Pos1964 Posted January 22, 2013 Share Posted January 22, 2013 Hi all, It's been a while again, Jan is still doing fine, no hits since the last 8 days! Almost unbelievable! Last week he was contacted by his neurologist, the deep brain surgery is finally approved and he will have the surgery in approximately 18 weeks from now. First of all he needs to quit the Deseril, then he has an appointment with the neurologist where they, again, will explain how the surgery works etc. Once he is of the Deseril, he has to maintain an "online diary" for about three months. After that the surgery will take place. That's what we know now, I guess there's more to it but we will hear more when he has his appointment. Jan is both excited and scared, it's going so well right now that he first doubted to take the surgery but with the last couple of months in mind, when he had 13 hits a day, he feels like he should have the surgery. We think the hits will come again when he gets off the Deseril and that's also a reason to go for it. After the surgery he needs to recover for 9 weeks. Meanwhile he lost his job because of this horrible condition so maybe this is the right time to do it. We don't know if it will help killing this Monster, or maybe just reduces it by half but even if the second option is all he is getting out of it, he think it's worth it. We'll keep you all posted, maybe, if we know the results, we can give advice from experienceÂ [smiley=undecided.gif] PF wishes to all of you! Elly Quote Link to comment Share on other sites More sharing options...
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