Hipshot Posted April 17, 2013 Share Posted April 17, 2013 Hi Dan! I just wanna thank u for the national geographic episode.. I'm 30 year-old ch-patient from Finland and u r the first fellow person that I'v heard talking about cluster/horton.. In Finland there is about 5milj. people and I never met someone with ch and doctors are just learning this ch here, so nobody haven't been able to help me or tell me anything about this.. instead, I'v been like a guinea pig to doctors last 15-years. Anyway when I spot u on tv I felt somehow relieved just to know that there are fellows around the world and I'm not alone with this. Thank you very much for what you've given.. May sound funny just to thank u for beeing on tv but it made a difference, gave me a motivation to carry on! Thanks to your lady too, I understand that she found the MagicMushroom for u..! (; All the best! T:Jarno Passi from Suomi Finland, Lahti THIS KIND OF PM MAKES ME VERY HAPPY, DAN :) IP Logged Quote Link to comment Share on other sites More sharing options...
Hipshot Posted April 17, 2013 Author Share Posted April 17, 2013 The above was a PM I got today, two years after filming. I trust this guy won't mind my sharing his letter to me. dan Quote Link to comment Share on other sites More sharing options...
alleyoop Posted April 17, 2013 Share Posted April 17, 2013 And this is just one of those that took the time to write. Dan, there is just no telling how many people's lives you have touched my friend! I know I speak for everyone of us when I say, "Thank you from the bottom of my heart for your unselfish contributions!" Bob Bowling Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted April 17, 2013 Share Posted April 17, 2013 What Bob said. Exactly. to the letter. Seems we hear from a disproportionate amount of Finns with CH. Maybe not because they have a higher prevalence of CH, but because about 95% of their population is online and high speed internet is an actual legal right there....? Quote Link to comment Share on other sites More sharing options...
CHfather Posted April 17, 2013 Share Posted April 17, 2013 Dan, I'm sure you encouraged Mr. Passi to come here to meet more people with CH. But I also remember that a frequent poster here, Tony Only, is Finnish and is an administrator of a Facebook CH site that is partly in Finnish. Also, as I recall, Salander (also Finnish) is very active at that site. So he might want to tune in there. This is the URL: https://www.facebook.com/groups/385160354828914/ He could also come here and PM Tony Only or Salander. There was another person from Finland, Panu, who was active here for a while, and of course the wonderful Tingeling is not far away. Quote Link to comment Share on other sites More sharing options...
Hipshot Posted April 17, 2013 Author Share Posted April 17, 2013 I haven't really realized how many Fin's have been on the board. I don't know how this guy found me, but I am always really happy to hear from people like him. I have never seen someone on a documentary and tried to contact them. It says a lot about people in our headache family that take the time and effort to find me. I hope you all have a really nice and pain free day Dan Quote Link to comment Share on other sites More sharing options...
Donnie S Posted April 17, 2013 Share Posted April 17, 2013 Dan is there a link to the nat geo video i would love to see it Quote Link to comment Share on other sites More sharing options...
HeadacheRelief Posted April 17, 2013 Share Posted April 17, 2013 Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted April 17, 2013 Share Posted April 17, 2013 Here's the Nat Geo episode - Dan's feature starts at around 30:50. http://www.youtube.com/watch?v=LjteSZu_JqM Dan I hope you don't mind me jumping in here like this, after all "Buttinsky" is my middle name. :-/ -Jeebs Buttinsky McJeebers Quote Link to comment Share on other sites More sharing options...
Hipshot Posted April 18, 2013 Author Share Posted April 18, 2013 Thanks Jeeb Quote Link to comment Share on other sites More sharing options...
1961mom Posted April 18, 2013 Share Posted April 18, 2013 I've set "google alerts" for clusters, if it's mentioned in any news article or blog site, I get an alert. I average a dozen or so alerts per week. You would not believe the number of weird & specialized sites, lol. Gamers, Gardeners, Cartoonists....dancers (belly dancers, if I remember correctly) and they all have their personal forums. I become a member, get a user name create a password and try to answer the "alert". Dan, you would not believe the number of times I've seen the NatGeo special referenced by another CH aware person. I'm always trying to see if I know them some how from any other site, like facebook. I rarely do. Interestingly, many aren't patients themselves. They come right out and say so in their post. "Wow, those suck. I saw this documentary on NatGeo......., you should google it" or "psilocybin works, I saw it on NatGeo". Always thrills me to read this kind of awareness or at least association as a resource for help. I brush my hands together and say, "Thank you Dan & Lee Ann my work here is done!" LOL Hope your getting the Thank you vibes! ;D Quote Link to comment Share on other sites More sharing options...
1961mom Posted April 18, 2013 Share Posted April 18, 2013 PS The last site?? Fertility site dedicated to how to get PG! My welcome message just cracked me up. We'll have you buying booties soon! Oh I hate fibbin :D I said I wanted a multiple birth pregnancy : Quote Link to comment Share on other sites More sharing options...
blueballs Posted April 18, 2013 Share Posted April 18, 2013 You better not fall off that pedestal I have you on...lmao.. Thanks for doing that Dan..He's got big balls. bb Quote Link to comment Share on other sites More sharing options...
Tony Only Posted April 19, 2013 Share Posted April 19, 2013 Awesome ! Not a familiar name to me though and I consider I know most of the finns who have CH and spend time online. I want to personally THANK Dan too for telling his story for National Geographic. No matter how much I have spoken or written, it is documentaries like this one that really turn heads and get attention. NatGeo was aired on finnish TV and I did my very best to make sure as many CH folks would see it as possible, advertised it on finnish CH sites (well on those which would publish my posts, since you still can not talk about alternatives here), even on "magic mushroom" sites for recreational users. Just to get the word around. I have often thought there is a lot of CH sufferers in Finlandia. Maybe it is our genes? We also (still) have pretty high suicide rate though it has improved for the better but maybe there is a link, via body-emotion-stress kind of thing. Since the discussion about alternative treatments is more or less forbidden here this creates the current situation; when someone finds relief from let's say psychedelics he "keeps it to him/herself" and disappears from finnish CH communities. Only people using pharmaceuticals talking with each other. Gladly, via our FB group, this has changed a lot. So, Dan, if you would be so kind and pass our address to Jarno, that would be great. We are at http://www.facebook.com/groups/ch.naturals/ Everyone here is welcome as well since we use english in our group too. Thumbs up for Dan for sharing your story and showing a great example MOD: Oh, CHFather had already linked, Thank You mate. jussi is also finnish and there are others but I can't recall the user names since they don't post often. Language seems to be a big barrier over here (as you can probably see from my english) Quote Link to comment Share on other sites More sharing options...
MoxieGirl Posted April 19, 2013 Share Posted April 19, 2013 Dan, I'll take the time to write too. My best friend and house mate is very supportive of any attempt I can take to stopping clusters. Her mother had Tirgeminal Neuralgia, so she has a pretty good idea what I'm going through. She had a pretty good understanding of things, but a few weeks ago I showed her the NatGeo video, and her eyes were REALLY opened. She asked a lot of questions I kinda assumed she knew, but obviously didn't. I sometimes lull back into life, and just accept my clusters are as good as they are going to get. But she's now always nagging me (in a good way) to try seeds again, or why haven't I taken shrooms lately? The video really helped, thank you. Also, she was pretty impressed that I know you (in a way anyway). xx MG Quote Link to comment Share on other sites More sharing options...
Hipshot Posted April 22, 2013 Author Share Posted April 22, 2013 I have been away from the board for a while. I GOT MY DAUGHTER MARRIED OFF! Lee Ann and I will have a nice raise this year ;D Thanks everyone, you guys are the best. I will pass the facebook site To Jarno. Cindy, thank you for being so sweet. Moxie, we will meet one day, I'm thinking...CHICAGO Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.