spiny Posted November 8, 2014 Share Posted November 8, 2014 Yup, it certainly is my first! Thank you kind sir! [move] [smiley=tekst-toppie.gif][/move] Quote Link to comment Share on other sites More sharing options...
Fabalicious Posted November 9, 2014 Share Posted November 9, 2014 HA! Thanks Jeebies! Fab Academy is officially open for business! HUGS CHFather! You are too funny! Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted November 9, 2014 Share Posted November 9, 2014 Ha HAAAA!! Watch out ClusterWorld, we have some advanced image posting cybergeeks on the loose now. Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted November 10, 2014 Author Share Posted November 10, 2014 Just had a read through the posts, lol, lol and lol. I'll ahve a go at pasting a pic when I'm not sat at my work desk being 'eagle-eyed' by the managers... Thanks for a cheery start to a dull Monday morning at work Have fun guys and thank you Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted November 10, 2014 Author Share Posted November 10, 2014 [/url]https://[/img] did i fail?? Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted November 10, 2014 Author Share Posted November 10, 2014 YESSSSSSSSSSS!!!!!!!! i can do it too [smiley=2vrolijk_08.gif] Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted November 10, 2014 Author Share Posted November 10, 2014 Seriously, I really think the colder the energy drink, the better it works. Someone may be able to tell me the actual body part, but there is a nerve center just above and behind the tongue...If you swallow it a certain way, the cold goes right across it and kills the pain for a few seconds at a time. Like I said, I have no idea what that thing/body part is, but it works. If I'm out and about, i get an iced frappe to give me brain-freeze...weird, but brain-freeze is better than the pain, not sure why it helps? Thanks for the tips why does energy drink help? Oh and look, I've fathomed out how to insert a 'quote', all by myself!! Note to self, must remember to spell-check now... Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted November 10, 2014 Share Posted November 10, 2014 Toni you have officially joined the image posting CB elite now! ;D This talk of the attributes of brain freeze reminds me of how some headbangers do find holding ice cubes in the mouth, pressed up against roof of mouth, to be helpful. 8-) Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted November 10, 2014 Author Share Posted November 10, 2014 Not tried that Jeebs, but i will Thanks Quote Link to comment Share on other sites More sharing options...
Fabalicious Posted November 10, 2014 Share Posted November 10, 2014 Getting hit at work is the worst totally agree. I know that the sumatrip is terrible...but if you have to work...sometimes its the only way. Instead of the spray, maybe try the pills or injections? Injections are SO expensive, but they do work much faster...Just remember to keep an eye on your time frame...5 days 5 days 5 days HUGS sweetie...wishing you PFT! Quote Link to comment Share on other sites More sharing options...
Perediablo Posted November 11, 2014 Share Posted November 11, 2014 Seriously, I really think the colder the energy drink, the better it works. Someone may be able to tell me the actual body part, but there is a nerve center just above and behind the tongue...If you swallow it a certain way, the cold goes right across it and kills the pain for a few seconds at a time. Like I said, I have no idea what that thing/body part is, but it works. If I'm out and about, i get an iced frappe to give me brain-freeze...weird, but brain-freeze is better than the pain, not sure why it helps? Thanks for the tips why does energy drink help? Oh and look, I've fathomed out how to insert a 'quote', all by myself!! Note to self, must remember to spell-check now... The energy drink realy helps because of the insane amount of caffiene in them (Caffiene is a known vaso-constrictor). The Taurine helps by speeding up the digestion process and getting it to the blood faster. Then there is the cold factor. So it's really a 1-2-3 punch in a way. Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted November 13, 2014 Author Share Posted November 13, 2014 Hey thanks for that P, now I understand!!! Fabac, i pay a one -off fee for my prescriptions, so i can get anything within that time-frame, NHS is great in the UK However, getting the injections, due to cost i imagine, is harder ... thanks for the kind wishes, same to you PFDAN to you all x Quote Link to comment Share on other sites More sharing options...
elpo Posted November 19, 2014 Share Posted November 19, 2014 Wow - this has happened to me many times. Unfortunately the neurologists in Halifax NS (where I live) have no idea what to do with clusterheads and tend to treat me like I have migraines...ie. 3 tylenol, 2 ibuprofen and lots of water, or morphine, indomethacin, etc. I've never been offered oxygen. Tryptans take too long to work so they haven't really helped me at work. Since I work in an office, I've scouted-out a few hiding places around the building. These places are safe for me in that I know no one will bother me, there aren't a lot of distracting noises, and they are cool in temperature. One hiding spot has a wall clock and the ticking soothes me while i rock. After an hour, I'm pretty much through the worst part, sometimes less, and then I head back to my desk. When returning, it's pretty clear that I've had an attack and my boss is kind and doesn't question me. On a side note, I work very hard when I'm feeling well in order to stay ahead of schedule and show my bosses that I will get everything done. This means staying late too. When I'm in the worst of a cycle and the hits are coming 3 - 4 times a day, I must call in sick. Given this, I also hoard sick days knowing I'll need them desperately when the time comes. Quote Link to comment Share on other sites More sharing options...
CHfather Posted November 19, 2014 Share Posted November 19, 2014 I've never been offered oxygen. Well, you've got to change this! Toot sweet, as they say in Canada and Nashville. Print these out and bring them to your doctor: http://jama.jamanetwork.com/article.aspx?articleid=185035 http://www.guideline.gov/content.aspx?id=34898 About halfway down this page there's a table. Look under "attack treatment." Tryptans take too long to work so they haven't really helped me at work.  Are these oral triptans? The injectable kind typically work pretty well. (I see in another post you say that busting has worked well for you, so I'll mention that these triptans do interfere with busting (or seem to, anyway). You've tried an energy shot or energy drink to quell your attacks? Quote Link to comment Share on other sites More sharing options...
elpo Posted November 19, 2014 Share Posted November 19, 2014 Thanks CHfather! I don't find that shooting a red bull before the attack helps, although it helps wonders for the lingering dull face ache after the attack and will sometimes prevent the next one (within hours, during cycle). I've probably been given injectable tryptans but cannot confirm 100%. In Canada, the standard order is toradol (NSAID) injected or through IV. It doesn't help of course. I've been to the emerg dept more times than I could count and was only given oxygen once. It was years ago and all i can remember is the concern for my skyrocketing blood pressure and the staff trying to hold me down to give me the oxygen. I pretty much threw the mask away because they were trying to keep me still and in a laying down position...which is horrible for me. I absolutely cannot lie down. I refuse to even go to the hospital now, besides, I'm sure the word lunatic is in my chart somewhere Anywho, yes! Vitamin M has worked absolute miracles for me so far! I still get achy and sometimes will wake up with a K2 or 3 in the wee hours of the morning, but when that happens, I take a healthy amount of VM and am usually good for about 2 - 3 weeks. Also, my neuro put me on elavil for a short time last year (before I tried VitM). It was absolutely horrible - the cycle I was trying to break started anew and was the worst ever. I feel like a freaking guinea pig up here.... Quote Link to comment Share on other sites More sharing options...
CHfather Posted November 19, 2014 Share Posted November 19, 2014 I don't find that shooting a red bull before the attack helps RedBull is just about the weakest of the energy drinks/shots. If the occasion arises again, you might try 6 Hour Power or even 5 Hour Energy (shots). Check caffeine levels. Just to be clear, with oxygen you can sit up and pace around (with a longer tube). There might come a day when you want it, and if it's free through your NHS, I'd recommend persisting in getting it now. Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted November 20, 2014 Share Posted November 20, 2014 Monster Energy Drinks in the blue can!!! (Low Carb Don't drink any the day of dosing though. I found they kill the dose. (most likely the high Vitamin . J Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted November 25, 2014 Author Share Posted November 25, 2014 Monster Energy Drinks in the blue can!!! (Low Carb  Don't drink any the day of dosing though. I found they kill the dose. (most likely the high Vitamin . So, vitamin B isn't good if you're busting then? I've upped lots of vitamins including B's...was gonna start seeds after neuro in December (when i hopefully get my portable tank ) Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted November 25, 2014 Author Share Posted November 25, 2014 ^^^^^ epic fail at the 'quote' there ^^^^ Quote Link to comment Share on other sites More sharing options...
spiny Posted November 25, 2014 Share Posted November 25, 2014 ^^^^^ epic fail at the 'quote' there ^^^^ Tongue ToniEvo: Highlight the part you want to quote. Hit the 'mark and quote button (top right on each post) and there ya go! Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted November 26, 2014 Author Share Posted November 26, 2014 Thanks spiny just done one successfully yippee Quote Link to comment Share on other sites More sharing options...
Fabalicious Posted November 29, 2014 Share Posted November 29, 2014 Wooot Toni! Look out we are getting dangerous! 8-) Quote Link to comment Share on other sites More sharing options...
spiny Posted November 29, 2014 Share Posted November 29, 2014 You know, it is rather cool that we have several new Lady members. Fewer of us are willing to listen to some diploma claim migraine because we are female. 8-) I think that we are standing up, stomping up, raising hell, to get a proper diagnoses. We are learning and using that knowledge to get proper treatment. I call that success. Not that I wish it one anyone. I am just glad that doc's are no longer able to get away with 'You have migraines. Take this pill and go away.' I had to drag my hubby to my second appt with the neuro to get the man to listen to me at all!!! Times, They are a Changing. Quote Link to comment Share on other sites More sharing options...
diamondmaker Posted November 30, 2014 Share Posted November 30, 2014 Well said spiny It affects me in profound ways when I hear the stories of women going 20+ years being treated for migraines and told they are exaggerating their symptoms. :-[ :-/ :'( Edit: gotta make an emoticon that is like [smiley=tekst-toppie.gif] only with the finger! Quote Link to comment Share on other sites More sharing options...
ToniEvo Posted December 4, 2014 Author Share Posted December 4, 2014 Wooot Toni! Look out we are getting dangerous! Hahaha Fabac - and with a 'pudding-brain' too Just think what I'll achieve when I get off the Meds!! [smiley=thumbsup.gif] You know, it is rather cool that we have several new Lady members. Fewer of us are willing to listen to some diploma claim migraine because we are female.  I totally agree Spiny, that's all so many of us have had for far too many years...Dare we begin to hope that the 'specialists' are finally coming to their senses and beginning to understand...It can't be a coincidence that this AMAZING site is bringing such a debilitating condition to the forefront of their minds Massive shout-out to you all!!! Quote Link to comment Share on other sites More sharing options...
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