you do but luck sent your way! I've never had success with energy drinks but have had decent success with coffee. Unfortunately both are addictive and both cause withdrawal headaches. Here's to your success!    

    • Like 1

    Odd trigger?

    in General Board

    Posted

    4 hours ago, devonrex said:

    Strong cleaners and such can do the same

    I'm with ya on the strong vapors emitted from substances.. Bleach is a no go as is pine sol. I don't think what you are experiencing is unheard of. Seems that the tendrils of this kill joy condition reach far and wide.  Maybe use a negative pressure 100% outside air intake system?

    • Like 2

    COVID and its effects on CH

    in General Board

    Posted

    1 hour ago, Chloe Chriselle said:

    so keen to understand if there's a commonality here (or perhaps I seem to be only picking up on stories of COVID making CH much worse...)

    No I think that COVID has been such a dominant factor in our lives of late that you most likely are seeing it more because everything is being chalked up to COVID even if it's a different respiratory infection. Sort of like getting a new car that you don't see on the road all that much but when you yourself get one all the sudden you see them everywhere.  

    COVID and its effects on CH

    in General Board

    Posted

    11 hours ago, Chloe Chriselle said:
    • Did having COVID have an effect on CH?
    • Did ECH-ers turn CCH after a bout of COVID? If not, did it affect the frequency / duration of your cycle etc?
    • For CCH-ers, was there any effect on you?
    • And probably more notably: if you were previously successfully busting, did having COVID affect the efficacy of your usual Vitamin M / L busting methods?

    Hi Chole,

    I had COVID a long while back and got lucky as it only lasted about 5 days and did not aggravate my ECH. However I had that new strain of flu a few months back and it threw me and my CH for a loop (caused out of cycle random attacks). I think any type of infection/virus that depletes the  system can cause this not just COVID. Thankfully I did not turn chronic either. The effect of COVID for me was similar to the now old fashion flu bug and lastly I couldn't answer the busting with M/L as I have not had to try them yet but if it makes any difference it did not interfere with RC busting. Hope you are doing well!  

    • Like 3

    Energy Drinks - thoughts to as why occasionally effective?

    in General Board

    Posted

    On 3/26/2023 at 4:09 PM, mikeh2017 said:

    Going through an episodic cluster. Currently less strong than in the past but symptoms remain. Oxygen doesn't seem to be working for me but A few nights ago finally tried downing a can of cold monster energy and somehow after 10 minutes it seemed to have an effect- felt at the lower part of my skull /neck where I assume pituitary / hypothalamus is . Symptoms receded and promptly fell asleep. Was impressive. Is there any research into why they may help?

     

    On 3/26/2023 at 4:09 PM, mikeh2017 said:

    Is there any research into why they may help?

    During an attack the blood vessels swell and or go through a flooding of sorts, causing more blood around the brain. The over flow of blood and pressure surrounding the nerves can cause an attack by sending a pain message to the brain. Caffeine restricts the vessels limiting the intake of blood to the brain thereby aiding in the abort and or ceasing of the attack. Hope that makes sense.

    • Like 1
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