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I read about the study on psilocybin and its potential to reduce symptoms and disability in major depression. It's fascinating how researchers are exploring alternative treatments for mental health conditions. While the findings are promising, it's essential to approach such treatments with caution and under the guidance of healthcare professionals.

Mental health research continues to explore alternative treatments, and it's encouraging to see promising results in this area.

Just to add, got a free trial and it did nothing more than give me an elvis sneer from the muscle contractions and nothing else.

Welcome to the Triangle! It’s been my home for many years and I love it! I don’t recommend Raleigh Neuro. They had a high turnover of doctors and I spent a lot of time explaining / fighting them on stuff. APRIA I’ve used them for my oxygen for years. They deliver and show up at the time they tell you their drivers are also very nice. If they initially tell you it’s not covered, you may need to call the main one 800 corporate office first. DUKE I highly recommend Duke Neuro. I see Dr. Timothy Collins at the Moreene Rd. Very knowledgeable. I haven’t see Dr. Mhoon, but he’s supposed to be amazing. They are likely a 6-10 month wait for new patients, so book now. They are worth the wait. I did see Hillary Yu at Duke. My social anxiety didn’t agree with her. CHAPEL HILL / UNC I can’t remember the specific doctor’s name, but I’ve heard good things about UNCs headache clinic. Give it a Google and you’ll find it. If you have questions, feel free to text me. I’ll forget to check back here for responses. 919-218-3318

@Baby Moth, your best bet for seeing posts here about GammaCore is to type gammacore into the search bar at the top right of the page. You'll get about 160 posts.

Yeah, those are a price gouge. Crazy how it could work forever but they set it to self destruct. I don't think I have seen too many positive experiences here with gamma core. Hopefully more people chime in.

Has anyone used / had success with GammaCore (https://www.gammacore.com)? I am thinking of getting a prescription, but it's VERY expensive and not covered by insurance. Wanted to see if anyone had experiences with this in the community. Thank you!

Hi all! It’s been a long time. Happy to report I’m cluster and shadow free for almost a year now. Keeping my fingers crossed to continue this trend. My fiancé and I are taking the plunge. We are leaving FL and moving to Raleigh North Carolina! Looking for good recommendations for headache specialists or neurologists in the area and O2 suppliers. thank you!

Understood. Something I'm interested in, and you might find interesting too, is ketamine infusions, which we don't currently have a lot of collective experience with like we do with busting, but some very early prelim reports about it appear encouraging. In a case like yours I would hope it wouldn't conflict with employment restrictions.

...OXYGEN, OXYGEN, OXYGEN................................

If it's the sumatriptan injector (Imitrex) that you have, you can split your injections to use less and still get the same results. https://clusterbusters.org/forums/topic/2446-extending-imitrex/ YES, get that oxygen. Changes everything. See the overview file linked to in the last sentence below for more info about getting and using O2. Are you doing the whole D3 regimen? https://clusterbusters.org/forums/topic/1308-d3-regimen/ Was the loratadine (Claritin) prescribed, or did you decide to take it? (It's a good idea; I'm just wondering.) If you're not taking the full D3 regimen, you don't have a real preventive medication. That's what the Depakote would be for. I don't think Depakote is prescribed much anymore (side effects, I would guess), but it was fairly effective in small clinical trials. If you do the full D3 regimen, you'll get the prevention without the side effects. I take it you haven't tried Emgality or one of the newish CGRP medications? Since you're new to this thing, you might get some thoughts from this overview: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/

Hi my name is Chris and was recently diagnosed with cluster headaches. Before NY doctors appointment I was convinced I had an aneurysm or tumor. So thank God it turned out to be CH, never thought I'd say that, and am trying to figure out my path. My GP said h3 thought it was CH but referred me to a neurologist. Neurologist asked a bunch of questions and agreed it was CH. I've tried D3, loratidine, caffeine, praying, and sumatriptan. I still take D3, loratidine, have an emergency caffeine drink of 200mg in my room at all times, and sumatriptan. The sumatriptan seems to be the one that works. It takes me frim a 10 to 0 in about 5 to 10 minutes. I plan on asking for high flow oxygen at my next appt in a couple weeks. The N also gave me Depakote but I feel weird about that. Mushrooms aren't for me because I'm a federal employee and work for DoD. Do have federal BCBS though. Anyway that's my story so far thanks for listening. Good luck to you all.

Hi there! I’m encountering the same problem for my trip May 6. I may have a lead for you, DM me!

To note, I was diagnosed years ago, so that is another.

Thanks all!

I think that might be the member Into Light. @TorontoCanada, you might try DMing him. (Click on the envelope icon at the top right.) He did not leave here under the happiest of circumstances, but he seemed like a good-enough guy to me. I assume you have talked with your O2 supplier. Googling "oxygen tank rentals in New York City," I did see a few things, including this: https://www.cloudofgoods.com/new-york-city-ny/medical-rentals/oxygen-tank-127. It's a very small tank, maybe good for one abort. But maybe they'll be willing to tell you about bigger ones. Lots of listings for people renting concentrators . . . which might be better than nothing.

@TorontoCanada I can only recall one forum member from the NYC area and he hasn't been active here in several years!! If you're on Facebook, I know there are several folks from NYC in the "Cluster Headaches (Trigeminal Autonomic Cephalalgia)" group who may be able to lend some advice! Dallas Denny

Hey all, I'm set to travel by plane to NYC from Toronto, Canada on Wednesday of next week (April 24) and I've got nothing but dead ends trying to get Oxygen tank rentals. I'm only going to be there for a few days so was hoping for 2x D tanks and 2x E tanks. I just need the tanks, I have a regulator and mask I can bring with me. ANY LEADS???

i know one

Was reading a study that linked autoimmune disorders as higher in adhd people and biological siblings, curious if there may be a link to clusters? How many here know they have adhd or are pretty sure?

Understood

Hi Larry, While Bob and others greatly appreciated overflowing support that came from everywhere when we shared the news, I think it's best to respect Bob's privacy. Enough people in the community had concerns about his wellbeing that it made sense to share the news, to celebrate and lay questions to rest. Thanks!

Wowee, details? The world needs some good news and this is fan tastic! Larry

@Mike OB, that is some combination of unpleasant meds you're taking! As a small suggestion, I would consider splitting your sumatriptan injections. Most people can get good relief with a third or half of what's in that injector. https://clusterbusters.org/forums/topic/2446-extending-imitrex/ As a larger thought, the vitamin D3 regimen has worked very well as a preventive for hundreds of people, and might allow you to get off a couple of your current meds. https://clusterbusters.org/forums/topic/1308-d3-regimen/ And then there's busting, which of course is the primary reason this site exists. You can read about that by clicking on "New Users -- Please Read Here First" at the top of any page. Lithium usually is only prescribed to people with chronic CH, because the rebounds from stopping it can be severe (and of course many people have unpleasant side effects). I would imagine that if those meds are working okay for you, you might be very reluctant to experiment with alternatives. I'd only suggest that the absence of negative side effects from D3 and generally from busting would almost certainly be better for you in the long term.

Hello, I have been dealing with Clusters for about 11 years now. The longest I have ever had one is 4 hours. Now I have had multiples in one day and my cycle that I am currently in started in November. Currently I take Verapamil, Depakote, Balcofen, Lithium, and Emgality. I use a Sumitriptan auto injector when I get a really bad one. The mild ones if caught quick enought will usually be taken care with oxygen. Are you seeing a board certified headache specialist? If not I highly recommend it.